allaboutben.co.uk allaboutben.co.uk

ALLABOUTBEN.CO.UK

All About Ben

A website for parents of disabled children in the Norwich and Norfolk area. Particularly for parents of children with canavan disease around the world.

http://allaboutben.co.uk/

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All About Ben | allaboutben.co.uk Reviews
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A website for parents of disabled children in the Norwich and Norfolk area. Particularly for parents of children with canavan disease around the world.
<META>
KEYWORDS
1 Ben Fletcher
2 cerebral
3 palsy
4 charity
5 social services
6 wheel chair
7 child
8 Canavan Disease
9 neurological disorder
10 direct payments
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ben's story,how we cope,parent's blog,poems,forum,the best days,videos,monday,home page,our story,canavan disease,canavan affected families,symptoms,operations surgery,medication,links,special needs,ben's equipment,carers and respite,changing facilities
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All About Ben | allaboutben.co.uk Reviews

https://allaboutben.co.uk

A website for parents of disabled children in the Norwich and Norfolk area. Particularly for parents of children with canavan disease around the world.

INTERNAL PAGES

allaboutben.co.uk allaboutben.co.uk
1

Links

http://allaboutben.co.uk/links.html

Saturday, 02 May 2009 13:30. The Canavan Research Foundation http:/ www.canavan.org. This website has been a great help to us putting us in touch with other canavan families and providing us with information from people experienced with looking after a child with canavan disease via their forum. Canavan Foundation http:/ www.canavanfoundation.org. The Myelin project http:/ www.myelinproject.co.uk. A Website About Jacob and his mothers fight for a cure http:/ www.jacobscure.org.

2

Carers & Respite

http://allaboutben.co.uk/carers-and-respite.html

Written by Sally Fletcher. Saturday, 02 May 2009 14:16. Since Ben was a few months old I have been seeking help to look after him, not because I want help in raising my children but because I had to recognise I needed it. This is our experience. Http:/ www.dh.gov.uk/en/SocialCare/Socialcarereform/Personalisation/Directpayments/index.htm. This meant that I had to fill in a time sheet every four weeks and send it in to them and they arranged to pay our staff's wages. After my requests for help were turned ...

3

How We Cope

http://allaboutben.co.uk/how-we-cope.html

Saturday, 02 May 2009 13:49. Lots of people say to me "how do you cope? Or "I couldn't do that" I smile, or sometimes sigh on the inside, you never know what you can do until you need to do it! I thought it might be helpful to other families to share some of the practical ways in which we do manage day to day. Since he was born an increasing number of professional people have helped to care for Ben such as doctors and therapists, his "professionals" are:. What to do if Ben wakes at night. This is a simpl...

4

User Families

http://allaboutben.co.uk/other-canavan-kids.html

Near Norwich, Norfolk.

5

Symptoms

http://allaboutben.co.uk/symptoms.html

Saturday, 02 May 2009 13:24. I would not want anyone with a young child with Canavan Disease to read this website and think that their child is going to be the same as Ben. I think that Ben is quite severley affected with Canavan Disease and also it is not know, but suspected that he may have suffered additional brain damage during his birth. Ben has the following symptoms:. Severe spasticity of limbs. Reflux and feeding problems from birth requiring tube feeding.

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LINKS TO THIS WEBSITE

yiacongleton.org yiacongleton.org

Youth In Action Congleton Links

http://www.yiacongleton.org/links.html

Please note Youth in Action is not responsible for the accuracy of linked sites over which it has no editorial control. Links to other sites which may be of interest. Afasic Speech and Language. Alliance for Inclusive Education. Atypical haemolytic uraemic syndrome. British Assistive Technology Association. Bibic Brain Injury Charity. Blog of helpful tips. Brain Injury Rehabilitation Development. Change People Human Rights. Cheshire Aspergers Parents ChAPS. Childrens Adventure Farm Trust. CP Stick n Step.

adyonline.net adyonline.net

Fletcher Family Website

http://www.adyonline.net/fletchonline

Assigning the return value of new by reference is deprecated in /home/adyonlin/public html/fletchonline/plugins/system/blueflame/xajax/xajax core/xajaxAIO.inc.php. Friday 19 Aug 2016. Welcome to our website. Thanks to everyone that came to our 10th Wedding Anniversary party this weekend. We all had a great time. Please visit our new site All About Ben. Last Updated on Sunday, 25 July 2010 15:23.

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All About Ben

Welcome to the 'All About Ben' website. We have written this site about our son who has Canavan Disease, a rare neurological disorder resulting in him being severely physically disabled. We want to share our experiences in the hope that they may be of help to other families with a disabled child. I hope you will see that Ben tries hard to overcome pain and disability, gets lots of enjoyment out of life and is loved by all who meet him. There are an estimated 770,000 disabled children living in the UK.

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World of Stars | If three's a crowd, what's four?

If three's a crowd, what's four? Thu 5/14: STEM Expo. May 14, 2015. Last night Ben and I went over to Housatonic Valley Regional High School. For their STEM (Science, Technology, Engineering, and Mathematics) Expo. Ben’s project on helicopters was one of the ones selected from the Academic Fair at Salisbury Central School. Mon 5/11: Mother’s Day. May 11, 2015. For a hike and picnic lunch. The boys were very pleasant and the whole day was just fantastic. Thu 5/7: Camping in. May 7, 2015. May 4, 2015.

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