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My son has Marfan Syndrome. It is delightful. It is breathtaking. Not surprising then that so many artists have incorporated these long, lithe forms into their works. Picasso, Modigliani, Klimt and Giaccometti were all fascinated with this singular look a look embodied by the Marfan community. I wonder if any of us know how beautiful we truly are? Photos courtesy of Rick Guidotti. To see more of Rick's work, please go to Positive Exposure The Spirit of Difference.

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Ann Reinking

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Marfanzine | annreinkingsmarfanzine.com Reviews

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My son has Marfan Syndrome. It is delightful. It is breathtaking. Not surprising then that so many artists have incorporated these long, lithe forms into their works. Picasso, Modigliani, Klimt and Giaccometti were all fascinated with this singular look a look embodied by the Marfan community. I wonder if any of us know how beautiful we truly are? Photos courtesy of Rick Guidotti. To see more of Rick's work, please go to Positive Exposure The Spirit of Difference.

<META> KEYWORDS

1 home page

2 the nmf foundation

3 photo gallery

4 marfan webisodes

5 in my hands

6 announcements

7 dedication

8 about ann

9 email signup

10 welcome to marfazine

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Marfanzine | annreinkingsmarfanzine.com Reviews

https://annreinkingsmarfanzine.com

My son has Marfan Syndrome. It is delightful. It is breathtaking. Not surprising then that so many artists have incorporated these long, lithe forms into their works. Picasso, Modigliani, Klimt and Giaccometti were all fascinated with this singular look a look embodied by the Marfan community. I wonder if any of us know how beautiful we truly are? Photos courtesy of Rick Guidotti. To see more of Rick's work, please go to Positive Exposure The Spirit of Difference.

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annreinkingsmarfanzine.com

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Marfanzine

http://www.annreinkingsmarfanzine.com/photo_gallery.html

Photos courtesy of Rick Guidotti. To see more of Rick's work, please go to Positive Exposure The Spirit of Difference.

2

Marfanzine

http://www.annreinkingsmarfanzine.com/InMyHands.html

Watch In My Hands. In My Hands - Part 1. In My Hands - Part 2. In My Hands - Part 3. In My Hands - Part 4. In My Hands - Part 5. In My Hands - Part 6. In My Hands - Part 7. What might Abraham Lincooln and Charles de Gaulle have in common with my son? In My Hands asks the universal questions of young people:. Different, and that’s Ok. Quotes from Notable Viewers. Mdash; Hal Dietz. MD John Hopkins University. Mdash; Pricilla Ciccariello. In My Hands was produced by:. Sag Harbor, NY 11963.

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Marfanzine

http://www.annreinkingsmarfanzine.com/nmf_foundation.html

Marfan syndrome is a disorder of the connective tissue. Connective tissue holds all parts of the body together and helps control how the body grows. Because connective tissue is found throughout the body, Marfan syndrome features can occur in many different parts of the body. About 1 in 5,000 people have Marfan syndrome. This includes men and women of all races and ethnic groups. Marfan syndrome does not affect intelligence. What body systems are affected? Heart and Blood Vessels (Cardiovascular system).

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http://www.annreinkingsmarfanzine.com/index.html

My son has Marfan Syndrome. It is delightful. It is breathtaking. Not surprising then that so many artists have incorporated these long, lithe forms into their works. Picasso, Modigliani, Klimt and Giaccometti were all fascinated with this singular look a look embodied by the Marfan community. I wonder if any of us know how beautiful we truly are? Photos courtesy of Rick Guidotti. To see more of Rick's work, please go to Positive Exposure The Spirit of Difference.

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http://www.annreinkingsmarfanzine.com/email.html

My hope is that this site will be a place of exchange. An exchange of ideas, poems, essays, thoughts, dreams, videos and anything you want to express to people of similar backgrounds. Do you have any favorite web sites that you could recommend? I'm looking forward to hearing from you! Please enter your email to receive Marfanzine alerts.

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Marfanzine

My son has Marfan Syndrome. It is delightful. It is breathtaking. Not surprising then that so many artists have incorporated these long, lithe forms into their works. Picasso, Modigliani, Klimt and Giaccometti were all fascinated with this singular look a look embodied by the Marfan community. I wonder if any of us know how beautiful we truly are? Photos courtesy of Rick Guidotti. To see more of Rick's work, please go to Positive Exposure The Spirit of Difference.

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