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Barth Syndrome Foundation of Canada - Home

Affected by Barth syndrome.". Families and Affected Individuals. BARTH INDIVIDUALS and FAMILIES. In 2002 a small group of dedicated volunteers founded the Barth Syndrome Foundation of Canada after having had contact with the then recently established Barth Syndrome Foundation, Inc. (USA). Barth Syndrome Foundation of Canada is an affiliate of Barth Syndrome Foundation, Inc. Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report. Web Design by Pixelera.

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Barth Syndrome Foundation of Canada - Home | barthsyndrome.ca Reviews

https://barthsyndrome.ca

Affected by Barth syndrome.". Families and Affected Individuals. BARTH INDIVIDUALS and FAMILIES. In 2002 a small group of dedicated volunteers founded the Barth Syndrome Foundation of Canada after having had contact with the then recently established Barth Syndrome Foundation, Inc. (USA). Barth Syndrome Foundation of Canada is an affiliate of Barth Syndrome Foundation, Inc. Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report. Web Design by Pixelera.

INTERNAL PAGES

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1

Barth Syndrome Foundation of Canada - Welcome to the Barth Syndrome Foundation of Canada

http://www.barthsyndrome.ca/bsf-of-canada

Affected by Barth syndrome. Families and Affected Individuals. The Barth Syndrome Foundation of Canada. Our on-going programs include:. For more information please see Research Grant Program. We know from our own experience what a difference it can make to be able to reach out and connect with someone who knows what it is like to live with Barth syndrome. Our on-going awareness program has two broad audiences- the medical community and the general public. We continuously meet with medical personnel t...

2

Barth Syndrome Foundation of Canada - Francais

http://www.barthsyndrome.ca/bsf-of-canada/franais

Affected by Barth syndrome. Families and Affected Individuals. L'association Barth Syndrome de Canada (BSFCa) est une filiale de l'association américaine Barth Syndrome Foundation, Inc (BSF), et constitue, avec cette association et avec les associations affiliées Britanniques, et France, une communauté de familles, de médecins, de scientifiques, de donateurs et de volontaires répartis dans le monde entier. Entraînant une erreur innée du métabolisme. Les symptômes principaux du syndrome de Barth sont:.

3

Barth Syndrome Foundation of Canada - Diagnosis of Barth Syndrome

http://www.barthsyndrome.ca/doctors--scientists

Affected by Barth syndrome. Families and Affected Individuals. Diagnosis of Barth Syndrome. Is a rare, X-linked genetic disorder of lipid metabolism that primarily affects males across different ethnicities. Typically, boys with BTHS present with hypotonia. Low muscle tone) and dilated cardiomyopathy. Labored breathing, poor appetite, and/or slow weight gain) at or within the first few months after birth. Other important features of Barth syndrome include bacterial infections due to neutropenia. Provides...

4

Barth Syndrome Foundation of Canada - To Donate

http://www.barthsyndrome.ca/view.asp?ccid=353

Affected by Barth syndrome. Families and Affected Individuals. The Barth Syndrome Foundation of Canada is a completely volunteer, charitable foundation that raises awareness of the disorder among physicians, scientists, and the general public. We support pertinent research and provide support, information and education for affected individuals and families. 8212;to make a safe, secure and convenient online donation, please use the following link. 8212;call 905.873.2391. Donate by Mail or Fax. General one...

5

Barth Syndrome Foundation of Canada - Researcher Tools & Resources

http://www.barthsyndrome.ca/view.asp?ccid=377

Affected by Barth syndrome. Families and Affected Individuals. Researcher Tools and Resources. The Barth Syndrome Foundation of Canada is an affiliate of the Barth Syndrome Foundation Inc. (BSF). Together we are a world leading source of support for research into the fundamental understanding of Barth syndrome (BTHS), diagnosis and treatments. For researchers and scientists carrying out research BSF has available:. 8216;Seed´ funding. Of individuals with Barth syndrome. Access to the world´s largest.

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Barth Syndrome Foundation - Portugu�s ~ Bem vindo � Funda��o do Sindroma de Barth

https://www.barthsyndrome.org/bsf-international/portugues

Saving lives through education. Living with Barth Syndrome. Bem vindo à Fundação do Sindroma de Barth. O nosso objectivo é salvar vidas através da educação, evolução nos tratamentos e procuramos a cura para o sindroma de Barth. Estamos registados como organização sem fins lucrativos nos Estados Unidos da América. Esperamos sinceramente dar-lhe as boas-vindas à nossa comunidade. Por favor contacte-nos: bstinfo.portugues[at]barthsyndrome.org. Web Design by Pixelera.

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Links

http://www.barthitalia.org/links

Sei qui:  . Altre associazioni famiglie pazienti BTHS. Larchmont, New York 10538. Toll Free: 855-662-2784 or 855. Phone: 44 1794 518 785. Website: www.barthsyndrome.org.uk. 13 rue de la Terrasse. Telephone: 33 1 45 00 86 12. Website: http:/ www.barthfrane.com/. Barth Syndrome Foundation of Canada. 162 Guelph Street, Suite 115. Georgetown, ON L7G 5X7. Phone: 1-888-732-9458 or 905-873-2391. Website: http:/ www.barthsyndrome.ca. La BSF ( www.barthsyndrome.org. E si propongono di finanziare sia giovani ricer...

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Barth syndrome Europe and international

http://www.barthsyndrome.org.uk/International.php

Information for older children. NHS Service and Clinic. Saving lives through education, advances in treatment and finding a cure for Barth syndrome. Our members include affected families, volunteers, doctors and scientists from all over the world. We can put you in contact with the necessary people if you are seeking support or information. Treten Sie mit uns in Verbindung. Voor vragen en reacties. 13 rue de la Terrasse. Telephone: 33 1 45 00 86 12. Website: http:/ barthfrance.com. Georgetown, ON L7G 5X7.

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Barth Syndrome Foundation - Italiano ~ Benvenuti alla Fondazione sulla Sindrome di Barth

https://www.barthsyndrome.org/bsf-international/italiano

Saving lives through education. Living with Barth Syndrome. Benvenuti alla Fondazione sulla Sindrome di Barth. Il nostro obiettivo è quello di salvare vite attraverso l´educazione, i progressi nei trattamenti e la ricerca di una cura per la sindrome di Barth. Siamo ufficialmente registrati come un´organizzazione che agisce senza scopo di lucro negli Stati Uniti. Speriamo di accoglierVi calorosamente nella nostra comunità. AVVISO PER LE FAMIGLIE ITALIANE. La nostra organizzazione si occupa e aiuta tutte l...

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Barth Syndrome Foundation - Espa�ol ~ Bienvenidos a la Fundaci�n del S�ndrome de Barth

https://www.barthsyndrome.org/bsf-international/Espanol

Saving lives through education. Living with Barth Syndrome. Bienvenidos a la Fundación del Síndrome de Barth. Estamos dedicamos a salvar vidas a través de educación, adelantos en tratamiento, y la búsqueda de una cura para el síndrome de Barth. Estamos inscritos como organización sin fines de lucro en los Estados Unidos. Vea la página de Introducción. Para obtener más información acerca del síndrome y de nuestros servicios. Vea la página de Introducción. Inspirar, apoyar, y administrar bien el tiempo y t...

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Barth Syndrome Foundation - Nederlands ~ Nederlandse startpagina Barth Syndroom

https://www.barthsyndrome.org/bsf-international/nederlands

Saving lives through education. Living with Barth Syndrome. Nederlandse startpagina Barth Syndroom. Welkom bij de Barth Syndrome Foundation. Wij wijden ons aan het redden van levens door educatie, verbetering van behandeling en het vinden van een remedie tegen het Barth syndroom. Wij zijn geregistreerd als non-profit organisatie in de Verenigde Staten. We heten U van harte welkom bij onze organisatie. Gelieve ons te contacteren op: bstinfo.nederlands[at]barthsyndrome.org. Web Design by Pixelera.

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Barth Syndrome Foundation - Fran�ais ~ Bienvenue � la Barth Syndrome Foundation

https://www.barthsyndrome.org/bsf-international/francais

Saving lives through education. Living with Barth Syndrome. Bienvenue à la Barth Syndrome Foundation. Nous nous consacrons à sauver des vies grâce à l´information, aux avancées dans les traitements et à la recherche d´un remède contre le Syndrome de Barth. Nous sommes reconnus par l´Etat comme une organisation à but non lucratif en France. Et d´autres symptômes possibles. Nous espérons vous accueillir chaleureusement dans notre communauté. Web Design by Pixelera.

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Barth Syndrome Foundation - Deutsch ~ Barth Syndrom

https://www.barthsyndrome.org/bsf-international/deutsch

Saving lives through education. Living with Barth Syndrome. Herzlich willkommen zur Barth Syndrom Website. Unser Ziel ist es Leben zu retten durch Aufklärungs- und Bildungsarbeit, Fortschritte in der Behandlung und der Suche nach einem Heilverfahren für Barth Syndrom. Wir sind eine registrierte gemeinnützige Organisation mit Hauptsitz in den Vereinigten Staaten. Und Tochterorganisationen in Kanada. Auch für den deutschsprachigen Raum gibt es Ansprechpartner. Web Design by Pixelera.

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Barth Syndrome Foundation of Canada - Home

Affected by Barth syndrome.". Families and Affected Individuals. BARTH INDIVIDUALS and FAMILIES. In 2002 a small group of dedicated volunteers founded the Barth Syndrome Foundation of Canada after having had contact with the then recently established Barth Syndrome Foundation, Inc. (USA). Barth Syndrome Foundation of Canada is an affiliate of Barth Syndrome Foundation, Inc. Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report. Web Design by Pixelera.

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Barth Syndrome Foundation : Home

Annual Reports and Financials. Scientific and Medical Advisory Board. Barth Syndrome Registry and Repository. Human Tafazzin (TAZ) Gene Variants Database. Scientific and Medical Presentations. Scientific and Medical Journal Articles. Highlights of Clinical Knowledge. NIH and Other Agencies Research Initiatives. What is Barth Syndrome? International Classification of Disease. Principal Clinical Diagnostic Criteria. Other Important Findings by System. Barth Syndrome Diagnostic Laboratory Testing. Families ...

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Barth Syndrome Trust - Saving lives through education, advances in treatment and finding a cure for Barth syndrome

Information for older children. NHS Service and Clinic. Saving lives through education, advances in treatment and finding a cure for Barth syndrome. New to Barth syndrome? Families, please visit our Newly Diagnosed pages for a summary of what you need to know now. Our website contains a wealth of useful information about Barth syndrome. Help us to make a difference. One day there will be a cure so please join us and help us make that day come sooner. Heart muscle weakness (cardiomyopathy). Working togeth...

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Barth Syndrome Registry and Repository (BRR)

Barth Syndrome Registry and Repository (BRR). The Barth Syndrome Registry and Repository (BRR). The purpose of BRR is to amass information and biological specimens from individuals with Barth syndrome into a single database, which will be utilized by researchers to better understand Barth syndrome. Through our families' contribution to the BRR knowledge is gained, research is facilitated and differences are being made.

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