jacobsspecialheart.blogspot.com
Jacob's Journey: August 2013
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Thursday, August 15, 2013. Home and LOVING IT! THANK YOU FOR ALL OF THE PRAYERS! As you can see, they worked. I am sorry I have not updated the blog since we have been home but we have been busy. Jake is doing AMAZING. He is pretty much back to normal. Happy, playing and pretty much pushing every limit and restriction he was sent home on lol. As soon as we got home I set up my command center. Anyone who knows me also knows that I do better when I am in control (I am a serious control freak). Diuril is no...
jacobsspecialheart.blogspot.com
Jacob's Journey: October 2014
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Tuesday, October 28, 2014. Wow, I can't believe how long it has been since I have updated Jake's blog. I haven't written in over a year! I apologize for the lack of updates, so much has happened over the last year. One big and exciting event was Jacob's Make-a-Wish trip! The last time I blogged Jake had just come home from having his Fontan (Last open heart surgery). I am happy to report that heart wise he has been doing great! Getting his EKG, such a big boy now. 1st day of Pre-K. I am not denying he is...
jacobsspecialheart.blogspot.com
Jacob's Journey: Long overdue update...
http://jacobsspecialheart.blogspot.com/2014/10/long-overdue-update.html
Tuesday, October 28, 2014. Wow, I can't believe how long it has been since I have updated Jake's blog. I haven't written in over a year! I apologize for the lack of updates, so much has happened over the last year. One big and exciting event was Jacob's Make-a-Wish trip! The last time I blogged Jake had just come home from having his Fontan (Last open heart surgery). I am happy to report that heart wise he has been doing great! Getting his EKG, such a big boy now. 1st day of Pre-K. I am not denying he is...
jacobsspecialheart.blogspot.com
Jacob's Journey: May 2012
http://jacobsspecialheart.blogspot.com/2012_05_01_archive.html
Tuesday, May 15, 2012. Home but not so settled. We are back in West Virginia and a ton has gone on since my last post. Sorry I have not posted earlier but we have been trying to get into our routine and have had a few trips to the hospital. Jake is doing great and is loving being home. His breathing is so quiet it is kind of Eerie. Sunday night (May 6 th. Fast forward to the next morning. I woke up at about 7am. I heard the nurse say "He had a great night". I quickly told her NO, I want an attending NOW!
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Jacob's Journey: Another day hanging out in the CCU...
http://jacobsspecialheart.blogspot.com/2013/08/another-day-hanging-out-in-ccu.html
Thursday, August 1, 2013. Another day hanging out in the CCU. Post Fontan Day 15. Jacob's chest x-ray looked a little better today, YAY! Not too much to report other then that. All of his labs look good so they don't need to stick him tomorrow. double yay! I just replied "We would love to, fingers crossed". I hope to write tomorrow from my own home but we will see what the xray shows. Until then here are some pictures of my little monster from today. Enjoy. Laughing with a mouth full of food! No matter w...
jacobsspecialheart.blogspot.com
Jacob's Journey: Jacob's Story
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Welcome to Jacob's Journey. If you are a heart mom and were recently diagnosed, I hope you can find some hope in our story. Hypoplastic Left Heart Syndrome. This was also the day we were able to hold our baby for the first time. Kissing him good-bye and watching them wheel him to the OR was the hardest thing I have ever done. I told him to be strong and that I loved him. Jacob did very well during his surgery and was off the ventilator 5 days later. Stage 2: bi-directional Glenn). If able please donate t...
jacobsspecialheart.blogspot.com
Jacob's Journey: August 2012
http://jacobsspecialheart.blogspot.com/2012_08_01_archive.html
Thursday, August 2, 2012. This blog post is dedicated the greatest man who ever walked this earth, my Papa. I realize it has been over a month since my last blog post. My dad reminds me DAILY that I need to update the blog. I am sorry that I take so much time between posts but as you know "Life happens". And I don't get to jump on here as often as I would like. I do love that Jacob has so many fans and am so grateful that you care so much about our little guy. So lets get to it shall we! While saying "O,...
jacobsspecialheart.blogspot.com
Jacob's Journey: DISCHARGED!
http://jacobsspecialheart.blogspot.com/2013/08/discharged.html
Saturday, August 3, 2013. Post Fontan Day 16. Another thing we have to adjust to is all of the medication Jacob was sent home on. Before his surgery he was only on Aspirin and Enalapril. Now he is on EIGHT. Lovenox Injections 9 units. Enough to make your head spin, right? Right now we are doing:. Lovenox, Lasix, Enalapril, Zantac, Aldactone, Antibiotic. Lovenox, Lasix, Enalapril, Zantac, Aldactone, antibiotic. We are at the Ronald McDonald House tonight and will be leaving first thing in the morning to g...
jacobsspecialheart.blogspot.com
Jacob's Journey: January 2013
http://jacobsspecialheart.blogspot.com/2013_01_01_archive.html
Tuesday, January 22, 2013. It has been a busy couple of months but we are all doing very well. The boys had an amazing Christmas and they must have been extremely good because Santa was very generous! I have not updated this blog since October so I am going to try and do a quick summary of what has been going on at the Baker Household. The boys are growing up so fast! I found out from the hearing specialist that a main side effect of IV antibiotics is permanent hearing loss and it is common for kids with...
jacobsspecialheart.blogspot.com
Jacob's Journey: Home and LOVING IT!
http://jacobsspecialheart.blogspot.com/2013/08/home-and-loving-it.html
Thursday, August 15, 2013. Home and LOVING IT! THANK YOU FOR ALL OF THE PRAYERS! As you can see, they worked. I am sorry I have not updated the blog since we have been home but we have been busy. Jake is doing AMAZING. He is pretty much back to normal. Happy, playing and pretty much pushing every limit and restriction he was sent home on lol. As soon as we got home I set up my command center. Anyone who knows me also knows that I do better when I am in control (I am a serious control freak). Diuril is no...