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Krabbe Leukodostrophy Foundation - Ellane Du Toit Foundation

Krabbe Leukodystrophy, also called globoid cell leukodystrophy or krabbe disease, is a rare fatal genetic disorder. There is no cure for Krabbe Leukodystrophy

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Krabbe Leukodostrophy Foundation - Ellane Du Toit Foundation | ellanefoundation.org Reviews
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Krabbe Leukodystrophy, also called globoid cell leukodystrophy or krabbe disease, is a rare fatal genetic disorder. There is no cure for Krabbe Leukodystrophy
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Krabbe Leukodostrophy Foundation - Ellane Du Toit Foundation | ellanefoundation.org Reviews

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Krabbe Leukodystrophy, also called globoid cell leukodystrophy or krabbe disease, is a rare fatal genetic disorder. There is no cure for Krabbe Leukodystrophy

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Our beginning - Ellane Du Toit Foundation

http://www.ellanefoundation.org/index.php/who-we-are/our-beginning

Change somebody's life today! Subscribe to our newsletter. When to see a docter and what to expect. Gene testing South Africa. The Ellané Du Toit Foundation was founded in the memory of our little girl Ellané being diagnosed with a rare disease called Krabbe Disease. Furthermore to constitute new born screening tests as one of the. Developed and Designed by SilverEagle IT Solutions.

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Krabbe Leukodostrophy Foundation - Ellane Du Toit Foundation

http://www.ellanefoundation.org/index.php

Subscribe to our newsletter. When to see a docter and what to expect. Gene testing South Africa. My granddaughter, Ellané du Toit, was born on 23 December 2009 in Pretoria. Just 18 months later we had to give this angelic child back to God. Through the Ellané du Toit Foundation, which we established in her memory, we want to make South Africans aware of Krabbe disease. Presently we know of only six cases and would like to support other families who are faced with this disease. We loved her unconditionall...

3

Events - Ellane Du Toit Foundation

http://www.ellanefoundation.org/index.php/what-we-do/events

Change somebody's life today! Subscribe to our newsletter. When to see a docter and what to expect. Gene testing South Africa. RARE DISEASE DAY 2014 - CARE. We had a blessed day of awareness, advocate for those that are unable to speak for themselves! WEAR YOUR JEANS AND RIBBON ON 28 FEBRUARY AND. HELP RAISE AWARENESS FOR RARE DISEASES. This email address is being protected from spambots. You need JavaScript enabled to view it. Ribbons @ R10 p/ribbon. Let’s Join Together for Better Care! Encourages the r...

4

Care - Ellane Du Toit Foundation

http://www.ellanefoundation.org/index.php/what-we-do/care

Change somebody's life today! Subscribe to our newsletter. When to see a docter and what to expect. Gene testing South Africa. Through the Ellané du Toit Foundation we plan to provide to children:. Provision of medical assistance. Developed and Designed by SilverEagle IT Solutions.

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Krabbe leukodystrophy - Ellane Du Toit Foundation

http://www.ellanefoundation.org/index.php/krabbe-leukodystrophy

Change somebody's life today! Subscribe to our newsletter. When to see a docter and what to expect. Gene testing South Africa. Information about the disease. What is Krabbe Disease? Krabbe Disease is a rare, genetic, incurable, terminal disorder. It is one of several known leukodystrophies: genetic diseases that progressivelydestrou the white matter of the brain. Signs and symptoms include:. Loss of head control. Changes in muscle tone (limb and muscle stiffness, poor coordination of movements). Children...

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Krabbe Leukodostrophy Foundation - Ellane Du Toit Foundation

Subscribe to our newsletter. When to see a docter and what to expect. Gene testing South Africa. My granddaughter, Ellané du Toit, was born on 23 December 2009 in Pretoria. Just 18 months later we had to give this angelic child back to God. Through the Ellané du Toit Foundation, which we established in her memory, we want to make South Africans aware of Krabbe disease. Presently we know of only six cases and would like to support other families who are faced with this disease. We loved her unconditionall...

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