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Ethan's FightEthan Waddell's fight against Hurler's Syndrome.
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Ethan Waddell's fight against Hurler's Syndrome.
http://ethanwaddell.blogspot.com/
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Ethan's Fight | ethanwaddell.blogspot.com Reviews
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Ethan Waddell's fight against Hurler's Syndrome.
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Ethan's Fight: January 2014
http://ethanwaddell.blogspot.com/2014_01_01_archive.html
Ethan Waddell's fight against Hurler's Syndrome. Friday, January 3, 2014. Then there are the medium size unpleasant things you do to him: countless doses of medicine, daily, weekly and monthly doctor’s appointments, being poked and prodded, multiple weekly rehab appointments, blood pressure cuffs, eye exams, audiology booths, O. These are the thousands and tens of thousands of indignities and insults that we’ve subjected Ethan to over his first five years. You’ve got all that in your head? 8217; and trie...
Ethan's Fight: November 2014
http://ethanwaddell.blogspot.com/2014_11_01_archive.html
Ethan Waddell's fight against Hurler's Syndrome. Friday, November 21, 2014. Working With A Special Needs Child. Ethan's been sleeping much better lately. But this morning, Sarah was up with him from 3:45 am This is kind of what that looks like. Subscribe to: Posts (Atom). In July 2009, one week before his first birthday, our son Ethan was diagnosed with mucopolysaccharidosis type 1H (Hurler's Syndrome). Now, 15 months later, it appears that the second transplant was successful. More information about Hur...
Ethan's Fight: August 2014
http://ethanwaddell.blogspot.com/2014_08_01_archive.html
Ethan Waddell's fight against Hurler's Syndrome. Tuesday, August 26, 2014. The neuropsych tester looked at me and politely said (for the third time), "I respect your protectiveness, but if I could just work with him for a few more minutes.". It struck me as odd that this woman, who works to understand and define the needs and supports for special needs kids, couldn't accept Ethan's needs when they went against her intentions or were outside of her paradigm. But Ethan's not in that range. Ethan's rang...
Ethan's Fight: May 2014
http://ethanwaddell.blogspot.com/2014_05_01_archive.html
Ethan Waddell's fight against Hurler's Syndrome. Thursday, May 15, 2014. Today, May 15 is International MPS Awareness Day. We humbly ask you to honor Ethan and all of the innocents affected, both those still struggling and those who have lost their fight, by making a donation to the MPS Society in your country. Donations to the US MPS Society. Can be made by following the link and clicking on the yellow "Donate" button. Sarah, Caleb, Ethan and I thank you from the bottom of our hearts. It's been months a...
Ethan's Fight: Look At Him Grow (Oh yeah, we took a vacation, too.)
http://ethanwaddell.blogspot.com/2015/01/look-at-him-grow-oh-yeah-we-took.html
Ethan Waddell's fight against Hurler's Syndrome. Wednesday, January 7, 2015. Look At Him Grow (Oh yeah, we took a vacation, too.). No, Ethan's never seen the movie "Titanic.". Why do you ask? I love to watch Ethan learn and grow and show us new skills. It's something that I couldn't do for a long time. And now each time he gives us a peek at something he's learned or says something in a new and different way, I get a big, big smile on my face. Of the trust we lost last year. In fact, school is going well...
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All Things Sanders...Oh Boy!: Jackson's 2011 Soccer Season
http://slsandersfamily.blogspot.com/2012/01/jacksons-2011-soccer-season.html
All Things Sanders.Oh Boy! Wednesday, January 25, 2012. Jackson's 2011 Soccer Season. Jackson running down the field. An action shot. Not sure who the dog belongs to! Braden and Jackson's friend Noah's sister on the sidelines. They are buddies! Subscribe to: Post Comments (Atom). Reading with Uncle Jay Jay. Jacksons 2011 Soccer Season. A Day at the Childrens Museum. Again with the Cuteness. Callan is Three Months. Loving a Bath with Grammy Claudia. Callan Gets a Haircut. Going to the Pumpkin Patch.
Torie's Story: May 2013
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Wednesday, May 15, 2013. T 1196 MPS Day and Other Stuff. 3 years ago today Torie was T 100. Yes, I really do still keep track. I think I probably always will. Our lives centered around these numbers for so long. We don't count meds anymore (there are none! Oh, this poor neglected blog! Gone are the days that sleep was out of the question until I updated! I guess that's a good thing. But for you loyal followers, never doubt that you are so appreciated! On to the medical stuff.Torie did the treadmill!
Torie's Story: March 2012
http://toriebrady.blogspot.com/2012_03_01_archive.html
Thursday, March 22, 2012. T 777 Torie's 5! Happy Birthday to Torie! She got a Jessie doll from her Mommy and Ryker, and it was by far her favorite present. She loves "Yessie." She couldn't get it out of the box fast enough! Thanks as always for checking in. I sometimes feel bad that I don't get this updated more often. But more frequent updates generally means things aren't going so great. So I don't feel that bad! Thursday, March 1, 2012. I already have a post for March! When we got back, we went to mee...
All Things Sanders...Oh Boy!: Going to the Pumpkin Patch
http://slsandersfamily.blogspot.com/2012/01/going-to-pumpkin-patch.html
All Things Sanders.Oh Boy! Thursday, January 19, 2012. Going to the Pumpkin Patch. We made our annual trip to the pumpkin patch in October. We saw the animals, picked pumpkins and rode the train. It was a great afternoon! Subscribe to: Post Comments (Atom). Reading with Uncle Jay Jay. Jacksons 2011 Soccer Season. A Day at the Childrens Museum. Again with the Cuteness. Callan is Three Months. Loving a Bath with Grammy Claudia. Callan Gets a Haircut. Going to the Pumpkin Patch. Let Ethan be Ethan.
Torie's Story: August 2011
http://toriebrady.blogspot.com/2011_08_01_archive.html
Tuesday, August 9, 2011. T 551 Baby Brother! Ryker Quinn is here! He was born at 8:31AM, and weighed 7 pounds, 5 ounces. He looks about as happy to see his big sister as mine always does. Torie thinks being a big sister is pretty neat, and I hope her little brother is as awesome as mine. Lexie is doing great, and Greg came through the whole thing quite well, also. I'm sorry for not updating you sooner, but as you might guess, things have been busy here! The happy new family! Subscribe to: Posts (Atom).
Torie's Story: December 2011
http://toriebrady.blogspot.com/2011_12_01_archive.html
Saturday, December 31, 2011. T 695 The End of 2011. We wish everyone happy Holidays! I guess I better get one more post on here to make my numbers for 2011 look at least a little better. I honestly don't know how I manged to keep this up before! We went to Orlando December 3rd for Torie's Make-A-Wish, and we had a spectacular time! You take me to Disney now? Subscribe to: Posts (Atom). 239 N Ash Street. Fruita, CO 81521. What is MPS I? Want to know more? Ronald McDonald House - Twin Cities.
Torie's Story: T+1176 Six Cakes
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Thursday, April 25, 2013. T 1176 Six Cakes. About a year ago, Torie said, "Mama, my next birthday will be 6. I think I need 6 cakes." And so, of course, she got them. And this year she did a much better job of ordering them. She said "I need pink and purple cakes. They need to sparkle." And they did! Kind people often say, "She is so lucky to have you and your family." But really, we are the lucky ones. We are so fortunate that she picked us! We treasure her every day! Subscribe to: Post Comments (Atom).
Torie's Story: T+1367 Graduation, Gratitude and Gaps
http://toriebrady.blogspot.com/2013/11/t1367-graduation-gratitude-and-gaps.html
Saturday, November 2, 2013. T 1367 Graduation, Gratitude and Gaps. Once again I'll try to get caught up before the end of the year! Torie had a great year at Preschool, and graduated in May. She enjoyed making new friends and having something "Just for me to go to.". We really appreciated the VERY small class size and all the individualized support from her teachers! Torie is always excited to go to the hospital. Weird, right? So it's "Hospital Wednesday, Enzyme Wednesday, Popcorn Wednesday! I can't imag...
Torie's Story: October 2012
http://toriebrady.blogspot.com/2012_10_01_archive.html
Wednesday, October 31, 2012. After just 7 short months, I'm finally getting a post on this poor neglected blog. I've frequently had good intentions, and then something else seems to be going on and it passes. It has been 1000 days since Torie and Josiah's transplants. Yes, I really do still keep track. Some days it seems so long ago, and other times it seems like just yesterday. Torie is doing awesome! She is so full of energy and never seems to slow down. WARNING- - the next picture is pretty graphic!
Torie's Story: November 2011
http://toriebrady.blogspot.com/2011_11_01_archive.html
Monday, November 21, 2011. In July we met Rylie for a trip through the Aquarium in Denver. They are so cute together. We sure wish we lived closer! Dinging on the wano" (singing on the piano) with Cousin Kylie at Aunt Lettie's house. Painting Mama-Great's birthday present in August. And she got something besides a Torie, too! At Tom's family Ranch in Arizona over Labor Day. Torie got to meet so many members of this family. Finally! Torie and Uncle Eddy and Papa Tom.she loved it! And Torie joining him!
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Ethan's Fight
Skip to main content. Ethan Waddell's fight against Hurler's Syndrome. April 17, 2017. March 18, 2017. Let Ethan be Ethan. August 11, 2016.
Ethan Waddle
Graphic Designer. Illustrator. Fun-Time Haver. I am a designer with a passion for illustration.
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Commashoosi | All about the creatures the Commashocis
All about the creatures the Commashocis. October 25, 2008. October 25, 2008. This is the Commashoosi Dessert hang up spot. Please notice that devil commashoosi is dead but he still likes to enjoy his meal! October 25, 2008. This is a commashoosi map of the whole Commashoosi island. Commashoosi keeps on getting bigger and bigger and bigger so there will be more added to this map. I’m not done with this one). October 25, 2008. My Mom’s Commashooci’s. October 25, 2008. October 25, 2008. October 25, 2008.
