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Sandbox Moments Life with our adult son with Angelman Syndrome: August 2013
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Wednesday, August 14, 2013. I've Had the Time of My Life. Today is one of those days that I want to remember. To many just another ordinary Wednesday. In the middle of August,. But to me it will forever be a treasured memory. That I will tuck away for a rainy day. A day we almost missed because our day began at 4am. And I was soooooo tired.too tired to wrestle the beast,. But a 10 minute nap and a ridiculous amount of coffee,. And I was ready to go! Our movie theater offered a. Has seen hundreds of times.
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Sandbox Moments Life with our adult son with Angelman Syndrome: May 2014
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Wednesday, May 14, 2014. Don't Put Toothpaste on Your. Recently a list circulated through the Facebook. 25 Ways You Know You are a Mom. I thought I would put my own twist. On this theme.Angelman style. This child of ours, often referred to as an "angel,". Can be anything but angelic. The term "angel" stems from. Harry Angelman, the British pediatrician who identified. It is not a commentary on their. At least not Scotty's). You know You Are the. Mom of an "Angel" Man/Woman If. With your non-verbal child.
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Sandbox Moments Life with our adult son with Angelman Syndrome: March 2014
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Wednesday, March 5, 2014. The Lenten season is upon us once again. As Catholics Lent is a special time of prayer,. Penance, sacrifice and. Good works in preparation. Of the celebration of Easter. For many, including me, this often translates. Into giving up something you love, a sacrifice. I have done it all. In all my previous attempts I have failed. The coffee was a tragic error in judgement. In my extremely sleep deprived life. In truth I almost killed a man. In a last startling moment of lucidity I.
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Sandbox Moments Life with our adult son with Angelman Syndrome: June 2013
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Wednesday, June 12, 2013. This Little Light of Mine. Let your light shine before men,. That they may see your good deeds. And praise your Father in heaven. God shouts at me.a lot.and He is so incredibly loud. Perhaps it is necessary to vociferate so loudly in order to be heard over the noise and chaos that is the soundtrack of our life. I share this mainly as a preliminary explanation for this week's post. Today I google image searched the word angel. With 2 dogs in his lap. God is so wonderful. I do kno...
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Sandbox Moments Life with our adult son with Angelman Syndrome: Through Scotty's Eyes
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Scotty has a Fisher Price camera that I promise you is indestructible! He has quickly turned into the paparazzi! Here is a sample of his work.oh course it doesn't include the 146 shots he took while I was in the shower screaming.NOOOOOOOOOOO! Just found this on his camera.Him taking a picture of me, while I was taking the picture above.funny guy♥. He somehow captured an ambulance going by? Something scary outside the gate. 9829;Ansel Adams in training♥. A Study in Feet 4/18/12. Is this thing on? That cam...
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Sandbox Moments Life with our adult son with Angelman Syndrome: July 2013
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Wednesday, July 24, 2013. Holy, Holy, Holy is He. Truly I say to you,. Unless you turn and. Become like children,. You will never enter the. His sweet Aunt Jo made him his. Very own vestments for his birthday,. And when he wears them. He is reverent.he is holy.he is saintly. As soon as we open his door in the morning (or the middle of the night) his first communication of the day is always to ask if we are going bye-bye? The second.is it a church day? This boy of ours is fully present in every part of th...
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Sandbox Moments Life with our adult son with Angelman Syndrome: November 2014
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Thursday, November 6, 2014. God, Me, and Angelman Syndrome. To live a life of uninterrupted happiness in God,. Looking on every circumstance as coming from God,. And thanking Him for it-. That is Christian perfection.". What if I were to say that I am thankful for Angelman Syndrome? I am submitting to the all that read this post today that I, Joanne Baston can truly and honestly and without hesitation praise God for Angelman Syndrome. Do I wish Scotty did not have Angelman Syndrome? Where we now stand,.
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Sandbox Moments Life with our adult son with Angelman Syndrome: A Really Big Moment in the Sandbox
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Monday, November 3, 2014. A Really Big Moment in the Sandbox. I am taking over my mom's blog this week to. Share some very cool news about my mommy. She started this little blog about me over a year ago and,. Trust me when I tell you that I give her plenty of material. I don't mean to brag but,. I think it is safe to say that my shenanigans are EPIC! When she started this blog her goals were simple:. 1 SPREAD AWARENESS FOR ANGELMAN SYNDROME. 2 Be an inspiration and a source of hope. About yours truly to.
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Sandbox Moments Life with our adult son with Angelman Syndrome: November 2013
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Thursday, November 14, 2013. If you believe, you will receive. Whatever you ask for in prayer. OH HOW WE BELIEVE! Last week we attempted the impossible. We took Scotty on an airplane. Something that has not been tried successfully in years. 14 to be exact. Trust me when I tell you this was a. Huge, gigantic, colossal, gargantuan, monumental big deal. Considering the last time we tried. Steve had to rent a car and drive him home. We decided to brave the hopefully friendly skies and buy. OH HOW WE BELIEVED!
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Sandbox Moments Life with our adult son with Angelman Syndrome: Photos
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White Helmet Award 1996. And we are blessed. Scotty and Sarah 2010. Scotty and Sarah 1995. Scotty and Stevi 1989. Scotty and Stevi 2010. Professional photographs courtesy of:. King of the World Age 17. Stevi's graduation Age 19. Our puppies Age 14. Special Olympics Age 10. Grandma's House Age 4. Our Front Yard Age 2. Ft Worth Zoo Age 1. Our Beautiful Little Guy 1987. February 3, 2012 at 6:45 PM. There has clearly been a mistake, you meant to make this blog about Stevi and I. Silly Mom!