shesnotcontagious.blogspot.com
She's not contagious...really: First day...
http://shesnotcontagious.blogspot.com/2014/04/first-day.html
Sunday, April 6, 2014. After a absolutely overwhelming day of travel we are here. Alana did an amazing job getting here, she really did. We lucked out with security and the Delta crews we had. Anyway, we are here and alive. Tomorrow at 7 am we have to be at the hospital.then the real fun begins. Alana has been complaining of a stomachache most of the day and has really not felt like eating besides some cereal for breakfast. I didn't. Subscribe to: Post Comments (Atom). AP for Eosinophilic Disorders.
shesnotcontagious.blogspot.com
She's not contagious...really: March 2010
http://shesnotcontagious.blogspot.com/2010_03_01_archive.html
Wednesday, March 17, 2010. So lets just copy and paste the beginning of the last post onto here. I was so tired yesterday that no, I didn't get a chance to post how the day went. Anyway- we go to do the HRCT which we hope is going to show us something and yep, it cannot be done b/c Alana cannot breath how they want her too so therefore it has yet again been rescheduled. AGHHHHH! I know when we get home and all the information from her HRCT, sleep study, scopes, etc. come back we may have some answers...
shesnotcontagious.blogspot.com
She's not contagious...really: Recovery
http://shesnotcontagious.blogspot.com/2014/04/recovery.html
Thursday, April 10, 2014. She's sleeping well and relaxing. They've given her as much pain medication as they can and she's finally able to sleep without crying. Subscribe to: Post Comments (Atom). AP for Eosinophilic Disorders. Childrens Interstitial Lung Disease (chILD). From the Banks of Jordan. Life with the ferrells. My crazy normal life. Rare Lung Disease Consortium. Tales from a NEHI momma. And so here we are. Coming to an end. Cardiology, pulmonary, ENT, GI testing. I dont want to go.
shesnotcontagious.blogspot.com
She's not contagious...really: Hotel
http://shesnotcontagious.blogspot.com/2014/04/hotel.html
Thursday, April 17, 2014. We are at the hotel now. I'll do a more detailed description of the day tomorrow but basically I called it and canceled the sleep study for tonight. I'll explain more tomorrow but it boiled down to her physical and mental state. Subscribe to: Post Comments (Atom). AP for Eosinophilic Disorders. Childrens Interstitial Lung Disease (chILD). From the Banks of Jordan. Life with the ferrells. My crazy normal life. Rare Lung Disease Consortium. Tales from a NEHI momma. Coming to an end.
shesnotcontagious.blogspot.com
She's not contagious...really: And so here we are...
http://shesnotcontagious.blogspot.com/2014/04/and-so-here-we-are.html
Sunday, April 27, 2014. And so here we are. I know it's been a week since we've been home. I'd like to say we were able to sit back and relax but that has not been the case. I didn't update for the week for a couple reasons, was busy, busy, busy, had to speak with my family first about some findings, and wanted to meet with her PCP to discuss the results and where we go from here. Now on to where we are at. The collagen in connective tissue helps tissues resist deformation. Collagen is an important c...
shesnotcontagious.blogspot.com
She's not contagious...really: Coming to an end...
http://shesnotcontagious.blogspot.com/2014/04/coming-to-end.html
Friday, April 18, 2014. Coming to an end. While th is trip is now coming to an end in a lot of ways we are just starting. There's so much information to process and so many new things to learn. This is what the last set of testing was showing. What it means escapes me at this point and apparently it's going to take a few weeks until we know. This went on for 7 hours almost and the doctor has to look over every section of it and find the patterns within it as well as the randomness of it. Rare Lung Diseas...
shesnotcontagious.blogspot.com
She's not contagious...really: Checking the feed...
http://shesnotcontagious.blogspot.com/2014/04/checking-feed.html
Wednesday, April 2, 2014. I am making sure that the "subscribe" button is working. Hopefully if you've signed up you're able to get notifications as to when I update. Let me know if it's not working in the comments! Subscribe to: Post Comments (Atom). AP for Eosinophilic Disorders. Childrens Interstitial Lung Disease (chILD). From the Banks of Jordan. Life with the ferrells. My crazy normal life. Rare Lung Disease Consortium. Tales from a NEHI momma. And so here we are. Coming to an end. I dont want to go.
shesnotcontagious.blogspot.com
She's not contagious...really: March 2014
http://shesnotcontagious.blogspot.com/2014_03_01_archive.html
Monday, March 31, 2014. With this being said, Saturday morning at 6am we will be on our way to Cincinnati Children's Hospital until at least the 20th. She is seeing EVERY specialty this time and having many, many, procedures, and surgeries. Some of the testing is extremely invasive and complicated but what we can learn from it might help prevent even more surgeries. Is her gut not getting them? Is the gut getting them but not able to do anything about it? Tuesday, March 11, 2014. Sunday, March 9, 2014.
shesnotcontagious.blogspot.com
She's not contagious...really: So very tired...
http://shesnotcontagious.blogspot.com/2014/04/so-very-tired.html
Thursday, April 10, 2014. I had tried to prepare TJ for what trips like this do to you. How you think you know what "tired" is. How you think you know what a bad day is or even a bad week. 13 hours a day at a hospital will make sure you do. TJ has been amazing. He's been patient and kind and gentle with not only Alana, but me. Subscribe to: Post Comments (Atom). AP for Eosinophilic Disorders. Childrens Interstitial Lung Disease (chILD). From the Banks of Jordan. Life with the ferrells. And so here we are.
shesnotcontagious.blogspot.com
She's not contagious...really: OR version 1
http://shesnotcontagious.blogspot.com/2014/04/or-version-1.html
Thursday, April 10, 2014. She's under now. Well she should be. Alana has to go under with MH precautions so that means I have to leave her before they put her under. I'm tying to hold onto the hope I am more traumatized by this then she is but by tht tears and looks from her I am struggling to make that true in my head. Surgery time is slated for 3 hours. There will be 4 physicians doing their part on her this morning. Prayers and positive thoughts with you all! April 10, 2014 at 6:45 AM. Coming to an end.
