emberriley.blogspot.com
Ember's Story: July 2010
http://emberriley.blogspot.com/2010_07_01_archive.html
Sunday, July 25, 2010. Ember didn't care, she was determined to hold her. She settled for touching her and saying "Awww Baby" a lot. I hate to leave this update on a sad note, so here's a cute thought. Ember's hair is now just long enough to put into pigtails! It is the most adorable thing I have seen yet! I will try to post pics soon. Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). To follow up on the first part of our journey, please go to www.caringbridge.com/visit/emberzstory. A blog fo...
martimmargaca.blogspot.com
Martim´s life with Alpha 1: Funny...
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Martim´s life with Alpha 1. Martim was playing with us today and told us " Baby Martim was in mum´s tummy and baby Marta was in dad´s tummy! Mummy, what colour is my pajama? It´s my "paferred" colour! You are so beautiful! Mummy, I want to see my block! Martim: Grandma, tomorrow I´m going to do a tattoo! Martim: I´m going to do a tattoo in my arm saying " Marta, the most beautiful! Mãe, que cor é o meu pijama? É a minha cor pafarida! Tu és tão linda! Mãe, e o pum? Sim, para que serve o pum? Ah não é não!
martimmargaca.blogspot.com
Martim´s life with Alpha 1: Liver Transplant
http://martimmargaca.blogspot.com/p/liver-transplant.html
Martim´s life with Alpha 1. Martim had a living donor Liver transplant, on the 24th of October of 2009, at the age of 2 years and 10 months, due to a chronic liver disease called Alpha 1 Antitrypsin Def. Martim´s father, Paulo, gave him a beautiful liver graft with 300gr from his own liver. It was a Gift of Life! Prof Nigel Heaton, Dr Hector Vilca- Melendez and team performed Martim and Paulo´s surgeries, at King´s College Hospital, UK. Subscribe to: Posts (Atom). There was an error in this gadget. Marti...
martimmargaca.blogspot.com
Martim´s life with Alpha 1
http://martimmargaca.blogspot.com/2015/02/blog-post.html
Martim´s life with Alpha 1. Subscribe to: Post Comments (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land. Two months before transplant. 2 meses antes do transplante. Gavin is an angel who was born like me. He will always be remembered in every milestones of my life. Martim´s eyes before transplant. Olhos do Martim antes do transplante. Em Português-clique na imagem. FEEDJIT Live Traffic Feed.
martimmargaca.blogspot.com
Martim´s life with Alpha 1: Martim´s story
http://martimmargaca.blogspot.com/p/martims-story.html
Martim´s life with Alpha 1. Martim is a 7 years old boy with Alpha 1 Antitrypsin PiZZ deficiency diagnosed at 3 months age. His hepatologist is Dr. Dino Hadzic at King´s College Hospital, in UK. He was with advanced chronic liver disease and on the 24th of October of 2009 Martim received 300gr of daddy´s liver.- click here to see the photos. A beautiful piece of liver. Martim´s transplant was performed by Prof. Nigel Heaton and Dr. Hector Vilca Melendez teams at King´s College Hospital.
lifeinlawschool.blogspot.com
Live, Love and Laugh: September 2008
http://lifeinlawschool.blogspot.com/2008_09_01_archive.html
Live, Love and Laugh. Tuesday, September 30, 2008. In case you want to show your support :). Http:/ www.giftforgavin.blogspot.com/. Thursday, September 25, 2008. Trip to the Apple Orchard. Wednesday, September 24, 2008. Baby Gavin was called Home. Baby Gavin with his family. I wanted to post a few thoughts. Some of you may remember Bethany (Brinton) Sprauge from my neighborhood I grew up in years ago. She has recently been struggling with the health of her baby boy Gavin. He has had a liver d...I have no...
emberriley.blogspot.com
Ember's Story: Home away from home....
http://emberriley.blogspot.com/2011/03/home-away-from-home.html
Monday, March 28, 2011. Home away from home. First of all, I know that I am such a bad Liver mommy as far as the updates go! I hadn't realized that the last update was in December! Ember has been doing relatively well since the last update. We did have an overnight stay a few months ago at Children's for about of pneumonia. Even though we hadn't been on the floor with her since she was 8 months old, it was still familiar and it was like we were visiting our long lost home. We are going to get her labs do...
emberriley.blogspot.com
Ember's Story: October 2010
http://emberriley.blogspot.com/2010_10_01_archive.html
Friday, October 22, 2010. Our lives have changed. As she grew she became healthier and more active. She never did crawl by the way. She just went straight to walking! And now, you just can't stop her! Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). To follow up on the first part of our journey, please go to www.caringbridge.com/visit/emberzstory. Over 100,000 people are on the Organ and Tissue donor waiting list. Who will you help? Our lives have changed. Fall and Winter and Spring, Part 2.
emberriley.blogspot.com
Ember's Story: March 2010
http://emberriley.blogspot.com/2010_03_01_archive.html
Thursday, March 11, 2010. Tuesday we took Ember to the allergist for allergy testing. In November she broke out in hives around her mouth after eating something. We had assumed that it was from the meringue off of a pie. So, we made the appointment for March and waited. My little monkey is going to be 2? Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). Ember was born May 30th, 2008 and was diagnosed with a rare liver disease, Biliary Atresia, at just 11 weeks old. She received her life s...
emberriley.blogspot.com
Ember's Story: January 2010
http://emberriley.blogspot.com/2010_01_01_archive.html
Friday, January 8, 2010. Ember has been getting along pretty well since Autumn has arrived. The novelty of having a new baby has not worn off yet. I am waiting for it to happen, but so far so good. She constantly wants to love on and hug Autumn. She even tries to help us burp her whenever she can. Though, sometimes she does try a little too hard! Aside from getting along with Autumn, she is getting into EVERYTHING! I should have learned long before now that I can't turn my back at all! Too cute as well!
