fragile-x.livejournal.com
new here.: fragile_x
http://fragile-x.livejournal.com/4970.html
San Jose, CA. Hi all. I am new here. My son is having genetic testing at Stanford in December and one of the things he is being tested for is Fragile X. I think the diagnosis would fit pretty well so for now I thought I would join this community and try to learn some more from those who have been on the front lines. He is in a special day class where he receives help for his learning problems and motor skills issues, and gets speech therapy. I hope to learn a lot from you all, and hear your thoughts on w...
fragile-x.livejournal.com
New Fragile X blog: fragile_x
http://fragile-x.livejournal.com/7889.html
New Fragile X blog. Discussing the disorder in general, and also my family's specific story. I'm looking for blogs to add to the blogroll, so if you know of any good ones, please let me know. Http:/ xdadxdad.wordpress.com/. Post a new comment. Anonymous comments are disabled in this journal. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. Post a new comment. Post a new comment. Its the Little things.
fragile-x.livejournal.com
Its the Little things.: fragile_x
http://fragile-x.livejournal.com/7304.html
Its the Little things. 1 My son sat through Wall-E all the way to the end. Did not get up, did not get upset, did not get overly excited (though he did get excited). He enjoyed the movie through its entirety. 2 I took my son to the gym yesterday to go in the kids club as we were leaving I asked him to get his backpack and he replied "Okay". This girl, about his age, looked and me and said "he can talk? 4 Turning on the TV to the channel he likes on his own. Post a new comment. Anonymous comments are disa...
social-services.livejournal.com
I start classes tomorrow!!! :-D WOOOO! Ha ha, just in case anyone…: social_services
http://social-services.livejournal.com/5263.html
I start classes tomorrow! Ha ha, just in case anyone cares! Post a new comment. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. Post a new comment. Post a new comment. US, NY: Carmen's Place has a new home! New, but Need Help in Cali. Follow us on Facebook. Follow us on Twitter. 1999 LiveJournal, Inc.
social-services.livejournal.com
hello! this is cross posted to a few other communities, i'm sorry if…: social_services
http://social-services.livejournal.com/5933.html
This is cross posted to a few other communities, i'm sorry if you have to see it more than once. =/. I don't have any kids, it's just me). I want to apply for food stamps and all that, and section 8 would be really good and would probably eliminate the need for welfare entirely, but considering that there is usually a waiting list and even then since it's just me i might not even qualify, so it might be a little unrealistic (i'm going to find out more about section 8 this week.). Post a new comment.
social-services.livejournal.com
New, but Need Help in Cali: social_services
http://social-services.livejournal.com/5654.html
New, but Need Help in Cali. Hi, I am a Community Employment Case Manager for a work program for adults with disabilities. I help them find jobs in the community to become more independent. I am also a mother of a child with Fragile X Syndrome with Autistic like tendencies. I just wanted to say hi before I throw out there the politics. Post a new comment. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post.
social-services.livejournal.com
Developmental Centers: social_services
http://social-services.livejournal.com/6353.html
For most that know me, they know that I find Developmental Centers for the Developmentally Disabled deplorable. Nothing but overglorified mental hospitals or prisons. Http:/ www.news10.net/news/local/st. This article supports my belief. Post a new comment. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. Post a new comment. Post a new comment. New Resource -My Social Work Network. Follow us on Twitter.
fragile-x.livejournal.com
a bit of a strange relationship to Fragile X: fragile_x
http://fragile-x.livejournal.com/4383.html
Best left unwritten (. A bit of a strange relationship to Fragile X. Post a new comment. Anonymous comments are disabled in this journal. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. Post a new comment. Post a new comment. Educating, not hating. Follow us on Facebook. Follow us on Twitter. 1999 LiveJournal, Inc.
fragile-x.livejournal.com
Everyone was shocked... except me: fragile_x
http://fragile-x.livejournal.com/9116.html
Everyone was shocked. except me. Is it wrong that I felt slightly relieved to get my 10 year old son's FXS diagnosis last week? It made me want to scream, "I know he's fine! But, I also knew on some levels he struggled and those struggles would just get harder over time. My only grief is that I know he'll have tough decisions to make about starting his own family. I feel lost in all the online data right now! Where do we go from here? Should our whole family have testing? Post a new comment.