LDIFME.ORG

dozydayz.co.uk

Links

http://dozydayz.co.uk/links.html

Let's do it for ME is a great website. With lots of helpful information about ME/FMS and drug trial funding. Take a look to shop and fundraise. Sleepydust is a great website. With lots of helpful information about ME/FMS. Gorilla in your house. This is a fantastic way to describe living with ME/CFS/FMS. This is good tool for stress relief. One of the biggest and best in the UK. The counselling directory are a professional body that have an interest in ME/CFS, you can find them with the link.

crazypurplemama.blogspot.com

Crazy Purple Mama: February 2015

http://crazypurplemama.blogspot.com/2015_02_01_archive.html

Just a blog about my life and family along with anything that comes along that interests me. Saturday, 21 February 2015. What it is like as a teen to suffer from a chronic illness? 8220;Systemic Exertion Intolerance Disease" or SEID for short (ironically spells DIES backwards! They have both provided their answers beneath each question to explain how it affects them. Introduce yourself. What illnesses do you have? How long have you had them? I have been diagnosed with M.E. (Myalgic Encephalomyeli...Richo...

blog.ldifme.org

Let's Do It for ME!: 01/03/14 - 01/04/14

http://blog.ldifme.org/2014_03_01_archive.html

Invest in ME March 2014 Newsletter. Invest in ME Newsletter - March 2014. 9th Invest in ME International ME Conference 2014. Biomedical Research Colloquium 4. Fundraising Update for Our UK Rituximab Clinical Trial. 92 in 92' Challenge for Invest in ME. 9th Invest in ME International ME Conference 2014. The 9th Invest in ME annual biomedical research conference in London on 30th May is attracting delegates from fifteen countries. Http:/ download.cell.com/images/edimages/podcasts/0227cell2014.m...In the po...

blog.ldifme.org

Let's Do It for ME!: 01/02/15 - 01/03/15

http://blog.ldifme.org/2015_02_01_archive.html

Great Start to 2015! Wow, thanks to everyone supporting, what a busy start to the new year, hard to believe that January's over so soon! This is a landmark year, as 2015 marks the 10th year of Invest in ME charity and the 10th of their renowned international biomedical research conferences (IIMEC10). You can read more in the first Invest in ME newsletter of 2015, published in pdf on 27th January - http:/ bit.ly/1wAnt7L. You can sign up to receive their free e-newsletters by email. Two more major awarenes...

blog.ldifme.org

Let's Do It for ME!: 01/12/13 - 01/01/14

http://blog.ldifme.org/2013_12_01_archive.html

Spreadshirt is German based and only deliver in Europe, you have to open a separate American account for overseas. Zazzle is also USA based so again you're hit with expensive postage. So I was delighted to discover Dizzyjam, set up by two Cardiff musicians. You can only have an account if you’re also a musician and have a band page to prove it, they have famous clients and then people like me LOL! T here’s also a Can You See ME range which shows a hooded character in silhouette. Profit from these items w...

blog.ldifme.org

Let's Do It for ME!: 01/01/14 - 01/02/14

http://blog.ldifme.org/2014_01_01_archive.html

If it's Tuesday - it must be Susie! Furry fundraiser for Invest in M.E! Since I began dog-sitting for Invest in ME, my calendar has become covered in regular pencilled-in sweet Susie-spots, marking the times this furry lass comes to fill the dog-shaped hole at my house. Susie the Whippet Cross has cuddled her special place into my heart, and from the reaction I get when I post photos and snippets about her online, into the hearts of her many other “spoonie” fans, too! Now, as she's becoming an old lady, ...

blog.ldifme.org

Let's Do It for ME!: 01/07/14 - 01/08/14

http://blog.ldifme.org/2014_07_01_archive.html

Good Things Come in 3s - We're 3 Today! Good things come in threes! It's been three years since three house/bed-bound ME sufferers launched Let's do it for ME to highlight and support the work of Invest in ME, crowdfund vital research into the disease and help the charity progress its plans to establish the first centre of excellence for ME in the UK. Lots of good things have happened in the last three years thanks to your support. Funding of the foundation gut research project and a PhD studentship at U...

blog.ldifme.org

Let's Do It for ME!: 01/11/14 - 01/12/14

http://blog.ldifme.org/2014_11_01_archive.html

Twenty Years On . I’m afraid I’m too poorly to write (type) much at the moment, but my second video (you HAVE seen the first, I trust? Says it all . Twenty Years On from contracting ME; in my case, either caused by or triggered by the MMR jab on the 21st November 1994, when I was just eleven years old. (This is being published on the 22nd November, owing to a few *slight* technicalities and a LOT of megabyte file-size errors . don't ask .). The Caged Bird: ME Awareness:. Twenty Years On . All my love,.

johndarvallblog.com

What M.E? An update | Not Mid Morning Matters

https://johndarvallblog.com/2015/07/16/what-m-e-an-update

Not Mid Morning Matters. JD in the Morning, off air…. Since Naomi and her family shared her story and her video together with the publishing of my blog on ME I have been astounded by the response. And shocked. And heartbroken. I have also learned that a very good friend of mine also lives with a mild form of ME and I’ve known them for 10 years. That is two people close to me who have ME. Coincidence or a painful reality? Why didn’t I know? July 16, 2015. Not just JD in the morning. Liked by 4 people.

investinme.org

Invest in ME - Press Release February 2015

http://www.investinme.org/IIME-Newslet-1502-01.htm

Invest in ME (Research) Press Release. 1/2 Million Reasons for Progress with ME. INVEST in ME PRESS RELEASE:. Agents for Change - Million Reasons for Progress with ME. UK Charity Invest in ME (nr 114035) today announces that its biomedical research fund for ME has now passed 1/2 MILLION raised over the last four years by ME patients, their families and friends. 2015 will see Invest in ME enter its tenth year as a charity a year which brings together our tenth international biomedical research conference,...