mastocytosis.eu mastocytosis.eu

mastocytosis.eu

European Mastocytosis Support Network

The purpose of this website is to offer patients from different countries a common platform to seek and share information about mastocytosis. The aim is to provide a general introduction about the disease as well as links to various European patient support websites to facilitate human networking. Please click on the flag of your country where you will find additional mastocytosis information in the language of your country and a link to Mastocytosis Support within your country. Veuillez cliquer sur le d...

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The purpose of this website is to offer patients from different countries a common platform to seek and share information about mastocytosis. The aim is to provide a general introduction about the disease as well as links to various European patient support websites to facilitate human networking. Please click on the flag of your country where you will find additional mastocytosis information in the language of your country and a link to Mastocytosis Support within your country. Veuillez cliquer sur le d...
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European Mastocytosis Support Network | mastocytosis.eu Reviews

https://mastocytosis.eu

The purpose of this website is to offer patients from different countries a common platform to seek and share information about mastocytosis. The aim is to provide a general introduction about the disease as well as links to various European patient support websites to facilitate human networking. Please click on the flag of your country where you will find additional mastocytosis information in the language of your country and a link to Mastocytosis Support within your country. Veuillez cliquer sur le d...

INTERNAL PAGES

mastocytosis.eu mastocytosis.eu
1

European Mastocytosis Support Network | Norway

http://www.mastocytosis.eu/countries/norway.php

Nettside: www.mastocytose.no. Hensikten med dette nettstedet er å gi pasienter fra forskjellige land et felles utgangspunkt for å finne og dele informasjon om mastocytose. Målet er å gi en generell oversikt over sykdommen og samle koblinger til nettsider til europeiske pasientgrupper for å gjøre det lettere å bygge nettverk. WHO Verdens helseorganisasjon klassifisering av mastocytose. Maculopapular CM (tidligere kalt Urtikaria pigmentosa, UP) (MPCM). Aggressiv systemisk mastocytose (ASM). Er en ren hudsy...

2

European Mastocytosis Support Network | Netherlands

http://www.mastocytosis.eu/countries/netherlands.php

Web site: http:/ www.mastocytose.nl/. Deze website biedt patiënten van verschillende landen een gezamenlijk platform om informatie over mastocytose te zoeken en met elkaar te delen. Het doel is om een algemene introductie te geven over de ziekte en om links te bieden naar verschillende Europese patiëntenverenigingen voor het ondersteunen van onderlinge contacten en informatie-uitwisseling. Maculopapular cutane mastocytose (MPCM) (ook genoemd Urticaria Pigmentosa (UP). Diffuse cutane mastocytose (DCM).

3

European Mastocytosis Support Network | United Kingdom

http://www.mastocytosis.eu/countries/uk.php

UK Mastocytosis Support Group. Web site: http:/ www.ukmasto.co.uk/. The purpose of this website is to offer patients from different countries a common platform to seek and share information about mastocytosis. The aim is to provide a general introduction about the disease as well as links to various European patient support websites to facilitate human networking. Maculopapular cutaneous mastocytosis (MPCM) (formerly: Urticaria Pigmentosa(UP). Diffuse cutaneous mastocytosis (DCM). In cutaneous mastocytos...

4

European Mastocytosis Support Network | Austria

http://www.mastocytosis.eu/countries/austria.php

Der Zweck dieser Webseite ist, Patienten aus unterschiedlichen Ländern eine gemeinsame Plattform anzubieten, um die Möglichkeit zu schaffen, Informationen über Mastozytose zu teilen. Das Ziel ist, eine allgemeine Einführung über diese Erkrankung sowie Links zu unterschiedlichen europäischen Selbsthilfegruppen anzubieten, um ein Netzwerk zu bilden. WHO Klassifikation der Mastozytose. Maculopalulare kutane Mastozytose (MPCM) (früher: Urtikaria pigmentosa (UP). Diffuse kutane Mastozytose (CDM). Hautmastozyt...

5

European Mastocytosis Support Network | Belgium

http://www.mastocytosis.eu/countries/belgium.php

Dutch Translation (see French Translation. Deze website biedt patiënten van verschillende landen een gezamenlijk platform om informatie over mastocytose te zoeken en met elkaar te delen. Het doel is om een algemene introductie te geven over de ziekte en om links te bieden naar verschillende Europese patiëntenverenigingen voor het ondersteunen van onderlinge contacten en informatie-uitwisseling. Maculopapular cutane mastocytose (MPCM) (ook genoemd Urticaria Pigmentosa (UP). Diffuse cutane mastocytose (DCM).

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TOTAL PAGES IN THIS WEBSITE

19

LINKS TO THIS WEBSITE

asimas.it asimas.it

Dove siamo

http://www.asimas.it/home/dovesiamo.htm

Associazione Italiana Mastocitosi ONLUS. Stiamo individuando un referente regionale che può essere contattato direttamente per ottenere informazioni specifiche sui centri di assistenza, attività e manifestazioni di ogni singola regione italiana. Nel caso che ad oggi nella tua regione non sia ancora presente il nominativo di un coordinatore, puoi contattare direttamente la segreteria oppure il referente di una regione vicina alla tua.

meandmymastcells.com meandmymastcells.com

Websites | meandmymastcells

http://meandmymastcells.com/category/websites

Rest Of The World. Q & A. On May 11, 2013 in Resources. Official Societies And Organisations. The Mastocytosis Society is a 501(c)3 nonprofit organization dedicated to supporting patients affected by Mastocytosis or Mast Cell Activation Disorders as well as their families, caregivers, and physicians through research, education, and advocacy. We are the leading organization in Canada, committed to helping people with Mastocytosis and related mast cell disorders by:-. The UK Mastocytosis Support Group.

asimas.it asimas.it

Diagnosi

http://www.asimas.it/home/Diagnosi.htm

Associazione Italiana Mastocitosi ONLUS. Per poter accedere a qualsiasi trattamento è necessario avere una diagnosi. Proprio la rarità delle forme rende il percorso diagnostico più difficile e lungo. Il tempo medio per avere una diagnosi, infatti, è di 3,5 anni. La scarsità di percorsi assistenziali. Andamento cronico e invalidante. Nel nostro Paese le stime variano da un minimo di 300mila fino a un milione di persone affette, a seconda delle fonti (stime regionali e nazionali) e delle definizioni di mal...

asimas.it asimas.it

Ambulatori

http://www.asimas.it/home/ambulatori.htm

Associazione Italiana Mastocitosi ONLUS. Ambulatori and Centri Specializzati. In pagina riportiamo i centri che aderiscono al protocollo RIMA. E dei quali abbiamo avuto segnalazioni positive da parte dei malati che li hanno frequentati e sono in cura presso di loro. Naturalmente in Italia esistono altri ambulatori che trattano la mastocitosi. Se desiderano essere inseriti in questa pagina ne facciano richiesta tramite un loro paziente nostro associato. Azienda Ospedali Riuniti di Ancona. Dati obbligatori...

asimas.it asimas.it

Malattie rare

http://www.asimas.it/home/malattierare.htm

Associazione Italiana Mastocitosi ONLUS. Non esiste dal punto di vista medico, una precisa definizione di malattia rara. Infatti le malattie rare non costituiscono un gruppo nosologico ben determinato e classificabile. Dicendo “malattie rare” si intendono 5000 o 6000 malattie estremamente diverse tra loro. In questo gruppo eterogeneo vi sono: malattie genetiche, malattie neurologiche, malattie metaboliche, malformazioni, malattie infettive, parassitosi, tumori, ecc. 8230; e per l’Europa. La malattia rara...

lebenmitkrebs-aachen.de lebenmitkrebs-aachen.de

Hilfe zur Selbsthilfe | Leben mit Krebs - Information, Beratung, Unterstützung

http://www.lebenmitkrebs-aachen.de/de/selbsthilfe

Für viele verschiedene Krebserkrankungen gibt es Selbsthilfegruppen. Patienten und Patientinnen können dort andere Menschen in einer ähnlichen Situation erleben und sich durch wichtige Tipps, Informationen und gegenseitige Ermutigung unterstützen. Kontaktstelle für alle Selbsthilfegruppen in Aachen ist die Krebsberatungsstelle. Im folgenden finden Sie eine Auflistung aller Krebs-Selbsthilfegruppen in Aachen und Umgebung mit entsprechendem Ansprechpartner:. Bernd Horres Tel. 0177 6320675. Selbsthilfegrupp...

asimas.it asimas.it

News

http://www.asimas.it/home/news.htm

Associazione Italiana Mastocitosi ONLUS. Una lettera di un bambino malato. Presentato su orpha.net uno studio olandese. Speciale III convengo ASIMAS. Il programma della convegno ASIMAS (e le nuove felpe). I nuovi LEA inviati alle regioni: MASTOCITOSI SISTEMICA CODICE RD0081. Speciale III convengo ASIMAS. Il menù della cena sociale. Speciale III convengo ASIMAS. Elenco alberghi - posteggi. Slide degli interventi sulla mastocitosi della Sesta Giornata Fiorentina - malattie mieloproliferative croniche.

asimas.it asimas.it

Donazioni

http://www.asimas.it/home/donazioni.htm

Associazione Italiana Mastocitosi ONLUS. DONAZIONI: la ASIMAS è una associazione ONLUS. Una associazione ONLUS ha soprattutto questi due fondamentali vantaggi:. A) poter avere un beneficio fiscale per chi fa una donazione. Per UNA PERSONA FISICA. Per UNA SOCIETA’ (SRL, SPA). Nell’ anno corrente versa una somma di denaro alla associazione può usufruire di detrazioni di imposta. 19% di max 2.065,83 €) oppure, a sua scelta, di deduzione dal reddito (10% del reddito fino a 70.000 €). La scelta di destinazion...

asimas.it asimas.it

Sezione pediatrica

http://www.asimas.it/home/faq.htm

Associazione Italiana Mastocitosi ONLUS. FAQ - Domande frequenti. In questa sezione sono riportate le domande che più frequentemente pongono i malati di mastocitosi non appena apprendono la diagnosi della loro malattia. Questo elenco non è sicuramente completo: per ogni altra informazione potete contattarci direttamente al numero 338.6305747. Quando può essere sospettata la diagnosi di mastocitosi? Cosa si può fare quando si sospetta una mastocitosi? Come si conferma la diagnosi di mastocitosi? Esistono ...

asimas.it asimas.it

Associarsi

http://www.asimas.it/home/associarsi.htm

Associazione Italiana Mastocitosi ONLUS. Caro amico/collega di mastocitosi, grazie per aver visitato il nostro sito. La nostra Associazione è nata nel febbraio del 2008, in seno alla Rima, Rete Italiana Mastocitosi presieduta dal Prof. Massimo Triggiani, con l’intenzione di tutelare i soggetti affetti da questa patologia così poco conosciuta e studiata. La ASIMAS non vuole e non può dare risposte mediche, e per questo rimandiamo al sito RIMA www.mastocitosi.it. Queste sono le quote:. Versamento iscrizion...

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TOTAL LINKS TO THIS WEBSITE

31

OTHER SITES

mastocytose.net mastocytose.net

Mastocytose - Mastocytosecentret Odense Universitetshospital

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Information til patienter, pårørende og fagpersoner. Mastocytosecentret OUH - MastOUH - består af Hudafdeling I og Allergicentret, Hæmatologisk afdeling, Patologisk afdeling, Røntgenafdelingen, Endokrinologisk afdeling, Gastroenterologisk afdeling og Børneafdelingen på Odense Universitetshospital. Centret er optaget som Center of Excellence under det europæiske mastocytosenetværk ECNM. Overlæge, ph.d Hanne Vestergaard.

mastocytose.nl mastocytose.nl

Mastocytose patienten vereniging

2013 - 2018 webdesign by Equipware. Hosting by Manetti IT. Vereniging Nederland, opgericht op 15 maart 2002, is een patiëntenvereniging die zich ten doel stelt:. Huid en organen aangedaan. Abnormale mestcellen in beenmerg en organen. Bruine vlekken op de huid. Beperkt tot de huid. Het geven van voorlichting. Het met elkaar in contact brengen van lotgenoten. Het opkomen voor de belangen van patiënten. Het werven van leden. En sponsoren voor activiteiten en onderzoek. Patiëntendag 7 april 2018.

mastocytose.no mastocytose.no

Mastocytoseforeningen | Informasjon til pasienter, pårørende og helsepersonell om en sjelden sykdom

Informasjon til pasienter, pårørende og helsepersonell om en sjelden sykdom. Meld deg inn i foreningen! Mastcellene – hva gjør de? Kirurgi, narkose, tannbehandling. Vi er en norsk pasientforening for mastcellesykdommer. Dette er en kort introduksjon til hjelp for pasienter, pårørende og helsepersonell som ikke kjenner tilstanden, og er ment å være et hjelpemiddel for å forstå, behandle og leve med sykdommen. Mastocytose hva er det? Diagnosen kan være vanskelig å stille, og det kan ta flere år før det erk...

mastocytosis.blogspot.com mastocytosis.blogspot.com

Living with Mastocytosis

A Diary About Living with Mastocytosis. Personal Stories, Research Links and Data. Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com. Tuesday, January 29, 2008. I have not died, I only have dial-up connection to the internet just now. Healthwise, I am about the same as I have been since I've been receiving treatment by the oncologist and he has me on the mastocytosis protocol. Altogether, I take about 14 pills a day. Unless I take more. Atavan (2 or more). My int...

mastocytosis.ca mastocytosis.ca

Home

Vision, Mission, Values. Key Areas of Focus. Mast Cell Activation Syndrome. Describing the disease to others. Diagnosis and Medical Testing. Preparing for Doctor's Visit. I'm Diagnosed: Now what? Symptom Management and Triggers. Mastocytosis Society Canada is now a registered charity. Learn more about mast cell disease. A diagnosis or even a suspicion of one can often be overwhelming. Learn more about mast cell disease and begin taking an active role in your health care.

mastocytosis.eu mastocytosis.eu

European Mastocytosis Support Network

The purpose of this website is to offer patients from different countries a common platform to seek and share information about mastocytosis. The aim is to provide a general introduction about the disease as well as links to various European patient support websites to facilitate human networking. Please click on the flag of your country where you will find additional mastocytosis information in the language of your country and a link to Mastocytosis Support within your country. Veuillez cliquer sur le d...

mastocytosis.info mastocytosis.info

Mastocytose - Mastocytosecentret Odense Universitetshospital

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Information til patienter, pårørende og fagpersoner. Mastocytosecentret OUH - MastOUH - består af Hudafdeling I og Allergicentret, Hæmatologisk afdeling, Patologisk afdeling, Røntgenafdelingen, Endokrinologisk afdeling, Gastroenterologisk afdeling og Børneafdelingen på Odense Universitetshospital. Centret er optaget som Center of Excellence under det europæiske mastocytosenetværk ECNM. Overlæge, ph.d Hanne Vestergaard.

mastocytosis.livejournal.com mastocytosis.livejournal.com

Mastocytosis support and information

Mastocytosis support and information. Mastocytosis support and information. Dec 5th, 2007 09:56 pm. Mastocytosis support and information. I ask because , I have various things that go on with me and I was wondering if thats normal for just the UP or if my symptoms could be something more(systemic). Thank you very much for you time. any information you can give me will be greatly apperciated. Oct 11th, 2007 09:36 am. Mastocytosis support and information. Aug 17th, 2007 04:29 pm. I look forward to the day ...

mastocytosis.org mastocytosis.org

Mastocytosis.org

Mastocytosis.org is For Sale for $419.30!

mastocytosisintexas.blogspot.com mastocytosisintexas.blogspot.com

mastocytosisintexas

Saturday, June 27, 2009. This disease is so unpredictable. One minute I can be fine, and the next I'm in the middle of a full blown anaphylactic attack. I know some of my triggers, but many still remain a mystery to me. Sometimes I react to them, sometimes I don't. Here are the triggers that I am aware of:. Heat- I live in South Texas where the temperature is around 105 all summer long. Humidity- a killer for me. Melon- cantaloupe and honey dew. Loud Bass sound- I know, it's weird. Friday, June 26, 2009.

mastodeko.com mastodeko.com

Masto Raumausstatter, Gardinen, Sonnenschutz, Raumausstattung in Essen

MASTO DEKORATIONEN GmbH and Co. KG. Erhält als einer der bundesweit ersten Innungsbetriebe des. Raumausstatter-Handwerks das begehrte qih-Qualitätssiegel. Über uns / Firmenvideo. Exklusive textile Raumausstattung für private und gewerbliche Kunden. Mit moderner Raumausstattung schöner wohnen und eleganter arbeiten. Besuchen Sie uns auf der Messe. 30 Techno - Classica Essen. Masto DEKORATIONEN - Raumausstattung aus Essen. Unsere Leistungen in alphabetischer Reihenfolge. Bühnenvorhänge sind überall: Als Ku...