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Home - Miss Allie B - Fundraising for Costello Syndrome Family Network

We are the immediate and extended family of Miss Allie B. Miss Allie B. came into our lives and has proven that being Extraordinary is not an option….it is our job on this earth. Allie B. has Costello Syndrome and she is Extraordinary. We are inspired by her Extraordinary tenacity every day. The cause and our goal. Costello Syndrome is very rare ( 350 diagnosed children) and it is imperative that families have a venue to stay connected and that is our cause in a nutshell. How can you help? Allie was born...

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We are the immediate and extended family of Miss Allie B. Miss Allie B. came into our lives and has proven that being Extraordinary is not an option….it is our job on this earth. Allie B. has Costello Syndrome and she is Extraordinary. We are inspired by her Extraordinary tenacity every day. The cause and our goal. Costello Syndrome is very rare ( 350 diagnosed children) and it is imperative that families have a venue to stay connected and that is our cause in a nutshell. How can you help? Allie was born...
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Home - Miss Allie B - Fundraising for Costello Syndrome Family Network | missallieb.com Reviews

https://missallieb.com

We are the immediate and extended family of Miss Allie B. Miss Allie B. came into our lives and has proven that being Extraordinary is not an option….it is our job on this earth. Allie B. has Costello Syndrome and she is Extraordinary. We are inspired by her Extraordinary tenacity every day. The cause and our goal. Costello Syndrome is very rare ( 350 diagnosed children) and it is imperative that families have a venue to stay connected and that is our cause in a nutshell. How can you help? Allie was born...

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About Allie - Miss Allie B - Fundraising for Costello Syndrome Family Network

http://missallieb.com/about-allie

2015 Update from Allie:. I currently attend Webster Elementary 4 Year old Pre-School 5 days a week. I really love my teachers, assistant and classmates. Everyone is so good to me and I often come home with several pictures my classmates have drawn for me. I go to a place called ChildServe 2 days a week for Physical, Occupational and Speech therapy. I get to communicate using buttons, play fun games, make cool sounds and much more. I have grown TALLER and putting on some weight! I have several words to us...

2

Costello Syndrome - Miss Allie B - Fundraising for Costello Syndrome Family Network

http://missallieb.com/costello-syndrome

Costello Syndrome is present from birth. There is no cure. Costello Syndrome results neurocognitive delays and impaired learning. Many children struggle to walk, talk, and feed themselves. Although infants with Costello syndrome may be large at birth, they have difficulty feeding and grow more slowly than other infants. Many people with Costello syndrome have GERD. Problems with the heart are common. Most people with CS will have skeletal and orthopedic problems. In 2005 a group of Japanese researchers d...

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Free Downloads - Miss Allie B - Fundraising for Costello Syndrome Family Network

http://missallieb.com/free-downloads

These downloadable notecards are easy to print on your own computer or to send to a local printer. For optimal quality: Print in color on card stock and cut into quarters. 8220;Happy Birthday” Note. 8220;Congratulations” Note. 8220;You’re the Best” Note. 8220;Thinking of You” Note. 8220;Thank You” Note. Thank you for stopping by. We appreciate your time and your money! If you have any questions about the campaign, contact us. 2012 Miss Allie B.

4

How to Give - Miss Allie B - Fundraising for Costello Syndrome Family Network

http://missallieb.com/how-to-give

Our family is very grateful for your contributions in any amount — any contribution is extraordinary! Make a donation by check or become a sponsor. Donate by Credit Card. Easily pay online by any major credit card via First Giving for a small fee. Donate via United Way. This is a great way to give if you work for a company who supports United Way. You will need CSFN EIN number: 02-0622876 & the address: PO Box 516 Woodinville, WA 98072-0516. If you have any questions about the campaign, contact us.

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Home - Miss Allie B - Fundraising for Costello Syndrome Family Network

We are the immediate and extended family of Miss Allie B. Miss Allie B. came into our lives and has proven that being Extraordinary is not an option….it is our job on this earth. Allie B. has Costello Syndrome and she is Extraordinary. We are inspired by her Extraordinary tenacity every day. The cause and our goal. Costello Syndrome is very rare ( 350 diagnosed children) and it is imperative that families have a venue to stay connected and that is our cause in a nutshell. How can you help? Allie was born...

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