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MUENKESYNDROME.NHGRI.NIH.GOV

Clinical Trials Survey System

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome (FGFR3-Related Craniosynostosis). We have ongoing studies at the National Institutes of Health (NIH) that focus on various aspects of Muenke syndrome, and we hope to improve our understanding of hearing, cognitive function, and development in people with Muenke syndrome. The application and fill out questionnaires, or.

http://muenkesyndrome.nhgri.nih.gov/

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Clinical Trials Survey System | muenkesyndrome.nhgri.nih.gov Reviews
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Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome (FGFR3-Related Craniosynostosis). We have ongoing studies at the National Institutes of Health (NIH) that focus on various aspects of Muenke syndrome, and we hope to improve our understanding of hearing, cognitive function, and development in people with Muenke syndrome. The application and fill out questionnaires, or.
<META>
KEYWORDS
1 form for participation
2 how it works
3 medical records request
4 to get started
5 dr maximilian muenke
6 dr paul kruszka
7 mamuenke@mail nih gov
8 kruszkaps@mail nih gov
9 guillensacotomj@mail nih gov
10 accessibility
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form for participation,how it works,medical records request,to get started,dr maximilian muenke,dr paul kruszka,mamuenke@mail nih gov,kruszkaps@mail nih gov,guillensacotomj@mail nih gov,accessibility,disclaimer,foia,facebook,twitter,pinterest,youtube
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Clinical Trials Survey System | muenkesyndrome.nhgri.nih.gov Reviews

https://muenkesyndrome.nhgri.nih.gov

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome (FGFR3-Related Craniosynostosis). We have ongoing studies at the National Institutes of Health (NIH) that focus on various aspects of Muenke syndrome, and we hope to improve our understanding of hearing, cognitive function, and development in people with Muenke syndrome. The application and fill out questionnaires, or.

INTERNAL PAGES

muenkesyndrome.nhgri.nih.gov muenkesyndrome.nhgri.nih.gov
1

Clinical Trials Survey System

https://muenkesyndrome.nhgri.nih.gov/participation.html

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? How do I participate? In order to participate, you simply would do two things:. Complete the form for participation (click HERE 29KB. To access the form) and. Complete a one-time questionnaire via this site. You may complete this questionnaire via 3 methods:. Directly through this website. Please contact Dr. Paul Kruszka at (301) 402-9654 or kruszkaps@mail.nih.gov. Be sure to include your mailing address ...

2

Clinical Trials Survey System

https://muenkesyndrome.nhgri.nih.gov/form.html

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? Please complete the attached form and send it to us via email or domestic mail. You may also contact us by phone or email to enroll. Your contact information will be kept confidential and private. This information will only be accessible by those directly involved in this study. 2011 National Institutes of Health. Health research throughout the lifespan.

3

Clinical Trials Survey System

https://muenkesyndrome.nhgri.nih.gov/medical.html

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? For the purpose of this study, we would ask that you obtain medical records, any developmental testing, cognitive testing, school, and IQ testing and send them to us at the below address:. National Human Genome Research Institute. National Institutes of Health. Building 35, Room 1B 209. 35 Convent Dr, MSC 3717. Bethesda, MD 20892-3717. 2011 National Institutes of Health.

4

Clinical Trials Survey System

https://muenkesyndrome.nhgri.nih.gov/about.html

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? Who runs this study? This study is a joint project of the NHGRI (National Human Genome Research Institute), NIDCD (National Institute on Deafness and other Communication Disorders) at the National Institutes of Health in Bethesda, Maryland, USA. The Principal Investigator of this study is Dr. Maximilian Muenke, Chief, Medical Genetics Branch, NHGRI. What is this study about? Your involvement in this study...

5

Clinical Trials Survey System

https://muenkesyndrome.nhgri.nih.gov/faq.html

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? I have multiple family members with Muenke syndrome, can we all participate? Family members that have had genetic testing are welcome. We only need a copy of their test results (positive or ngeative). How do we all participate? Can I fill out the form myself? Is there a method that is preferred for me to fill out the survey? I cannot fill out the entire survey in one sitting, can I come back? That is OK -...

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Clinical Trials Survey System

Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome. How do I participate? Cognitive Function, Development, and Hearing in Patients with Muenke Syndrome (FGFR3-Related Craniosynostosis). We have ongoing studies at the National Institutes of Health (NIH) that focus on various aspects of Muenke syndrome, and we hope to improve our understanding of hearing, cognitive function, and development in people with Muenke syndrome. The application and fill out questionnaires, or.

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