OURANGELCHARLIE.BLOGSPOT.COM

Charlie's story

For our history, start here. For our history start here. Monday, March 19, 2012. With the announcement of my new pregnancy, and all the chaos that naturally ensues, I'm afraid I haven't been able to update everyone as much as I would like. I believe that's all for now. I hope that I will have a lot more exciting news to post in the next few months! Wednesday, January 18, 2012. It's been a long time since I've written anything! The holidays were great. Charlie was perfect on the plane ride to Florida ...

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Charlie's story | ourangelcharlie.blogspot.com Reviews

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For our history, start here. For our history start here. Monday, March 19, 2012. With the announcement of my new pregnancy, and all the chaos that naturally ensues, I'm afraid I haven't been able to update everyone as much as I would like. I believe that's all for now. I hope that I will have a lot more exciting news to post in the next few months! Wednesday, January 18, 2012. It's been a long time since I've written anything! The holidays were great. Charlie was perfect on the plane ride to Florida ...

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Charlie's story | ourangelcharlie.blogspot.com Reviews

https://ourangelcharlie.blogspot.com

For our history, start here. For our history start here. Monday, March 19, 2012. With the announcement of my new pregnancy, and all the chaos that naturally ensues, I'm afraid I haven't been able to update everyone as much as I would like. I believe that's all for now. I hope that I will have a lot more exciting news to post in the next few months! Wednesday, January 18, 2012. It's been a long time since I've written anything! The holidays were great. Charlie was perfect on the plane ride to Florida ...

INTERNAL PAGES

ourangelcharlie.blogspot.com

1

Charlie's story: December 2011

http://ourangelcharlie.blogspot.com/2011_12_01_archive.html

For our history, start here. For our history start here. Friday, December 2, 2011. I am just now beginning to register the amount of love and support I've received these past few days. I keep reading these insightful, thoughtful responses to my post over and over again, unable to believe how lucky I am to have such wonderful friends and family. So today I am grateful. Grateful for the people around me, and grateful that I have such an amazing little boy who has allowed me to experience this. I will be in...

2

Charlie's story: November 2011

http://ourangelcharlie.blogspot.com/2011_11_01_archive.html

For our history, start here. For our history start here. Wednesday, November 30, 2011. This blog marks a lot of firsts for me. My first time blogging. My first time sharing my thoughts with a large audience. My first time revealing that my son has Angelman's syndrome. I created this site so that friends and family can learn about Charlie's syndrome, and can stay updated as we embark on this long journey. Developmental delay, functionally severe. Movement or balance disorder, usually ataxia. This was my f...

3

Charlie's story: Holidays and beyond

http://ourangelcharlie.blogspot.com/2012/01/holidays-and-beyond.html

For our history, start here. For our history start here. Wednesday, January 18, 2012. It's been a long time since I've written anything! Our computer came down with a nasty virus, but it's back up and running, and so am I! We were scheduled to have an overnight EEG last week. Charlie would have been checked into the hospital on Tuesday, and released Thursday. It would also have cost us another chunk of money that we don't really have! Seizures occur in about 80% of all Angelman's patients. On a more posi...

4

Charlie's story: January 2012

http://ourangelcharlie.blogspot.com/2012_01_01_archive.html

For our history, start here. For our history start here. Wednesday, January 18, 2012. It's been a long time since I've written anything! Our computer came down with a nasty virus, but it's back up and running, and so am I! We were scheduled to have an overnight EEG last week. Charlie would have been checked into the hospital on Tuesday, and released Thursday. It would also have cost us another chunk of money that we don't really have! Seizures occur in about 80% of all Angelman's patients. On a more posi...

5

Charlie's story: History and diagnosis

http://ourangelcharlie.blogspot.com/2011/11/history-and-diagnosis.html

For our history, start here. For our history start here. Wednesday, November 30, 2011. This blog marks a lot of firsts for me. My first time blogging. My first time sharing my thoughts with a large audience. My first time revealing that my son has Angelman's syndrome. I created this site so that friends and family can learn about Charlie's syndrome, and can stay updated as we embark on this long journey. Developmental delay, functionally severe. Movement or balance disorder, usually ataxia. This was my f...

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sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: August 2013

http://sandboxmoments.blogspot.com/2013_08_01_archive.html

Wednesday, August 14, 2013. I've Had the Time of My Life. Today is one of those days that I want to remember. To many just another ordinary Wednesday. In the middle of August,. But to me it will forever be a treasured memory. That I will tuck away for a rainy day. A day we almost missed because our day began at 4am. And I was soooooo tired.too tired to wrestle the beast,. But a 10 minute nap and a ridiculous amount of coffee,. And I was ready to go! Our movie theater offered a. Has seen hundreds of times.

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: May 2014

http://sandboxmoments.blogspot.com/2014_05_01_archive.html

Wednesday, May 14, 2014. Don't Put Toothpaste on Your. Recently a list circulated through the Facebook. 25 Ways You Know You are a Mom. I thought I would put my own twist. On this theme.Angelman style. This child of ours, often referred to as an "angel,". Can be anything but angelic. The term "angel" stems from. Harry Angelman, the British pediatrician who identified. It is not a commentary on their. At least not Scotty's). You know You Are the. Mom of an "Angel" Man/Woman If. With your non-verbal child.

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: March 2014

http://sandboxmoments.blogspot.com/2014_03_01_archive.html

Wednesday, March 5, 2014. The Lenten season is upon us once again. As Catholics Lent is a special time of prayer,. Penance, sacrifice and. Good works in preparation. Of the celebration of Easter. For many, including me, this often translates. Into giving up something you love, a sacrifice. I have done it all. In all my previous attempts I have failed. The coffee was a tragic error in judgement. In my extremely sleep deprived life. In truth I almost killed a man. In a last startling moment of lucidity I.

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: June 2013

http://sandboxmoments.blogspot.com/2013_06_01_archive.html

Wednesday, June 12, 2013. This Little Light of Mine. Let your light shine before men,. That they may see your good deeds. And praise your Father in heaven. God shouts at me.a lot.and He is so incredibly loud. Perhaps it is necessary to vociferate so loudly in order to be heard over the noise and chaos that is the soundtrack of our life. I share this mainly as a preliminary explanation for this week's post. Today I google image searched the word angel. With 2 dogs in his lap. God is so wonderful. I do kno...

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: Through Scotty's Eyes

http://sandboxmoments.blogspot.com/p/through-scottys-eyes.html

Scotty has a Fisher Price camera that I promise you is indestructible! He has quickly turned into the paparazzi! Here is a sample of his work.oh course it doesn't include the 146 shots he took while I was in the shower screaming.NOOOOOOOOOOO! Just found this on his camera.Him taking a picture of me, while I was taking the picture above.funny guy♥. He somehow captured an ambulance going by? Something scary outside the gate. 9829;Ansel Adams in training♥. A Study in Feet 4/18/12. Is this thing on? That cam...

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: July 2013

http://sandboxmoments.blogspot.com/2013_07_01_archive.html

Wednesday, July 24, 2013. Holy, Holy, Holy is He. Truly I say to you,. Unless you turn and. Become like children,. You will never enter the. His sweet Aunt Jo made him his. Very own vestments for his birthday,. And when he wears them. He is reverent.he is holy.he is saintly. As soon as we open his door in the morning (or the middle of the night) his first communication of the day is always to ask if we are going bye-bye? The second.is it a church day? This boy of ours is fully present in every part of th...

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: November 2014

http://sandboxmoments.blogspot.com/2014_11_01_archive.html

Thursday, November 6, 2014. God, Me, and Angelman Syndrome. To live a life of uninterrupted happiness in God,. Looking on every circumstance as coming from God,. And thanking Him for it-. That is Christian perfection.". What if I were to say that I am thankful for Angelman Syndrome? I am submitting to the all that read this post today that I, Joanne Baston can truly and honestly and without hesitation praise God for Angelman Syndrome. Do I wish Scotty did not have Angelman Syndrome? Where we now stand,.

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: A Really Big Moment in the Sandbox

http://sandboxmoments.blogspot.com/2014/11/a-really-big-moment-in-sandbox.html

Monday, November 3, 2014. A Really Big Moment in the Sandbox. I am taking over my mom's blog this week to. Share some very cool news about my mommy. She started this little blog about me over a year ago and,. Trust me when I tell you that I give her plenty of material. I don't mean to brag but,. I think it is safe to say that my shenanigans are EPIC! When she started this blog her goals were simple:. 1 SPREAD AWARENESS FOR ANGELMAN SYNDROME. 2 Be an inspiration and a source of hope. About yours truly to.

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: November 2013

http://sandboxmoments.blogspot.com/2013_11_01_archive.html

Thursday, November 14, 2013. If you believe, you will receive. Whatever you ask for in prayer. OH HOW WE BELIEVE! Last week we attempted the impossible. We took Scotty on an airplane. Something that has not been tried successfully in years. 14 to be exact. Trust me when I tell you this was a. Huge, gigantic, colossal, gargantuan, monumental big deal. Considering the last time we tried. Steve had to rent a car and drive him home. We decided to brave the hopefully friendly skies and buy. OH HOW WE BELIEVED!

sandboxmoments.blogspot.com

Sandbox Moments Life with our adult son with Angelman Syndrome: The Facts

http://sandboxmoments.blogspot.com/p/anglemans-syndrome.html

On this page I am simply going to list when he reached all his milestones and his current capabilities. Just a note to other Angelman parents: I was astounded when I was looking through his baby books to compile this information just how many, many, many times we noted that he was the happiest baby. We even had complete strangers comment on his belly laugh and his happiness. ♥. You can go on the Angelman Syndrome Website to learn more about this syndrome. Http:/ www.angelman.org/. Scotty was the product ...

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Bayan Hassaballa Foundation

Paint the World Pink for Bayan. The Bayan Hassaballa Foundation. We are a charitable foundation set up to honor the memory of our Angel, Bayan Hassaballa, who lost her battle with Ataxia-Telangiectasia and Lymphoma in 2009. Our mission is to "Paint The World Pink For Bayan.". With the help of "Bayan's Angels," the Bayan Hassaballa Foundation has provided warm blankets for children in the hospital and has supported the vital work of research into finding cures for Ataxia-Telangiectasia and Lymphoma.

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Our Angel Bella

Baby Bella Joy was born an Angel on the morning of November 24th, 2013 at 41 weeks and three days. This is a collection of thoughts, pictures and memories of our precious girl. Saturday, August 15, 2015. This has been delayed from the date of writing, at the request of your momma. I wrote this on July 22, 2015. Two days before the birth of your little brother. Hello again, Big Sis,. When I got home, your momma was laying in bed, trying to get a kick count. I’m not good at waiting. Within fi...I think tha...

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Our Angel Boys

This site is dedicated to the little men in my life.Gabriel Christopher and Michael Leslie. Our little Angel boys! Wednesday, March 18, 2009. Posted by The Real McCoys. Monday, March 2, 2009. Little voices in the monitor. I think its quite adorable to hear the chatter between little brothers. Especially when the older brother is trying so hard to teach his little brother everything he. Posted by The Real McCoys. Thursday, February 12, 2009. Jack Bauer and a Dinosaur. Posted by The Real McCoys. This blog ...

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OUR ANGEL CALLUM

Our son Callum is a ten year old boy who may not speak but he has much to say and he has much to teach all of us. Callum suffers from Angelman Syndrome which is a rare genetic disorder causing a significant physical and cognitive delay, making independent life impossible. However, despite the many daily obstacles, Angels as they are fondly known, have an incredible personality and love for people. Their smile is unique and almost always lights up every room they enter. A little bit about Callum.

ourangelcharlie.blogspot.com

Charlie's story

For our history, start here. For our history start here. Monday, March 19, 2012. With the announcement of my new pregnancy, and all the chaos that naturally ensues, I'm afraid I haven't been able to update everyone as much as I would like. I believe that's all for now. I hope that I will have a lot more exciting news to post in the next few months! Wednesday, January 18, 2012. It's been a long time since I've written anything! The holidays were great. Charlie was perfect on the plane ride to Florida ...

ourangelchild.blogspot.com

Our angel child

Tuesday, 19 June 2012. Friday, 15 June 2012. Just back from Cape Town. And we have positive news and feedback! Of course in true Isabella style she entertained the crowds, shared her toys (except with the naughty boy), and kept up her spirit. She played fairies with a boy in a wheelchair and i had to push him while she raced him up and down the aisles - i don't think poor Tsapong realised he could fly like a butterfly - it was heartwarming! Thursday, 24 May 2012. Monday, 21 May 2012. Sunday, 20 May 2012.

ourangelclaire.tripod.com

In Loving Memory of Claire

This site is dedicated to our sweet Baby Claire and all the other Babies we can only hold in our hearts now. Claire died of SIDS, a silent monster that steals precious, healthy and loved babies from their parents. Many more children die of SIDS in a year than all who die of cancer, heart disease, pneumonia, child abuse, AIDS, cystic fibrosis and muscular dystrophy combined. Thank you for visiting her site and please sign her guestbook! I will miss you so,. You're in a better place. Someday I too shall go.

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Blog de ourangelcolbie - Our angel colbie; ton blog sur la talentueuse Colbie Caillat - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. Our angel colbie; ton blog sur la talentueuse Colbie Caillat. Mise à jour :. Abonne-toi à mon blog! Droplets - Colbie Caillat with Jason Reeves. Ajouter cette vidéo à mon blog. Colbie Caillat with Jason Reeves. My favourite song (L). Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Posté le vendredi 30 mai 2008 12:47. Premier album de Colbie Caillat. Donnez moi votre avis. Suite de ...

ourangeldennis.blogspot.com

Notes in Orange Balloons

Tuesday, October 16, 2012. It's been 6 years today since you left this world. It's hard to believe it's been so long, it feels like yesterday. We still miss you loads. Thanks for the lovely rainbow this morning. Picture by Christa Muller, taken October 16, 2012). May we all remember to extend to everyone care, kindness and understand! Love you lots Denny/Dennis/Dad/Husband/Son/Brother/Friend. Posted by Miss Deja. Sunday, October 11, 2009. Come Help Us Remember. Date: Friday, October 16, 2009. We miss you...

ourangeleaston.blogspot.com

Easton's Blog

Monday, June 24, 2013. Bright yellow daisies and fresh cut grass. Summer evening rain storms, the smell of sun tan lotion. Summer; Baseball and the 4. Tangy lemonade and strawberry shortcake. A tortured memory amongst the joy. An early morning in July, when I had to say goodbye. Ten little fingers and ten little toes, a cute nose just like Daddy. The summer I love, that gave me a gift, and took it back just as quickly. Water fights and children’s giggles, strength in the hands of my love. I shall wish fo...