OURNFJOURNEY.WORDPRESS.COM
our NF journey | My family's journey with NeurofibromatosisMy family's journey with Neurofibromatosis
http://ournfjourney.wordpress.com/
My family's journey with Neurofibromatosis
http://ournfjourney.wordpress.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Sunday
LOAD TIME
1.4 seconds
16x16
32x32
PAGES IN
THIS WEBSITE
20
SSL
EXTERNAL LINKS
18
SITE IP
192.0.78.12
LOAD TIME
1.39 sec
SCORE
6.2
our NF journey | My family's journey with Neurofibromatosis | ournfjourney.wordpress.com Reviews
https://ournfjourney.wordpress.com
My family's journey with Neurofibromatosis
ournfjourney.wordpress.com
February Update | our NF journey
https://ournfjourney.wordpress.com/2015/02/11/february-update
My family's journey with Neurofibromatosis. February 11, 2015. So, How have things been going? It’s been a while since you’ve updated…yes friends, I know. Life has been a little crazy, kind of like usual. What are things you can be praying for us? So, well, there you go friends, an update on how things are going here. Overall, not too bad. Birthday coming up soon. Where has the time gone? Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:.
Whirl Wind Day, part 2 | our NF journey
https://ournfjourney.wordpress.com/2014/11/25/whirl-wind-day-part-2
My family's journey with Neurofibromatosis. Whirl Wind Day, part 2. November 25, 2014. Fortunately, it was just a fire drill for the hospital and was over 10 minutes after it began. Shoot…I was so frazzled from that. I was almost in tears over the thought of having to leave the hospital and what it would mean for the MRI. Thank goodness it was just a test. Just over 3 hours go by and we finally get word that it’s time to go to recovery. I was so relieved. It was done, the scan was complete! Prayingmomma ...
You want how much??? | our NF journey
https://ournfjourney.wordpress.com/2014/07/23/you-want-how-much/comment-page-1
My family's journey with Neurofibromatosis. You want how much? July 23, 2014. Last week at our visit to Shriner’s was great as I talked about last time. J got to experience plaster cast fitting for the first time ever. He was very nervous and even a little scared about the whole thing, but when he was done and saw that it was painless, he was just fine.😀. While I was on the phone with the lady, I asked how much things are going to cost. HA! It’s not. It would make too much sense if that was th...Here...
Quick Update… | our NF journey
https://ournfjourney.wordpress.com/2014/09/26/quick-update
My family's journey with Neurofibromatosis. September 26, 2014. There was a billing error on their end and I never got a statement that we had a bill. Crazy! They thought I was nuts to think that we didn’t owe anything…I was hoping…but I knew we did, but without a statement to say we owe, how can I pay? C is doing well with preschool…he actually loves it. He gets to ride the bus everyday. A has fun standing at the door each day and says “Bye Bubba! 8221; So cute. I’m really blessed. Whirl Wind Day, part 2.
February | 2015 | our NF journey
https://ournfjourney.wordpress.com/2015/02
My family's journey with Neurofibromatosis. February 11, 2015. So, How have things been going? It’s been a while since you’ve updated…yes friends, I know. Life has been a little crazy, kind of like usual. What are things you can be praying for us? So, well, there you go friends, an update on how things are going here. Overall, not too bad. Where has the time gone? Whirl Wind Day, part 2. Whirl Wind Day, part 1. Praying mama on First MRI tomorrow…. Prayingmomma on Small victory. On You want how much?
TOTAL PAGES IN THIS WEBSITE
20
Moss Family: July 2015
http://mosshouse.blogspot.com/2015_07_01_archive.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Wednesday, July 22, 2015. Conversation in a Canoe. The next day, we heard an update about a close family friend that is battling advanced cancer. He had been reading a devotion for those facing cancer that encouraged him to spend intentional time with significant people in his life. Later that afternoon, Big Philip and I stole away in the canoe together and paddled around the lake. Links to this post.
Moss Family: Upcoming Benefit in Detroit
http://mosshouse.blogspot.com/2014/11/upcoming-benefit-in-detroit.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Tuesday, November 11, 2014. Upcoming Benefit in Detroit. We are are humbled and honored to receive the Children's Tumor Foundation's 2014 Strength and Honor Award at the BeNeFit II in Detroit. Next Saturday, November 22nd. Little Philip and Helen have their super hero outfits ready to go and their parents and grandparents have some super hero accessories to reveal on the big night as well! This BeNeFit...
Moss Family: 2014 Strength and Honor Award from Children's Tumor Foundation
http://mosshouse.blogspot.com/2014/12/2014-strength-and-honor-award-from.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Monday, December 01, 2014. 2014 Strength and Honor Award from Children's Tumor Foundation. As we adjourned for the evening, CTF President and Chief Scientific Officer Dr. Annette Bakker came up to me and with fierce determination in her eyes said "we are going to beat this. I promise." I believe her. Subscribe to: Post Comments (Atom). Dr Korf's UAB NF Clinic Blog. Mountain Brook Community Church.
Moss Family: October 2014
http://mosshouse.blogspot.com/2014_10_01_archive.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Monday, October 06, 2014. Samford Football NF Awareness Event. Here in the South, football is a way of life each fall. I have had the privilege of working at Samford University. Links to this post. Subscribe to: Posts (Atom). Dr Korf's UAB NF Clinic Blog. Mountain Brook Community Church. Ten signs I dread as an autism parent. Many Faces of NF. Case Study #32 - Darin Providing Technical Support.
Moss Family: How NF1 Affects Our Family
http://mosshouse.blogspot.com/p/how-nf1-affects-our-children.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. How NF1 Affects Our Family. The two greatest concerns for Philip are (1) the 10-15% chance that his tumor may turn malignant in his lifetime and (2) that the tumor could grow to obstruct his airway. We are confident in the world renown care we receive through UAB's Genetics Clinic and Children's of Alabama, and now, we add the NIH/NCI to our medical team of support. Subscribe to: Posts (Atom). MRI - 6 ...
Moss Family: July 2014
http://mosshouse.blogspot.com/2014_07_01_archive.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Tuesday, July 29, 2014. Drug Therapy Decision and Exciting News. A rare blog post by Big Philip, whose usual writing these days involves his dissertation towards completion of an EdD in Higher Education through the University of Alabama. Son, in 35 years of religious study, I have only come up with two hard inconvertible facts: there is a God, and I’m not him. Father Cavanaugh, in the film Rudy. That r...
Moss Family: Chemotherapy Update
http://mosshouse.blogspot.com/2015/03/chemotherapy-update.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Tuesday, March 17, 2015. From http:/ www.nfmidwest.org/volumetric-measurement-of-tumors-in-neurofibromatosis/. The volumetric analysis showed that the Philip's tumor still grew between June 2014 and the November 2014 MRI, but it was the slowest recorded growth. Thank you for your continued prayers and support of Children's Tumor Foundation! The 2015 Birmingham NF Walk will take place on October 18, 201...
Moss Family: May 2015
http://mosshouse.blogspot.com/2015_05_01_archive.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Monday, May 18, 2015. We wanted to update you on Little Philip's health and I will try to be as brief as possible. Before I do, I want to start by thanking each and every one of you for your continued support through your prayers and encouragement. Third Grade End of the Year Pool Party. And there are 50 pediatric slots. I should mention that Helen does not show any concerns with her NF1. Big Phili...
Moss Family: December 2014
http://mosshouse.blogspot.com/2014_12_01_archive.html
Be joyful in hope, Patient in affliction, Faithful in prayer. Romans 12:12. How NF1 Affects Our Family. Monday, December 01, 2014. 2014 Strength and Honor Award from Children's Tumor Foundation. As we adjourned for the evening, CTF President and Chief Scientific Officer Dr. Annette Bakker came up to me and with fierce determination in her eyes said "we are going to beat this. I promise." I believe her. Links to this post. Subscribe to: Posts (Atom). Dr Korf's UAB NF Clinic Blog. Many Faces of NF.
TOTAL LINKS TO THIS WEBSITE
18
Nexus
Welcome to Nexus, an initiative of Paul de Jong and Joel Holm. Nexus is created to build and develop relationships with Kingdom Leaders around the globe. 4 6 November 2015. Queenstown, New Zealand. Maree and I would like to personally invite you to be part of our annual Nexus Retreat for Senior Pastors and spouses. A focused time of input, fun and relationship building in the glorious Queenstown. We look forward to you joining us. Ps Paul and Maree de Jong. 900 Single, $1500 Couple. Nexus Forums are one ...
ourney.com域名出售，ourney.com可以转让，this domain is for sale
If you would like to purchase this domain , please. To make an offer. This domain is for sale.
欧霓贸易有限公司
160; 欧霓贸易有限公司本着"团结敬业，迈向二十一世纪，以高额投入，高科技装备，创一流产品、一流效益，服务于海内外用户"的宗旨。 版权所有 欧霓贸易有限公司© 2011-2015.
Natural Food Care
TO OUR NATURAL FOOD CARE. Welcome to Natural Food Care. NATURAL FOOD CARE.ACCOUNT. NUMBER.1750135000000933[CURRENT ACCOUNT] IFSC CODE.KVBL0001750. 91 897 388 2297. Content here content here content here. Content here content here content here. Content here content here content here. Content here content here content here. நமத ம ன ன ர கள ச ன னபட ந ய பலவல ல. அத வத இரத தம அச த தமட ந த ல ந ய . இரத தம ச த தம அட ந த ல ஆர க க யம . இத த ன உண ம ". Signup to Join with Us. Natural Food Care 2015.
our NF journey | My family's journey with Neurofibromatosis
My family's journey with Neurofibromatosis. Where has the time gone? August 7, 2015. I realized this week that I haven’t posted anything in almost 6 months. I truly meant to post earlier than this, but life has been busy. There have been several ups and downs, but that’s typical in most families. So, what has been going on? I’ll try to keep it shorter since there’s a lot to go through…not everything will be written about, at least at this time. So much going on! February 11, 2015. December 31, 2014.
Official NFL Jerseys - Buy Nike NFL Jerseys & Color Rush Uniforms
0 Items in your Cart. View Cart and Check Out. Mens Nike Minnesota Vikings #28 Adrian Peterson Limited Purple Team Color NFL Jersey. Mens Nike New York Giants #13 Odell Beckham Jr Elite Royal Blue Team Color NFL Jersey. Mens Nike Pittsburgh Steelers #84 Antonio Brown Elite Black Team Color NFL Jersey. Mens Nike New England Patriots #87 Rob Gronkowski Limited Navy Blue Team Color NFL Jersey. Mens Nike Miami Dolphins #14 Jarvis Landry Limited Orange Rush NFL Jersey. 1 Odell Beckham Jr. Jersey. Official NFL...
Price Request - BuyDomains
Url=' escape(document.location.href) , 'Chat367233609785093432', 'toolbar=0,scrollbars=0,location=0,statusbar=0,menubar=0,resizable=0,width=640,height=500');return false;". Need a price instantly? Just give us a call. Toll Free in the U.S. We can give you the price over the phone, help you with the purchase process, and answer any questions. Get a price in less than 24 hours. Fill out the form below. One of our domain experts will have a price to you within 24 business hours. United States of America.
最重庆_最重庆首页【亚洲第一娱乐平台ledian55.com】
2PM成员JUN.K从舞台跌落 JYP 胳膊肘无名指骨. 陷入 刷单 质疑 货运版 滴滴 运满满面临盈利难题. 主要产品 刘士余拒绝点出害人精是谁 告诉你了 下一步还怎么干活. 韩国 倒朴 挺朴 民众举行对立集会. 圈名 鄂尔多斯 上海活动周 周六启幕. 客服电话 0551-887732777 客服邮箱 189zxlhcyx@189lhc.com 防通讯诈骗.
Flash Intro Page
Future home of something quite cool. If you're the site owner. To launch this site. If you are a visitor.
SOCIAL ENGAGEMENT