ROHHADCHILDREN.BLOGSPOT.COM

ROHHAD CHILDREN

Thursday, October 22, 2009. We have a few more that we have met over the past year. I will be updating tonight! Wednesday, April 1, 2009. The other day I was so excited to get an email from Julie. She is Mason's mom. I wanted to share with you a little bit of Mason from her email. Hi my name is Julie - Mason's mom. Mason age 4, was diagnosed with ROHHAD in Aug. 2008. I have really been enjoying your blog and I appreciate you putting up Mason's picture. Keep in touch with us Mason! Http:/ www.vwootenw...

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ROHHAD CHILDREN | rohhadchildren.blogspot.com Reviews

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Thursday, October 22, 2009. We have a few more that we have met over the past year. I will be updating tonight! Wednesday, April 1, 2009. The other day I was so excited to get an email from Julie. She is Mason's mom. I wanted to share with you a little bit of Mason from her email. Hi my name is Julie - Mason's mom. Mason age 4, was diagnosed with ROHHAD in Aug. 2008. I have really been enjoying your blog and I appreciate you putting up Mason's picture. Keep in touch with us Mason! Http:/ www.vwootenw...

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8 labels cardiology

9 cchs

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ROHHAD CHILDREN | rohhadchildren.blogspot.com Reviews

https://rohhadchildren.blogspot.com

Thursday, October 22, 2009. We have a few more that we have met over the past year. I will be updating tonight! Wednesday, April 1, 2009. The other day I was so excited to get an email from Julie. She is Mason's mom. I wanted to share with you a little bit of Mason from her email. Hi my name is Julie - Mason's mom. Mason age 4, was diagnosed with ROHHAD in Aug. 2008. I have really been enjoying your blog and I appreciate you putting up Mason's picture. Keep in touch with us Mason! Http:/ www.vwootenw...

INTERNAL PAGES

rohhadchildren.blogspot.com

1

ROHHAD CHILDREN: Mason - Missouri

http://rohhadchildren.blogspot.com/2009/04/mason-missouri.html

Wednesday, April 1, 2009. The other day I was so excited to get an email from Julie. She is Mason's mom. I wanted to share with you a little bit of Mason from her email. Hi my name is Julie - Mason's mom. Mason age 4, was diagnosed with ROHHAD in Aug. 2008. I have really been enjoying your blog and I appreciate you putting up Mason's picture. I wanted to tell you I think Haven is adorable and I have showed her picture to Mason and he would like to meet her one day. Keep in touch with us Mason!

2

ROHHAD CHILDREN: Nikki - Australia

http://rohhadchildren.blogspot.com/2009/04/nikki-australia.html

Wednesday, April 1, 2009. If you remember my post about ROHHAD children. You will remember seeing a small blurb on Nikki B from Australia. Since then I have been in contact with her mom, Karen. I can't even explain what it's like to be able to connect and talk with all of these moms. I am so happy that everyone has reached out and are keeping in touch. Please keep Nikki in your thoughts and prayers and may she come home to her family soon! Subscribe to: Post Comments (Atom). View my complete profile.

3

ROHHAD CHILDREN: Leigh Ann - Kentucky

http://rohhadchildren.blogspot.com/2009/04/leigh-ann-kentucky.html

Wednesday, April 1, 2009. Leigh Ann - Kentucky. Who is this beautiful angel? She is most definitely an angel that I am truly excited to tell the world about. This is a dedication to Leigh Ann from Kentucky. Between birth and 1992 doctors failed to recognize any symptoms that her mom was telling them. Diagnosis: too much food. Still nothing known or mentioned about Central Hypoventilation or Central Apnea. But doctors said if Leigh Ann could lose weight she would be all better - - the parents kept try...

4

ROHHAD CHILDREN: Jenna - Connecticut

http://rohhadchildren.blogspot.com/2009/04/jenna-connecticut.html

Wednesday, April 1, 2009. I would like to introduce everyone to our newest friend Jenna. Jenna - you are a beautiful little girl and I am so happy your mom contacted me and sent me the photos of you. I was looking at this photo with Haven's dad and guess what - you both have the same bear from Build-A-Bear! Subscribe to: Post Comments (Atom). View my complete profile. Leigh Ann - Kentucky. How Did You Hear Of Us? Know one of our Children. What Can We Help You With? How You Can Help. Want to send cards.

5

ROHHAD CHILDREN: Joshua - Texas

http://rohhadchildren.blogspot.com/2009/04/joshua-texas.html

Wednesday, April 1, 2009. Your birthday - January 26th - is also my birthday. But I am a bit older than you. I was born January 26, 1973. Well, I'd love to hear more about you and what you think about all your doctors and tests and all. I know you have been through a lot in the last couple of years. PS You can see lots of pictures of us and read about us on several web pages:. Http:/ www.vwootenworld.blogspot.com/. Http:/ www.myspace.com/Vanessa1973. Are just a couple of them. View my complete profile.

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Medical information regarding ROHHAD Syndrome (Rapid-onset Obesity, Hypothalamic Dysfunction, Hypoventilation, Autonomic Dysregulation). 5-year-old loses battle with rare condition - ROHH. View my complete profile. Monday, November 23, 2009. 5-year-old loses battle with rare condition - ROHHAD. READ THE ENTIRE ARTICLE FROM: THE DAILY PRESS. 5-year-old loses battle with rare condition. It was just this summer that the region heard of a little girl bravely fighting a rare illness. Monday, August 17, 2009.

rohhadchildren.blogspot.com

ROHHAD CHILDREN

Thursday, October 22, 2009. We have a few more that we have met over the past year. I will be updating tonight! Wednesday, April 1, 2009. The other day I was so excited to get an email from Julie. She is Mason's mom. I wanted to share with you a little bit of Mason from her email. Hi my name is Julie - Mason's mom. Mason age 4, was diagnosed with ROHHAD in Aug. 2008. I have really been enjoying your blog and I appreciate you putting up Mason's picture. Keep in touch with us Mason! Http:/ www.vwootenw...

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ROHHAD - Rapid-Onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation Presenting in Childhood - Home

More than $100G donated to nonprofit founded for Marisa Carney, Bayport girl with rare ROHHAD disorder. The nonprofit organization founded for a Bayport girl with a rare obesity disorder will receive its largest single donation Wednesday - more than $100,000 - from Atlantic Auto Group. ROHHAD Fight Inc., started by the family and friends of Marisa Carney to promote awareness and fund research into the disorder, will be presented with a check at Atlantic Auto Mall in West Islip at 4 pm. PDF A Little Girl'...

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