WAGR.ORG

WAGR.ORG | Home of the Internation WAGR Syndrome Association

Coping with the Diagnosis. What is WAGR Syndrome. W – Wilms Tumor. Coping with Wilms Tumor. A – Aniridia. G – Genitourinary Tract abnormalities. R – Range of Developmental Delays. Early Intervention and Special Education. Medical Care for Your WAGR Child: Checklist for Parents. Medical Care for Your WAGR Child: Checklist for Parents. CoRDS / IWSA Patient Registry. National Institutes of Health. Current Research on WAGR Syndrome. 2000 – Manassas, VA. 2001 – Manassas, VA. 2003 – Manassas, VA. How to Join Us.

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International WAGR Syndrome Association

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Coping with the Diagnosis. What is WAGR Syndrome. W – Wilms Tumor. Coping with Wilms Tumor. A – Aniridia. G – Genitourinary Tract abnormalities. R – Range of Developmental Delays. Early Intervention and Special Education. Medical Care for Your WAGR Child: Checklist for Parents. Medical Care for Your WAGR Child: Checklist for Parents. CoRDS / IWSA Patient Registry. National Institutes of Health. Current Research on WAGR Syndrome. 2000 – Manassas, VA. 2001 – Manassas, VA. 2003 – Manassas, VA. How to Join Us.

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1 newly diagnosed

2 family stories

3 cataracts

4 glaucoma

5 keratopathy

6 associated conditions

7 for families

8 genetics

9 behavoir

10 siblings perspective

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WAGR.ORG | Home of the Internation WAGR Syndrome Association | wagr.org Reviews

https://wagr.org

Coping with the Diagnosis. What is WAGR Syndrome. W – Wilms Tumor. Coping with Wilms Tumor. A – Aniridia. G – Genitourinary Tract abnormalities. R – Range of Developmental Delays. Early Intervention and Special Education. Medical Care for Your WAGR Child: Checklist for Parents. Medical Care for Your WAGR Child: Checklist for Parents. CoRDS / IWSA Patient Registry. National Institutes of Health. Current Research on WAGR Syndrome. 2000 – Manassas, VA. 2001 – Manassas, VA. 2003 – Manassas, VA. How to Join Us.

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dellfive.blogspot.com

Dell Party of Five: June 2009

http://dellfive.blogspot.com/2009_06_01_archive.html

Monday, June 15, 2009. Hayden graduated preschool last Tuesday night. We are so happy for him as he was so excited for this day. He was so proud of himself as were we! Hayd is very excited to start his new school in the fall. I am anxious to see how he does having to get up early and be at school all day. The first few weeks may be rough :-) But we certainly think he is ready. He loves going to school. I just hope it stays that way! Photo and video editing at www.OneTrueMedia.com. His way.NOT mine.

dellfive.blogspot.com

Dell Party of Five: Skating for Wishes

http://dellfive.blogspot.com/2009/11/skating-for-wishes.html

Wednesday, November 18, 2009. Sunday night we enjoyed a night of Skating. All proceeds went to the Truck Convoy For Wishes. The kids had a blast.mom and dad had fun too! How sweet was that? We have been truly blessed by being part of the Make A Wish Foundation. Not just by the things we have recieved but by the selfless people we have met through it. Our lives are forever changed and for that we are grateful! Jax learning the ropes. Maddie, looking like a pro. Here's a video of the night.enjoy! Picture W...

dellfive.blogspot.com

Dell Party of Five: What a Great Night!!!

http://dellfive.blogspot.com/2010/01/what-great-night.html

Monday, January 11, 2010. What a Great Night! We had the pleasure of attending the Kevin Sharp. Concert that benefitted the Make A Wish Foundation this past weekend. You may remember last year at this event. Make video montages at www.OneTrueMedia.com. These are the pics Hayden took. He did great on the last one.even held the camera sideways! You have a lovely family and a sweet blog. March 14, 2010 at 11:56 PM. Hi, you have nice blog. u can view also mine.http:/ akoniwares.blogspot.com. To Blog or Not t...

dellfive.blogspot.com

Dell Party of Five: July 2009

http://dellfive.blogspot.com/2009_07_01_archive.html

Wednesday, July 22, 2009. Still Here and Having Fun! Yes, the Dell's are still around.just very busy! We are having lots of fun this summer. Maddie and I got the chance to go to the OBX with a dear friend for a week in June. We had so much fun just us girls! Brian held down the fort at home with the help of some very good friends. The boys and the house survived the week or should I say Brian survived the week! Here are a few pics. Maddie got a hole in one! Maddie on the slide. She just loved them! We al...

dellfive.blogspot.com

Dell Party of Five: My Dear and Her Deer

http://dellfive.blogspot.com/2009/10/my-dear-and-her-deer.html

Wednesday, October 28, 2009. My Dear and Her Deer. Hunting season is in full swing and this year with the PA Mentor Program Brian decided to take Maddie out on her first deer hunt. Maddie got her own crossbow and practiced through the summer. She seems to be a natural as her aim is quiet good! She may even show her dad up! Brian showing Maddie the ropes as they venture out on their first hunt! Of course she had to bring along the DS to pass the time! View through the scope. Maddie and her first buck!

dellfive.blogspot.com

Dell Party of Five: May 2009

http://dellfive.blogspot.com/2009_05_01_archive.html

Friday, May 22, 2009. T-ball and Science Fairs, and Baseball.Oh My! Hayden's next up I had video ready.he didn't hit with the pitches, but cracked one out with the "t". Some funny and cute things to watch. How the other kids are chanting Hayden's name! Hayden hands the bat to the other coach instead of throwing it down (he does this everytime! Once Hayden gets on second and the next player is up he doesn't run to third. The other kid on the base is telling him, "go to third! How Hayd jumps on every base.

dellfive.blogspot.com

Dell Party of Five: October 2009

http://dellfive.blogspot.com/2009_10_01_archive.html

Wednesday, October 28, 2009. My Dear and Her Deer. Hunting season is in full swing and this year with the PA Mentor Program Brian decided to take Maddie out on her first deer hunt. Maddie got her own crossbow and practiced through the summer. She seems to be a natural as her aim is quiet good! She may even show her dad up! Brian showing Maddie the ropes as they venture out on their first hunt! Of course she had to bring along the DS to pass the time! View through the scope. Maddie and her first buck!

dellfive.blogspot.com

Dell Party of Five: December 2008

http://dellfive.blogspot.com/2008_12_01_archive.html

Wednesday, December 31, 2008. This Christmas seems to never end.but that's okay with me. I love all the get togethers. Last weekend we were very busy. Saturday we went ot Brian's Grandmothers in Maryland, to Brian's Mom's and to visit the Liberty #1 Fire Station (They are the ones who drove us on the Make A Wish Convoy) Then on Sunday we had another family Christmas Party. Busy, busy, busy! Maddie opening her gifts at Nanny's House. Hayden opening his Zebra. Jaxon opening his sleeping bag. Sunday we deck...

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wagr.org

WAGR.ORG | Home of the Internation WAGR Syndrome Association

Coping with the Diagnosis. What is WAGR Syndrome. W – Wilms Tumor. Coping with Wilms Tumor. A – Aniridia. G – Genitourinary Tract abnormalities. R – Range of Developmental Delays. Early Intervention and Special Education. Medical Care for Your WAGR Child: Checklist for Parents. Medical Care for Your WAGR Child: Checklist for Parents. CoRDS / IWSA Patient Registry. National Institutes of Health. Current Research on WAGR Syndrome. 2000 – Manassas, VA. 2001 – Manassas, VA. 2003 – Manassas, VA. How to Join Us.

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