baronibewa.livejournal.com
22q11 Deletion Syndrome - baronibewa
http://baronibewa.livejournal.com/6236.html
June 6th, 2011. 22q112 deletion syndrome is a. 22q11.2 deletion syndrome is a disorder caused by the deletion of a small piece of chromosome 22. Perhaps you've found your way to our website because you or a loved one was recently diagnosed with the 22q11.2 deletion. Optima red top 34 78. Cheap plants for sale. Recipes for cake glaze. Watch sons of anarchy online. Warsensor zeus g2 black. Cute hairstyles for girls. Caterpillar d3b dozer parts. Powered by LiveJournal.com.
clarafourbees.blogspot.com
Clara's Heart: Silly Girl
http://clarafourbees.blogspot.com/2012/12/silly-girl.html
Sunday, December 9, 2012. She just keeps me laughing, every day. 65279;. Learning to crawl, by climbing up Mom. She also has gotten good. About wriggling her eyebrows at me when I do it to her. If I could master this face with the crinkly nose they love, I'd NEVER have to nap again! 65279;. Judgy Face. Like I'm the first mom in the world to spend the day wearing. Pajamas and eating croissants for every meal. She doesn't really care for socks and such, but she'll let me put any old. Oh man she is cute!
clarafourbees.blogspot.com
Clara's Heart: June 2012
http://clarafourbees.blogspot.com/2012_06_01_archive.html
Friday, June 29, 2012. Its just less than a week before I return to work, and we're trying to squeeze in all the activities we can. She also wore a size 5 diaper for the first time. Mom didn't think to bring anything but swimming diapers, and we needed something to change in to for the drive home. Thanks for sharing, Tate and Tanner! Fits well, yes? I think Clara has worn my favorite heart jammies for the last time, the ones we brought her home in. We. 101 Degrees at almost 5:00 PM. The Bits In Between.
hoezoanders.blogspot.com
Hoezo Anders: Dromen kunnen uitkomen
http://hoezoanders.blogspot.com/2012/07/dromen-kunnen-uitkomen.html
Hoe anders is je leven als je opgroeit met een handicap? Het werd voor mij als moeder van een zoon met VCFS een belangrijke vraag. Ik maakte me zorgen over zijn toekomst en ging op zoek naar antwoorden. Ik ontmoette hele lieve mensen die mij vertelden over hun leven met beperkingen. Er ging een wereld voor mij open en ik nodig je uit om ook een kijkje te nemen. Is die wereld echt zo 'Anders'? En ook niet onbelangrijk ze heeft een dochter zonder het syndroom en is zwanger van nummer 2. Daniella is directe...
blog4lizzie.blogspot.com
Our brave girl, Elizabeth: September 2006
http://blog4lizzie.blogspot.com/2006_09_01_archive.html
Our brave girl, Elizabeth. Thursday, 28 September 2006. Update - 28 Sep. Dear friends, I thank you for your prayers for Lizzie. I know you prayed becos Lizzie is much better this morning. Thank you! God bless, Simon. Links to this post. Wednesday, 27 September 2006. Lizzie in critical condition. Please pray for Lizzie that:. 2 the current low O2 level will not affect her brain or her physical development. No part of her body will be affected as God provides the grace for her not just to survive, but ...
clarafourbees.blogspot.com
Clara's Heart: How's My Parenting? (Call 1-800-OOPSIE)
http://clarafourbees.blogspot.com/2012/11/hows-my-parenting-call-1-800-oopsie.html
Sunday, November 25, 2012. We don't know what we're doing here, but we are having fun. Aunt Sherrie and Clara. It's been a busy few months, we come alive around here when the summer heat ends. Clara finally got to meet my brother and his family from Texas, and my sister and her family from Virginia. We even got to spend a few rain-soaked days up at Swiss Days where Clara loved napping on Aunt Sherrie and visiting with heart-Aunts Jill and Angee. A feeling her next echo. Might have to be a. We had a wonde...
clarafourbees.blogspot.com
Clara's Heart: November 2012
http://clarafourbees.blogspot.com/2012_11_01_archive.html
Sunday, November 25, 2012. We don't know what we're doing here, but we are having fun. Aunt Sherrie and Clara. It's been a busy few months, we come alive around here when the summer heat ends. Clara finally got to meet my brother and his family from Texas, and my sister and her family from Virginia. We even got to spend a few rain-soaked days up at Swiss Days where Clara loved napping on Aunt Sherrie and visiting with heart-Aunts Jill and Angee. A feeling her next echo. Might have to be a. We had a wonde...
clarafourbees.blogspot.com
Clara's Heart: July 2012
http://clarafourbees.blogspot.com/2012_07_01_archive.html
Monday, July 16, 2012. The new artery (conduit). Is where the narrowing is. The good news from the appointment-Clara is getting a g tube! We'll take progress where ever we can! Showing off her muffin top. Sunday, July 15, 2012. Nothing Much to Report. We're meeting with Cardiology tomorrow and hope for some help with getting us in to GI quickly. We need them to move her to a g tube in her belly, I can't keep torturing my baby girl with skin infections and tegaderm tape. Tuesday, July 3, 2012. This is sim...
vcfsfa.org.au
VCFS 22q11 Foundation - Northern Territory
http://www.vcfsfa.org.au/pages/side-menu/local-information/australia/northern-territory.php
Fact Sheets and Conferences. 22q at the Zoo. The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11. Membership is now Free. Membership is now free! VCFS 22q11 Foundation is on Social Media @vcfs22q11 and Hashtag #22qAwarenesss. Welcome to New Zealand. We are pleased to announce that New Zealand is now also represented by the VCFS22q11 Foundation! 22q at the Zoo - which zoo for you? Organized and developed by The International 22q11.2 Foundation. 22q at the Zoo!
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