2pinkbutterflies.blogspot.com

Presley & Charlotte's Corner

Presley and Charlottes Corner. PRESLEY and CHARLOTTES CORNER Youve taught me in your lifetime More than Id learned in mine. And you do, you do, you shine. Friday, June 6, 2014. Out of 81 FUN DAYS OF SUMMER! So far the first week of summer VACAY has been fabulous! Day 1 was Ammons birthday and we went to the Dino Museum and had a party! At the Dino Museum they even scored big points with me and Pres when we discovered the wheelchair accessible Dino Dig! We went to mommy's favorite place (Midway! Okay I ne...

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Presley & Charlotte's Corner | 2pinkbutterflies.blogspot.com Reviews

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Presley and Charlottes Corner. PRESLEY and CHARLOTTES CORNER Youve taught me in your lifetime More than Id learned in mine. And you do, you do, you shine. Friday, June 6, 2014. Out of 81 FUN DAYS OF SUMMER! So far the first week of summer VACAY has been fabulous! Day 1 was Ammons birthday and we went to the Dino Museum and had a party! At the Dino Museum they even scored big points with me and Pres when we discovered the wheelchair accessible Dino Dig! We went to mommy's favorite place (Midway! Okay I ne...

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2 surgery went well

3 rock star

4 for charlotte

5 what

6 let's roller skate

7 that rhymed

8 best day

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Presley & Charlotte's Corner | 2pinkbutterflies.blogspot.com Reviews

https://2pinkbutterflies.blogspot.com

Presley and Charlottes Corner. PRESLEY and CHARLOTTES CORNER Youve taught me in your lifetime More than Id learned in mine. And you do, you do, you shine. Friday, June 6, 2014. Out of 81 FUN DAYS OF SUMMER! So far the first week of summer VACAY has been fabulous! Day 1 was Ammons birthday and we went to the Dino Museum and had a party! At the Dino Museum they even scored big points with me and Pres when we discovered the wheelchair accessible Dino Dig! We went to mommy's favorite place (Midway! Okay I ne...

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oursmajourney.blogspot.com

Our SMA Journey: What's Happened, What's Coming Up.....

http://oursmajourney.blogspot.com/p/timeline-of-events.html

Our life since our perfect little Noah was diagnosed with SMA type 2. What's Happened, What's Coming Up. 2/29/2012- Meeting with orthotic specialist to get Noah casted for a RGO brace. 2/27/2012- Went to DME supply and picked up Bi-pap. 02/21/2012- Results are in- Baby Eli is SMA FREE! 2/16/2012- New stander is in! 2/1/2012- Meeting with Donota (Dr. Swoboda's team PT). 1/6/2012- Getting AFO's and meeting vendor to get Noah a stander. 12/19/2011- Noah has gained 2 pounds! 9/29/2011- Met Neurologist (Dr&#4...

oursmajourney.blogspot.com

Our SMA Journey: Our Story- coming to a diagnosis........

http://oursmajourney.blogspot.com/p/our-story-coming-to-diagnosis.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Our Story- coming to a diagnosis. It has been a hard road, he uses a feeding tube to eat and relies on many other machines to keep him healthy. These machines that I hated in the beginning I am thankful for. They keep my baby strong and healthy. Subscribe to: Posts (Atom). Accessible Van Fundraiser for Noah. Our Story- coming to a diagnosis. What's Happened, What's Coming Up. Nightly routine- A glimpse at a portion of our day.

oursmajourney.blogspot.com

Our SMA Journey: August 2013

http://oursmajourney.blogspot.com/2013_08_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Friday, August 2, 2013. August is SMA awareness month! What does it mean to be aware? Per Webster being aware is: having or showing realization, perception, or knowledge. While most people in our lives know that Noah has SMA, but how many REALLY know what SMA is? While most aren't aware of what exactly SMA is, know that it's much more than a little boy being in a wheelchair. Awareness is key to a cure! Lauren, Lane, Noah and Eli.

oursmajourney.blogspot.com

Our SMA Journey: Bad at updates :)

http://oursmajourney.blogspot.com/2013/07/bad-at-updates.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Monday, July 1, 2013. Bad at updates :). So I have been sitting here thinking at how much has happened since I last updated our blog. Time is majorly lacking and I am exhausted all of the time. In March, Noah finally got his very own power wheelchair. He loves it and I am so proud of him. He does amazing in it and I love that he has his independence. Lauren, Lane, Noah and Eli. August 2, 2013 at 8:47 AM. I have some questions for you!

oursmajourney.blogspot.com

Our SMA Journey: May 2012

http://oursmajourney.blogspot.com/2012_05_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Thursday, May 3, 2012. Please at the very least tell everyone you know about SMA. Awareness is the key. It could happen to you! Please spread the word. 183; SMA is the #1 genetic killer of children under 2. 183; SMA is estimated to occur in nearly 1 out of every 6,000 births. 183; 1 in every 40 people, or nearly 10 million Americans, UNKNOWINGLY carry the gene responsible for SMA. Few have any known family history. Growing Pains.(b...

oursmajourney.blogspot.com

Our SMA Journey: April 2012

http://oursmajourney.blogspot.com/2012_04_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Monday, April 2, 2012. Does it ever get better. I laugh at the title of this entry because if I don't laugh, I'll cry. So back to the real reason for this blog.Noah. Friday, Lane took him and had new AFO's made. We have noticed that the are starting to get tight around his calves and leaving impressions. Since we are in our 90 days period of getting his first set, then he gets a new set at no charge. Woohoo. Lauren, Lane, Noah and Eli.

oursmajourney.blogspot.com

Our SMA Journey: July 2012

http://oursmajourney.blogspot.com/2012_07_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Sunday, July 8, 2012. The Birth of Eli. Lane and I had wanted to do a natural birth with Noah, but laws in Alabama made it impossible to have an out of hospital natural birth with a midwife. This time around we got what we wanted. I remember him repeating you can do this, and telling me how great I was doing. He was an amazing supporter. Eli was born at 10:06 pm 1 hour and 26 minutes after we got to the birthing center. Noah was born o...

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Presley and Charlottes Corner. PRESLEY and CHARLOTTES CORNER Youve taught me in your lifetime More than Id learned in mine. And you do, you do, you shine. Friday, June 6, 2014. Out of 81 FUN DAYS OF SUMMER! So far the first week of summer VACAY has been fabulous! Day 1 was Ammons birthday and we went to the Dino Museum and had a party! At the Dino Museum they even scored big points with me and Pres when we discovered the wheelchair accessible Dino Dig! We went to mommy's favorite place (Midway! Okay I ne...

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