4brokenhearts.wordpress.com

5brokenhearts | A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

A family affected by three generations of Heterotaxy Syndrome - an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

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5brokenhearts | A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. | 4brokenhearts.wordpress.com Reviews

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A family affected by three generations of Heterotaxy Syndrome - an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

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5brokenhearts | A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. | 4brokenhearts.wordpress.com Reviews

https://4brokenhearts.wordpress.com

A family affected by three generations of Heterotaxy Syndrome - an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

INTERNAL PAGES

4brokenhearts.wordpress.com

1

Familial heterotaxy | 5brokenhearts

https://4brokenhearts.wordpress.com/2013/07/08/familial-heterotaxy

A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. CHD Awareness Week and An Update. Lots going on these days! July 8, 2013. Is watching your children suffer through congestive heart failure and open-heart surgery a blessing? Is watching them turn blue and fight for every breath a blessing? Is living in constant fear and worry a blessing?

2

Saturday Night Update on Titus | 5brokenhearts

https://4brokenhearts.wordpress.com/2011/06/19/saturday-night-update-on-titus

A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. Care-flight to Anchorage…. Monday Morning Baby Titus Update →. Saturday Night Update on Titus. June 19, 2011. I am a mom to three children with complex heart defects (due to heterotaxy syndrome) awaiting the birth of my first grandchild, who also has complex heart defects. You are commenting...

3

Titus Update – 2 Days Post Op | 5brokenhearts

https://4brokenhearts.wordpress.com/2011/07/21/titus-update-2-days-post-op

A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. Titus Update – 6 Days Post-Op →. Titus Update – 2 Days Post Op. July 21, 2011. So Baby Titus got both chest drains removed and is now off the ventilator, yay! They may take him off dialysis tomorrow so yay again! View all posts by momtothreehearts →. This entry was posted in Uncategorized.

4

May | 2011 | 5brokenhearts

https://4brokenhearts.wordpress.com/2011/05

A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. Monthly Archives: May 2011. May 10, 2011. I am so pleased to report that baby Titus is at home and doing very well! I got to hold him for the first time and was just overcome with joy. He is so tiny and sweet and precious! So … Continue reading →. May 7, 2011. May 6, 2011. May 5, 2011. Creat...

5

March | 2011 | 5brokenhearts

https://4brokenhearts.wordpress.com/2011/03

A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. Monthly Archives: March 2011. Internet Research is Scary…. March 26, 2011. Some GOOD News…. March 25, 2011. Well it’s about time we got some good news around here! The Kindness of Strangers…. March 22, 2011. Houston, We Have A Problem…. March 19, 2011. More bad news…. March 17, 2011. So Gran...

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jrwarner2.blogspot.com

ThE WaRnEr's: September 2012

http://jrwarner2.blogspot.com/2012_09_01_archive.html

Wednesday, September 26, 2012. Sorry it's been so long! Subscribe to: Posts (Atom). LINK TO MY MIRACLE BABY'S PAGE. Sorry its been so long! Jay and I have been married for 6 years and together for 8 :) I dont know what I would ever do without him, he is the love of my LIFE! We have 2 beautiful little girls together. Our first is our adorable Braylee who is 5, and sweet little Addisyn will be 3 this July. Then we have our newest addition Ryker (our little miracle baby! View my complete profile. He is his ...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: CHD-UK...A website with lots of information on CHD

http://heterotaxypolysplenia.blogspot.com/2012/02/chd-uka-website-with-lots-of.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Thursday, February 9, 2012. CHD-UK.A website with lots of information on CHD. In honor of CHD awareness week. I am posting a link to a website that I wanted to share with all of you. Http:/ congenital-heart-defects.co.uk/WhatisCongenitalHeartDefects.aspx. Subscribe to: Post Comments (Atom). Ava - The story of a baby ...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Brady's full sentence

http://heterotaxypolysplenia.blogspot.com/2010/03/bradys-full-sentence.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Saturday, March 27, 2010. Last night, we took the kids to the YMCA for family swim. We had so much fun and the kids loved it. Today, Brady said to his dad, "Lets go swimming". Can you believe Brady said a full sentence. Well he did! I am so excited! I just wanted to share that with all of you. Drawing Heart Project -...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Another Pneumonia/Influenza A

http://heterotaxypolysplenia.blogspot.com/2009/06/another-pneumonia.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Friday, June 19, 2009. Subscribe to: Post Comments (Atom). With awareness comes understanding and with understanding comes change. From a special friend in Canada (Laura). But I believe god only gives us special little ones when we are special too. Hold onto that my dear friend.”. Helping Hallie - A very special litt...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Update

http://heterotaxypolysplenia.blogspot.com/2010/03/update.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Friday, March 19, 2010. 160; My fingers are crossed that Chloe will stay infection free for the next 6 months and will not have to go back to be seen. Next week, both kids will see genetics and Chloe will see her developmental doctor. I am also hoping to have great feedback that I can share with you all. 8220;God mu...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Aiden's Angels, Inc.

http://heterotaxypolysplenia.blogspot.com/2012/03/taken-directly-from-aidens-angels-inc.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Tuesday, March 20, 2012. Aiden's Angels, Inc. Aiden is a 2 year old little boy with Heterotaxy and CHD. His mom is a nurse, his dad a pharmacist. The non-profit organization to help families in the Central Kentucky area with children born affected by congenital heart disease. Aiden's Angels, Inc. 8220;God must trust ...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Nathan a little boy with Heterotaxy and complex CHD

http://heterotaxypolysplenia.blogspot.com/2012/03/nathan-beaudoin-little-boy-with.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Monday, March 26, 2012. Nathan a little boy with Heterotaxy and complex CHD. God bless him and also his family. July 29, 2012 at 5:05 PM. How is he doing? What an Angel. God Bless him. 3. December 30, 2012 at 4:02 PM. Subscribe to: Post Comments (Atom). From a special friend in Canada (Laura). 4 Broken Hearts: A moth...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Angel Flight and Angel Bus

http://heterotaxypolysplenia.blogspot.com/2011/06/angel-flight-and-angel-bus.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Wednesday, June 22, 2011. Angel Flight and Angel Bus. Angel Flight is a non profit organization that arranges free air transportation for any serious medically related need. Angel Bus is a non profit organization that arranges free ground transportation for any serious medically related need. Ava - The story of a bab...

heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: A great Article...A must read...

http://heterotaxypolysplenia.blogspot.com/2011/07/great-articlea-must-read.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Sunday, July 17, 2011. A great Article.A must read. See link below.It's an article on Heterotaxia, Congenital Heart Disease, and Primary Ciliary Dyskinesia. Http:/ circ.ahajournals.org/content/115/22/2793.full. Subscribe to: Post Comments (Atom). With awareness comes understanding and with understanding comes change.

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5brokenhearts | A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

A family affected by three generations of Heterotaxy Syndrome – an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself. Lots going on these days! April 30, 2014. July 8, 2013. Is watching your children suffer through congestive heart failure and open-heart surgery a blessing? Is watching them turn blue and fight for every breath a blessing? Is watching them waste away before your very eyes a blessing? As far ...

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