charissejournal.blogspot.com
My Journal: My Story
http://charissejournal.blogspot.com/2007/06/my-story.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Wednesday, June 1, 2005. I am a born-again Christian and love Jesus with all my heart. Even though life has been tough at times, I love it to the fullest. I have a great family - a wonderful husband and son. Hope you enjoy my new website! Oh well, it is what it is. Thank you for following my site so closely. I wish you the best in all that you do and that is done to you. July 1, 2007 at 8:18 AM.
charissejournal.blogspot.com
My Journal: November 2008
http://charissejournal.blogspot.com/2008_11_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Monday, November 17, 2008. A quick medical update. This will be short because I cannot handle looking at the computer. I have an appointment with my gynae today just for a check up. Links to this post. Saturday, November 15, 2008. Isaac's 6th birthday - part 2. Well a week after Isaac's b-day party on the 1st November was his actual 6th birthday on the 8th of November. Alan and I gave him a n...
charissejournal.blogspot.com
My Journal: June 2009
http://charissejournal.blogspot.com/2009_06_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Tuesday, June 30, 2009. Lost His First Tooth! Ahhhh, I can't get this photo to move down! Usually I can write on top of this photo but every time I try, it deletes it. I just don't understand.oh well. On Monday, yesterday, Isaac lost his very first baby tooth! What a big boy! Above there is a photo of him with his tooth gone. What a sweetie! Can you see how big my boy is getting? However, I thoug...
charissejournal.blogspot.com
My Journal: February 2009
http://charissejournal.blogspot.com/2009_02_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Friday, February 20, 2009. No Port now.and other updates :-). I am aware that if this treatment does get more intense or my veins completely shut down that the port may be necessary no matter the neuts but we will deal with that when and if that happens. If I ever had a transplant, some kind of line is put in anyway. He was pale with really red eyes. I even asked him if he was ok! This drama with...
charissejournal.blogspot.com
My Journal: August 2009
http://charissejournal.blogspot.com/2009_08_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Sunday, August 30, 2009. I had IVIG infusion on Friday which went ok. I was in the new building. I was quite worried about my IV access as my normal place didn't work and I was heaps worried they wouldn't find anywhere else. However, they did! I congratulated the nurse lots of times. We sat together and had a hot drink together. It was good. Thanks for letting me have a massage, Angela! Well, I f...
charissejournal.blogspot.com
My Journal: May 2009
http://charissejournal.blogspot.com/2009_05_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Friday, May 29, 2009. Exciting conference/Blanche Alter/FA Australia/medical and family update! So I haven't updated for a little while. What has been going on with us.how has life progressed? First of all, Isaac had his bloods taken to check his clotting, CBC and red blood cell formation in his marrow. Everything came back as TOTALLY and PERFECTLY NORMAL! Isaac also had his flu shot today. I...
charissejournal.blogspot.com
My Journal: July 2009
http://charissejournal.blogspot.com/2009_07_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Wednesday, July 29, 2009. I had my haem/oncol appointment this afternoon and got the results from my bone marrow biopsy. My blast count was recorded at 3 to 4 %! Last time they recorded it at 6 to 7%! If you want to know what has been going on lately, please also refer to the journal entry before as I updated that only earlier on in the day. Thanks for your support! Links to this post. Tomorrow I...
charissejournal.blogspot.com
My Journal: December 2008
http://charissejournal.blogspot.com/2008_12_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Wednesday, December 31, 2008. Happy New Year everyone! It is 1.01am here.we have already started our journey in the year 2009! I am excited and nervous all in one! What does God have in store for me this year? How will my health hold up? Will I see another new year? What exciting things will happen? Where will God lead me? Well, I still have plenty of posting to do. I will get to that later!
charissejournal.blogspot.com
My Journal: September 2009
http://charissejournal.blogspot.com/2009_09_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Wednesday, September 2, 2009. I know one thing though.I long to be free of Fanconi Anaemia. Today has brought forth many thoughts and has caused me to ponder a lot. We fear death but why? It is God given to fight for life. It is also God given to be able to go and live with Him. I don't know how to explain it. I am deep in thought. Shannon's gravestone. Looking pretty I think. Lots of love,.
charissejournal.blogspot.com
My Journal: October 2009
http://charissejournal.blogspot.com/2009_10_01_archive.html
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here). Monday, October 5, 2009. Fanconi Anaemia Camp 2009 in Australia. It was such a relaxing camp and quite a bit different to that of last year. The schedule was a lot more slow and not as tight, making it much more relaxing and less exhausting for someone like me.or anyone else who may need to be cut some slack.hehe. It is SO green and has forests, streams, a challenge course that is huge and more!