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66 roses

Thursday, April 16, 2015. It has been a whirlwind month for us! As I mentioned in my last post. This is the really hard thing about CF, for me anyway. It's never really being sure if we're out of the woods, in the clear, well. Is this slightly changed baseline his new baseline? Does the benefit of trying more medications and other treatments to try to get rid of symptoms outweigh the risks of those harsh drugs and the time that it takes us to implement? Posted by Erin Moore. Tuesday, March 31, 2015.

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66 roses | 66roses.blogspot.com Reviews
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Thursday, April 16, 2015. It has been a whirlwind month for us! As I mentioned in my last post. This is the really hard thing about CF, for me anyway. It's never really being sure if we're out of the woods, in the clear, well. Is this slightly changed baseline his new baseline? Does the benefit of trying more medications and other treatments to try to get rid of symptoms outweigh the risks of those harsh drugs and the time that it takes us to implement? Posted by Erin Moore. Tuesday, March 31, 2015.
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1 cfeveryday
2 2 comments
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66 roses | 66roses.blogspot.com Reviews

https://66roses.blogspot.com

Thursday, April 16, 2015. It has been a whirlwind month for us! As I mentioned in my last post. This is the really hard thing about CF, for me anyway. It's never really being sure if we're out of the woods, in the clear, well. Is this slightly changed baseline his new baseline? Does the benefit of trying more medications and other treatments to try to get rid of symptoms outweigh the risks of those harsh drugs and the time that it takes us to implement? Posted by Erin Moore. Tuesday, March 31, 2015.

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66 roses: Rare Disease Day 2015

http://66roses.blogspot.com/2015/02/rare-disease-day-2015.html

Saturday, February 28, 2015. Rare Disease Day 2015. A few years ago, I wrote this post. About what a typical day looks like for us. What I wasn't able to. Articulate at that time, whether it was because I was so deep in the motions of everyday life or the true burden of this disease hadn't yet full sunk in, was how it makes me feel. So today, on Rare Disease Day, I want to share what a day really feels like for me. I wonder if I’m keeping too much from them? I think his mental and emotional well being ar...

2

66 roses: December 2014

http://66roses.blogspot.com/2014_12_01_archive.html

Wednesday, December 10, 2014. I read this fantastic article the other day called Why We Are Getting Patient Engagement Backwards. And it is so spot on I can't stand it. If you haven't read it yet, go read it now, I'll wait. .waiting. Now I will quote:. Our healthcare system inadvertently, yet potently, discourages engagement. It ignores the fact that the patient is already the most engaged person in healthcare." ". The reality is that patients have no choice but to be engaged. I'd like to share with you ...

3

66 roses: What we need most

http://66roses.blogspot.com/2015/03/what-we-need-most.html

Tuesday, March 24, 2015. What we need most. Add items to a Wish List, and then choose the option "Send to Trunk Keeper" and enter jennybostater@matildajaneclothing.com. Tomorrow is the last day that you can order as the party will close at the end of the night. What we need most right now is your support. Join us in this fight by making a donation today! Http:/ fightcf.cff.org/site/TR/GreatStrides/42 Greater Cincinnati Cincinnati? More on today's clinic visit coming soon! Posted by Erin Moore. Search " D...

4

66 roses: February 2015

http://66roses.blogspot.com/2015_02_01_archive.html

Saturday, February 28, 2015. Rare Disease Day 2015. A few years ago, I wrote this post. About what a typical day looks like for us. What I wasn't able to. Articulate at that time, whether it was because I was so deep in the motions of everyday life or the true burden of this disease hadn't yet full sunk in, was how it makes me feel. So today, on Rare Disease Day, I want to share what a day really feels like for me. I wonder if I’m keeping too much from them? I think his mental and emotional well being ar...

5

66 roses: Dear everyone,

http://66roses.blogspot.com/2015/03/dear-everyone.html

Tuesday, March 31, 2015. Not tomorrow. Probably not this year or next or the year after. Hopefully, dear God hopefully, he will be with us forever. Everyone tells me we will cross that bridge when we come to it, but in the meantime I'm searching desperately for anything that might offer a new hope. I cannot wait until we get to that bridge to figure out how we will cross it. You may have seen something that was recently shared on Twitter about a day that I spent partnered with Susannah Fox. Cystic fibros...

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Through the Looking Glass: June 2010

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Through the Looking Glass. Saturday, June 19, 2010. Http:/ www.facebook.com/album.php? Subscribe to: Posts (Atom). View my complete profile. The Learning Circuits Blog. In Memory Abigail F. Shanley. Jadyn O'Neill. coming Spring 2010! Blogger: Login to read. Picture Window theme. Powered by Blogger.

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Through the Looking Glass: Xmas 09!

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Through the Looking Glass. Sunday, December 27, 2009. Click here for pics! Http:/ www.facebook.com/album.php? Subscribe to: Post Comments (Atom). View my complete profile. The Learning Circuits Blog. In Memory Abigail F. Shanley. Jadyn O'Neill. coming Spring 2010! Blogger: Login to read. Picture Window theme. Powered by Blogger.

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Through the Looking Glass: December 2009

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Through the Looking Glass. Wednesday, December 30, 2009. Click here to see videos of Brody's First Christmas! Sunday, December 27, 2009. Click here for pics! Http:/ www.facebook.com/album.php? Sunday, December 13, 2009. Mom and Dad (Sheeler) came down this weekend. Dad and Andy built a beautiful built-in bench while Mom and I made fudge. Once we paint the bench/shelves we'll post more pics! Subscribe to: Posts (Atom). View my complete profile. The Learning Circuits Blog. In Memory Abigail F. Shanley.

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Through the Looking Glass: Motorcycle Accident

http://shean-lookingglass.blogspot.com/2010/05/motorcycle-accident.html

Through the Looking Glass. Saturday, May 22, 2010. For me, I lost my favorite pair of jeans and have a bruised, swollen and road rashed knee. Somehow Andy ended up under the bike. He has bad road rash on his right arm (since he was not wearing his armored jacket), a swollen and bruised left ankle (from the guardrail) and a few other sore spots. Like I said, we were very lucky. Insurance was a bit of a nightmare since she's only 16, but it all turned out well (she has insurance! And I will be getting back...

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Through the Looking Glass: March 2010

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Through the Looking Glass. Sunday, March 14, 2010. 60 mile Breast Cancer Walk. This year, Beth will be participating in a very special event called the Susan G. Komen 3-Day for the Cure (breast cancer) with a team from work in October. She'll walk 60 miles over the course of three days (which will require great shoes and lots of training! During the event the team will walk 20 miles, camp during the night, and so on for three days. Http:/ www.the3day.org/goto/shean. Thursday, March 11, 2010. Beth went ho...

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Through the Looking Glass: November 2009

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Through the Looking Glass. Sunday, November 8, 2009. We spent Halloween in RI with Meg and Mike and had a great time. Here are some pics! Subscribe to: Posts (Atom). View my complete profile. The Learning Circuits Blog. In Memory Abigail F. Shanley. Jadyn O'Neill. coming Spring 2010! Blogger: Login to read. Picture Window theme. Powered by Blogger.

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Through the Looking Glass: October 2009

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Through the Looking Glass. Monday, October 12, 2009. We've been busy travelers over the last month. Andy was in. While I was in Boston. During one of our free weekends, we pretended to be tourists and visited Georgetown. We took an unexpected detour past Congress. This past weekend, Beth was in Berkeley Springs, West Virginia celebrating a friend's birthday. Subscribe to: Posts (Atom). View my complete profile. The Learning Circuits Blog. In Memory Abigail F. Shanley. Blogger: Login to read.

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Through the Looking Glass: Brody is Walking!

http://shean-lookingglass.blogspot.com/2010/03/brody-is-walking.html

Through the Looking Glass. Thursday, March 11, 2010. Click here to view the videos! Http:/ sharing.theflip.com/session/a8da817b965536fdf886182274413a95/video/11416761. Subscribe to: Post Comments (Atom). 60 mile Breast Cancer Walk. View my complete profile. The Learning Circuits Blog. In Memory Abigail F. Shanley. Jadyn O'Neill. coming Spring 2010! Blogger: Login to read. Picture Window theme. Powered by Blogger.

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The4Benhams: May 2010

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Saturday, May 22, 2010. Monkey's friend from preschool had her bday last week and it was a ton of fun! They had a clown who painted faces and made balloon animals. And for the first bday party in the last 2 yrs, monkey got to eat cake! Thursday, May 20, 2010. Last night, I made homemade bread for the first time. This. Eggs that was FOUR short! So I have no idea how these will turn out! I will let you know. Im going to make some for lunch so we will see! ETA - Not too bad but definatly dry. My advice?

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The Blair Family: July 2011

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Thanks for visiting us! We are building our family slowly but surely from being happily married, just the two of us; then the inclusion of our wonderful Malinois, Shasta, to our little man, Nathaniel! And coming this Thanksgiving.Baby Boy Blair #2! Keep coming back for updates. Friday, July 29, 2011. Me and My Friend Jenny. Ok, so you know I like the ladies, right? Well, if you didn't.now you do! We visited today at the park, and I thought I would share a few pictures with you of our date!

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FOOTBALL LEAGUE "CITY OF PEACH". Monday, May 9, 2011. 97 YEARS OLD WANDERERS. Hugo O'Neill, Pte Wanderers, which recognize. LFCD Distinction for winning the championship of the Interior 2011. WANDERERS. PAYS TRIBUTE TO PLAYERS AND CONTRIBUTORS TO DINNER SHOW. José María Bedat, along with O'Neill and John Torena. Duet by crucible, composed by Peter Raviolo and Sebastian Quintas also Bruno Deneo disco dela. Indian Driving License France. OVER THE FANTASY REALITY . happened just hours ago. But how can I say...

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66 roses

Thursday, April 16, 2015. It has been a whirlwind month for us! As I mentioned in my last post. This is the really hard thing about CF, for me anyway. It's never really being sure if we're out of the woods, in the clear, well. Is this slightly changed baseline his new baseline? Does the benefit of trying more medications and other treatments to try to get rid of symptoms outweigh the risks of those harsh drugs and the time that it takes us to implement? Posted by Erin Moore. Tuesday, March 31, 2015.

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