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About SMA (Spinal Muscular Atrophy)

Saturday, December 26, 2009. What is Spinal Muscular Atrophy. Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. We are slowly, but surely, learning our way around. Subscribe to: Posts (Atom).

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Saturday, December 26, 2009. What is Spinal Muscular Atrophy. Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common rare disorder: approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. We are slowly, but surely, learning our way around. Subscribe to: Posts (Atom).
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About SMA (Spinal Muscular Atrophy) | aboutsma.blogspot.com Reviews

https://aboutsma.blogspot.com

Saturday, December 26, 2009. What is Spinal Muscular Atrophy. Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. We are slowly, but surely, learning our way around. Subscribe to: Posts (Atom).

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About SMA (Spinal Muscular Atrophy): December 2009

http://www.aboutsma.blogspot.com/2009_12_01_archive.html

Saturday, December 26, 2009. What is Spinal Muscular Atrophy. Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. We are slowly, but surely, learning our way around. Subscribe to: Posts (Atom).

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About SMA (Spinal Muscular Atrophy)

http://www.aboutsma.blogspot.com/2009/12/our-little-taylor-was-diagnosed-with.html

Saturday, December 26, 2009. We are slowly, but surely, learning our way around. Subscribe to: Post Comments (Atom). What is Spinal Muscular Atrophy. Our Little Taylor was diagnosed with Spinal Muscu.

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About SMA (Spinal Muscular Atrophy): What is Spinal Muscular Atrophy

http://www.aboutsma.blogspot.com/2009/12/what-is-spinal-muscular-atrophy.html

Saturday, December 26, 2009. What is Spinal Muscular Atrophy. Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. Subscribe to: Post Comments (Atom). What is Spinal Muscular Atrophy.

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Our Three Girls: February 2009

http://r3girls.blogspot.com/2009_02_01_archive.html

February 1, 2009. Fun First Day in February! Today was a great day. Kenny cooked breakfast (yummy! I finished laundry. ALL the baskets are EMPTY, and all clothes are folded and put away - YAY! The girls got the opportunity to go outside today, as it was really pretty out there. Taylor went out in her power Standing Dani. And the other girls ran around and played with the neighborhood kids. It was a WONDERFUL preview to the season coming upon us. spring! Subscribe to: Posts (Atom). View my complete profile.

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Our Three Girls: Madi is Three!

http://r3girls.blogspot.com/2010/01/madi-is-three.html

January 11, 2010. Well, today was a great day! If you could have seen her face when she opened them it was pure excitement! We were happy everyone could make it. We had a good dinner, but MAN they were SO slow! They sang to her and brought her some balloons for her special day, and she watched them sing the first half of the birthday song CLUELESS that they were actually singing to HER! LOL I'm kidding - she is well worth it. But, it truly IS amazing how fast time flies! Subscribe to: Post Comments (Atom).

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Our Three Girls: December 2009

http://r3girls.blogspot.com/2009_12_01_archive.html

December 26, 2009. What an AWESOME Christmas we had this year! There were SO many things to be thankful for, but I am most thankful for having everyone. On this special day. No hospital stays to worry about, and nobody sick. everyone was healthy and happy! Yesterday, Christmas Eve, we had dinner at Granny and Pa's, and then had our Christmas at Mom and Dad's where we opened some pretty cool presents: Carrie Underwood tickets (woohoo! But, seeing Carrie Underwood is a close second! And wife to a wonderful...

r3girls.blogspot.com r3girls.blogspot.com

Our Three Girls: Belly Drama

http://r3girls.blogspot.com/2010/01/belly-drama.html

January 10, 2010. From January 5th, 2009. Little did I know that, tonight, when Taylor ASKED us to take her g-tube/mini button out, it would end up being such a major and traumatic process. Ok so that sounds quite painful to me - anyone else out there think the same? In adult terms, it sorta sounds like "Shut the * %$ up and leave me the %$ # alone". Once the procedure was done, she was so relieved. She said, "It's in, mommy? You are such a blessing to this family and we love you! Whirlwind of A Week!

r3girls.blogspot.com r3girls.blogspot.com

Our Three Girls: Happy New Year - Goodbye 2009, Welcome 2010

http://r3girls.blogspot.com/2010/01/happy-new-year-goodbye-2009-welcome.html

January 1, 2010. Happy New Year - Goodbye 2009, Welcome 2010. Wow What a great beginning to a great New Year! I got to hang out with the girls all day, and then when Kenny got home from hunting, I got to go on a "mom and me" date with my little Brookie! I hope this is a great year, and I also have to say that I hope this New Year brings a cure or treatment for SMA. if not, at least we are one year closer! January 2, 2010 at 10:41 AM. Ahhh I cant wait to go on similiar mommy and me dates with mine. Al...

r3girls.blogspot.com r3girls.blogspot.com

Our Three Girls: January 2010

http://r3girls.blogspot.com/2010_01_01_archive.html

January 21, 2010. Whirlwind of A Week! This past week has been a whirlwind! So no school for Madi or Taylor at all this week, and we are waiting until the morning to see if Brooke goes today (Thursday) or not. So some other things about the week:. I uploaded Madi's birthday pictures yesterday. be sure to take a look if you want to! Tomorrow we are getting a hitch put on my van so that we can transport Taylor's powerchair wherever we go, whenever we need to take it! January 11, 2010. Too funny. When w...

r3girls.blogspot.com r3girls.blogspot.com

Our Three Girls: March 2009

http://r3girls.blogspot.com/2009_03_01_archive.html

March 26, 2009. Trip to Utah is Booked! This surgery takes place about every 6 months so they can go in and extend the rods as necessary to accommodate growth. Since I've noticed Taylor's spine curving as of late, I definitely want to have it checked out. There is also a new product called the titanium rib that I will talk to him about. It accomplishes the same thing, I'm just not exactly sure how :) so I will be inquiring! Subscribe to: Posts (Atom). Older Pictures of the Family. Fight SMA - Spinal Musc...

fortaylorshope.blogspot.com fortaylorshope.blogspot.com

Taylor's Hope: December 2009

http://fortaylorshope.blogspot.com/2009_12_01_archive.html

Saturday, December 26, 2009. Registration Form for the Taylor's Hope 5k for SMA. To be directed to the online registration. Form and to get all pertinent information for the 4th annual Taylor's Hope 5k for SMA. If you have any questions, please leave a comment below this post and I will get back to you as soon as possible. We appreciate you stopping in, and look forward to seeing you on May 15th, 2010! Subscribe to: Posts (Atom). Registration Form for the Taylors Hope 5k for SMA. View my complete profile.

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About SMA (Spinal Muscular Atrophy)

Saturday, December 26, 2009. What is Spinal Muscular Atrophy. Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. We are slowly, but surely, learning our way around. Subscribe to: Posts (Atom).

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