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a Cystic Fibrosis guide to Adventures | Nothing gets me more anxious than planning for CF before an Adventure.

Nothing gets me more anxious than planning for CF before an Adventure.

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a Cystic Fibrosis guide to Adventures | Nothing gets me more anxious than planning for CF before an Adventure. | acfguidetoadventures.wordpress.com Reviews

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Nothing gets me more anxious than planning for CF before an Adventure.

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No Rest For The Weary | a Cystic Fibrosis guide to Adventures

https://acfguidetoadventures.wordpress.com/2015/03/07/no-rest-for-the-weary

A Cystic Fibrosis guide to Adventures. Nothing gets me more anxious than planning for CF before an Adventure. No Rest For The Weary. March 7, 2015. That’s right. There is zero. When you have a genetic disease that affects your entire body, lots of things go wrong all the time. When you are the child of two parents with random medical problems on top of it, you’re basically a walking nightmare. Someone should probably put me in a bubble, a tinted one specifically. 8221; That was humbling. I walked out of ...

2

Disruption | a Cystic Fibrosis guide to Adventures

https://acfguidetoadventures.wordpress.com/2015/03/20/disruption

A Cystic Fibrosis guide to Adventures. Nothing gets me more anxious than planning for CF before an Adventure. March 20, 2015. We interurpt this post for a pee break. Actually, it’s mostly just my sleep it disrupts. As a young twenty-something I have to use the bathroom tops four times a day. Healthy? Don’t know, don’t care. But when I am on an IV I use the bathroom upwards of ten times. DANG IT, HOW CAN ANYONE DO THIS JOB AND STILL HAVE A JOB? There are so many nuisances, disruptions, living semi-indepen...

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Sleepless Nights | a Cystic Fibrosis guide to Adventures

https://acfguidetoadventures.wordpress.com/2015/04/25/sleepless-nights

A Cystic Fibrosis guide to Adventures. Nothing gets me more anxious than planning for CF before an Adventure. April 25, 2015. April 25, 2015. For the past week and a half I had been struggling getting a full nights sleep. Nothing seemed to help the drowsiness leave my body. Not 12 hours of sleep, not a coffee, nothing. 8220;Great, I am really gonna kick this off my body! This will end, I know. But I wish it only for the end of my life. Not at 23. Not today. Not tonight. Good night. Next Post →. Notify me...

4

Happy to announce | a Cystic Fibrosis guide to Adventures

https://acfguidetoadventures.wordpress.com/2015/03/25/happy-to-announce

A Cystic Fibrosis guide to Adventures. Nothing gets me more anxious than planning for CF before an Adventure. March 25, 2015. I have been PICC line free for the past four hours! And I thought there wasn’t more to learn! I’m happy that my brother who often has low function doesn’t mean his lungs are only functioning at 42%. That would really stink. Bottom line: WHEN YOUR PICCLINE IS OUT YOU ARE FREE. Sleepless Nights →. Leave a Reply Cancel reply. Enter your comment here. Address never made public).

5

Three Weeks | a Cystic Fibrosis guide to Adventures

https://acfguidetoadventures.wordpress.com/2015/03/10/three-weeks

A Cystic Fibrosis guide to Adventures. Nothing gets me more anxious than planning for CF before an Adventure. March 10, 2015. Two weeks ago I participated in a half marathon, I didn’t get a PR, or set any records. I didn’t run the whole time, and I didn’t hurt the whole time just at the end a whole lot. But dang it! I went 13.1 miles and didn’t stop to catch my breath! As I have gotten older I feel like my CF is less predictable. Any other CFers or CF lovies feel this way? Can I get an AMEN?

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Barbecue salmon and vegetables | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/22/bbq-salmon-vegetables

Barbecue salmon and vegetables. January 22, 2015. The olive oil is added last, so you can vary how much goes on each plate (there’s really no such thing as ‘too much’ olive oil in this dish). If you want to increase the fat content further, top the vegetables with some feta. Yummy. 2 150g salmon fillets, skin on. 2 zucchini, cut in half lengthwise, and then into 5mm thick slices lengthwise. 6 spring onions, outermost layer removed. Good quality olive oil for drizzling. Juice of half a lemon. You are comm...

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Thai beef salad | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/30/thai-beef-salad

January 30, 2015. The next timeI made it, I tried to add some extra fat into the recipe by mixing coconut milk powder into the dressing. It was so good I practically drank it. I’d also recommend the coconut milk version for anyone who doesn’t like too much chilli. 2 fresh red thai chillies, seeded and coarsely chopped. 1 stick lemongrass, coarsely chopped. 2/3 bunch fresh coriander. 1/3 cup lime juice. 1 tablespoon fish sauce. 1 tablespoon soy sauce. 2 tablespoons coconut milk powder. 400g been rump steak.

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Welcome back (and a meal plan) | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/18/welcome-back-and-a-meal-plan

Welcome back (and a meal plan). January 18, 2015. Hello everyone, it’s been a long time since I posted. I was busy with work, then busy with all the Christmas lead-up stuff, and then I went away. But now that life has settled down, I’m going to start blogging again. I’ve also decided to make a few changes to the blog. I’m going to move beyond just writing recipes to write some posts about life with CF (and life in general). Meal plan – Summer plan 1. Snacks – hummus and carrot sticks. Dinner – Out. Enter...

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12 things I learned from #12monthsofgoals | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/24/12-things-i-learned-from-12monthsofgoals

12 things I learned from #12monthsofgoals. January 24, 2015. Last year, rather than setting any new year’s resolutions, I set my sights a bit smaller – January resolutions. And then at the end of the month, having knocked almost all of those goals over, I started again. Setting new goals every month was really valuable for me, and this is what I learnt:. 1) Concrete goals, flexible path. 2) Focus on forming habits. 3) Find the projects that will make life better. 4) Some things aren’t right for me. Addre...

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tessfarrelly | CF Kitchen

https://cfkitchen.wordpress.com/author/tessfarrelly

All posts by tessfarrelly. A back-to-work meal plan. January 8, 2016. Well, by now I have survived my first week back at work. And of course, because it’s the new year, I had grand plans to bring lunch, eat well, save money, all the rest of it. I also received a couple of recipe books for Christmas, so I wanted to try them out. If you’re following this meal plan, the main things you need to do on the weekend are make the quinoa salad (recipe to follow next week) and the zucchini bites. This was a recipe ...

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DIY instant soup pots | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/20/diy-instant-soup-pots

DIY instant soup pots. January 20, 2015. I’ve seen a few different recipes for DIY instant noodles over the last couple of months, but never gotten around to trying them. Recently, I came across this recipe. On Pinterest and that inspired me to actually give it a go, and try to adapt it to a high-fat CF version, and a low-fat version for me. 1 container with a two-cup capacity. 1/2 a cup of bean sprouts. 2 tablespoons of chicken stock concentrate (if you don’t have this, a stock cube will do). To assembl...

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Meal planning when everything doesn’t go to plan | CF Kitchen

https://cfkitchen.wordpress.com/2015/02/01/meal-planning-when-everything-doesnt-go-to-plan

Meal planning when everything doesn’t go to plan. February 1, 2015. Last week was one of those weeks where we departed from our original meal plan quite a bit. Firstly we got to about 6:00 on Sunday without having done the shopping or having the energy to do it. At times like that, having a freezer full of leftovers is a life saver. The red curry below is one of my all time favourite freezer meal. By the time I did get to the shops (on Tuesday! Meal plan – Summer plan 2. Dinner – Red lentil curry. Lunch ...

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a Cystic Fibrosis guide to Adventures | Nothing gets me more anxious than planning for CF before an Adventure.

A Cystic Fibrosis guide to Adventures. Nothing gets me more anxious than planning for CF before an Adventure. April 25, 2015. April 25, 2015. For the past week and a half I had been struggling getting a full nights sleep. Nothing seemed to help the drowsiness leave my body. Not 12 hours of sleep, not a coffee, nothing. 8220;Great, I am really gonna kick this off my body! This will end, I know. But I wish it only for the end of my life. Not at 23. Not today. Not tonight. Good night. March 25, 2015. Actual...

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