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ACHANCEFORALEX.COM

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Meet Alex | achanceforalex.com Reviews
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DESCRIPTION
Check out http://achanceforalex.com!
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1 your subtitle text
2 home page
3 our story
4 alexs angels
5 dravet syndrome
6 4 paws
7 photos
8 guestbook
9 meet alex
10 committed
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Meet Alex | achanceforalex.com Reviews

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1

Dravet Syndrome

http://www.achanceforalex.com/Dravet_Syndrome.html

Praying for a Miracle. Hoping for a cure. Fighting for a chance for Alex. Moms Journal and Updates. What is Dravet Syndrome? During the second year of life, progressive regression of aquired skills and developmental delays are usually observed to varying degrees and additional neurological symptoms, such as ataxia may appear. Researchers have documented many different mutations of the SCN1A gene that result in febrile, sodium channel epilepsies, however most of them do not result in the severe form known...

2

Photos

http://www.achanceforalex.com/Photos.html

Praying for a Miracle. Hoping for a cure. Fighting for a chance for Alex. What an honor.we met Dr. Dravet! Alex and Sky Bonding. Finally Alex gets to have some fun too! Usually pools are unsafe for Alex because any change in his core temperate causes him to have a seizure. Any indoor heated pool is the only way to go! 18th Annual Bruce Cole Dinner sponsored by the Fairfield Conservation and Sportsman Association. Alex was the Guest of Honor! 48 hour EEG at home. EEG at MonteFiore Hospital in NY.

3

Our Story

http://www.achanceforalex.com/Home_Page.html

Praying for a Miracle. Hoping for a cure. Fighting for a chance for Alex. Moms Journal and Updates. When I found out I was having my third child I was so excited. My life was going just as I planned. I was confident in my motherly duties and that I knew what to expect. We started to prepare for our new arrival. We got the minivan and a bigger home to accommodate everyone. But there was nothing I could have done that would prepare me for the road ahead. Finally, the seizure stopped and Alex was sleeping&#...

4

Alex's Angels

http://www.achanceforalex.com/Alex_s_Angles.html

Praying for a Miracle. Hoping for a cure. Fighting for a chance for Alex. Moms Journal and Updates. Thank you to ALL the wonderful people that have been so supportive. We are truly humbled by the outpouring of support and compassion for Alex by our Community, Family, and Friends. We feel blessed to be surrounded by such amazing people! I especially want to thank some very special people that have gone above and beyond to help Alex. I am eternally grateful.thank you, thank you, thank you. Everything he ne...

5

Meet Alex

http://www.achanceforalex.com/Home_page_RTCQ.php

Praying for a Miracle. Hoping for a cure. Fighting for a chance for Alex. Moms Journal and Updates. Alex is a lovable nine year old boy with a rare and severe seizure disorder called Dravet (Dra-vay) Syndrome. The most common question I get when people hear that Alex suffers from seizures is if he will out grow them. The answer to that question is no. Dravet is a lifelong condition where seizures will always persist, despite treatment. The truth is that not all seizures can be controlled with medication.

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Meet Alex

Praying for a Miracle. Hoping for a cure. Fighting for a chance for Alex. Moms Journal and Updates. Alex is a lovable nine year old boy with a rare and severe seizure disorder called Dravet (Dra-vay) Syndrome. The most common question I get when people hear that Alex suffers from seizures is if he will out grow them. The answer to that question is no. Dravet is a lifelong condition where seizures will always persist, despite treatment. The truth is that not all seizures can be controlled with medication.

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