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MPS IV A - Morquio Syndrome: Adnin & Aqilah

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Monday, 9 April 2012. Harian Metro - Budak Istimewa LSD. We appear again in a local malay newspaper. Monday, April 09, 2012. Wednesday, 29 February 2012. And sign up as a friend. Wednesday, February 29, 2012. Tuesday, 7 February 2012. 2nd appearance on TV. V=yECd3tl2...

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MPS IV A - Morquio Syndrome: Adnin & Aqilah | adninaqilah.blogspot.com Reviews

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MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Monday, 9 April 2012. Harian Metro - Budak Istimewa LSD. We appear again in a local malay newspaper. Monday, April 09, 2012. Wednesday, 29 February 2012. And sign up as a friend. Wednesday, February 29, 2012. Tuesday, 7 February 2012. 2nd appearance on TV. V=yECd3tl2...

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MPS IV A - Morquio Syndrome: Adnin & Aqilah | adninaqilah.blogspot.com Reviews

https://adninaqilah.blogspot.com

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Monday, 9 April 2012. Harian Metro - Budak Istimewa LSD. We appear again in a local malay newspaper. Monday, April 09, 2012. Wednesday, 29 February 2012. And sign up as a friend. Wednesday, February 29, 2012. Tuesday, 7 February 2012. 2nd appearance on TV. V=yECd3tl2...

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MPS IV A - Morquio Syndrome: Adnin & Aqilah: January 2011

http://adninaqilah.blogspot.com/2011_01_01_archive.html

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Friday, 28 January 2011. More and more appointments. During the recent visit for MRI, the kids were scared to go into the 'tunnel'. No choice, I have to accompany them. Don't know how much radiation has got into me. Will it make my cancer worse?

2

MPS IV A - Morquio Syndrome: Adnin & Aqilah: February 2011

http://adninaqilah.blogspot.com/2011_02_01_archive.html

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Thursday, 24 February 2011. We have planned for the surgeries to be held during a long school holidays which will be in November. The kids also need corrective surgeries at their hips because their bones are a bit out of the sockets so as to prevent dislocation.

3

MPS IV A - Morquio Syndrome: Adnin & Aqilah: Star newspaper coverage

http://adninaqilah.blogspot.com/2011/07/star-newspaper-coverage.html

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Monday, 25 July 2011. Height wise, Adnin shows a very good improvement, she was 98 cm and Aqilah 92 cm using the hospital's scale. I've yet to measure them at home. Monday, July 25, 2011. President of Persatuan Penaja SJKC Ladang Hillside. 30 July 2011 at 11:05.

4

MPS IV A - Morquio Syndrome: Adnin & Aqilah: 2nd appearance on TV

http://adninaqilah.blogspot.com/2012/02/2nd-appearance-on-tv.html

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Tuesday, 7 February 2012. 2nd appearance on TV. Shortly after their appearance in Wanita Hari Ini, they appeared again in 'Nona' of the same TV3. Tuesday, February 07, 2012. Subscribe to: Post Comments (Atom). 2nd appearance on TV.

5

MPS IV A - Morquio Syndrome: Adnin & Aqilah: May 2011

http://adninaqilah.blogspot.com/2011_05_01_archive.html

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Wednesday, 18 May 2011. Rare Disorder and Medical Genetics Conference. The topic is really close to my heart and I'm sure the words will flow out smoothly from my mouth. We have been invited to the launching of Malaysian Rare Disorders Society’s (MRDS) book &#8...

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Breast Cancer: Another trip to Guangzhou

http://breastcancernott.blogspot.com/2015/01/another-trip-to-guangzhou.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Friday, 9 January 2015. Another trip to Guangzhou. In front of Fuda South. BRCA Stage 4 sisters manage to climb the Great Wall of China :-). With Prof Xu and the team. Alhamdullillah. I am happy for you. Thanks for sharing your experience. 20 January 2015 at 08:32. Subscribe to: Post Comments (Atom). Jan 2013 Stage 4 with mets at the sternum and lung. Start on IV chemo. Prior to that, I had B17 injections. As to date, I'm doi...

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Breast Cancer: September 2014

http://breastcancernott.blogspot.com/2014_09_01_archive.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Tuesday, 2 September 2014. Done with fasting and Eid celebration! In front of the hospital. We spent around one week in Fuda as per the itinerary. I brought along my eldest daughter who was on her semester break, to help us around. All accessories were around like towels, shower creme, shampoo and even toothbrush and toothpaste! At the hospital lobby I look more like a tourist than a patient :-). Day 5 - Another resting day I...

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Breast Cancer: January 2015

http://breastcancernott.blogspot.com/2015_01_01_archive.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Friday, 23 January 2015. Follow me to fight against cancer - Prof Xu. Latest pic - kawan belanja makan la, kat café Canseleri. Few weeks in the office, quite enjoy seeing faces of my colleagues their expressions are like seeing someone rising from the dead :-) hah! Stage 4 can recover meh? With Allah's will, and strong determination to get well, in shaa Allah, whatever stage you are, you will recover. Friday, 9 January 2015.

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Breast Cancer: February 2015

http://breastcancernott.blogspot.com/2015_02_01_archive.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Monday, 23 February 2015. Celebrating 24th Wedding Anniversary. Alhamdulillah, blessed with 24 years of marriage.pray for many more years to come. The above photo was taken during my cousin's wedding last Saturday. It was a kampung style wedding with rewang, own cooking and of course the pelamin was homemade too :-) Not bad eh! In the afternoon, I helped clean the chicken 70 of them! Family from my mom's side. Around ten days...

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Breast Cancer: July 2012

http://breastcancernott.blogspot.com/2012_07_01_archive.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Tuesday, 24 July 2012. Exactly two months after my last post, I'm glad to annouce that I'm almost done with my PhD. I had my viva yesterday and Alhamdulillah I passed with minor correction. What a relief! I just need to do the amendments and submit the hardbound copy to the university. The stress of finishing off the PhD is over and now I can concentrate on my cancer battle. Subscribe to: Posts (Atom). Breast Cancer Care UK.

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Breast Cancer: November 2012

http://breastcancernott.blogspot.com/2012_11_01_archive.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Tuesday, 6 November 2012. As usual, during my birthday, I always get a present for myself :-) And guess what my birthday present for this year is - 18 day ozone treatment package! What do I get from the package? Shall I say that I have blood like a baby's now? This procedure will be done three times only, once everyweek. Comparing the unfiltered blood with the filtered one. This morning I had the microbubble blood - the way t...

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Breast Cancer: February 2013

http://breastcancernott.blogspot.com/2013_02_01_archive.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Wednesday, 13 February 2013. Stepping into 2013 with wrong foot! My girl after the surgery. Well and fine now. The stress has taken its toll and on 3rd January, 2013, I myself was admitted to the hospital because my tumor bled heavily. It has been bleeding since few months back but it was controllable. That morning, the tumor must have hit a big vein and I could not control it anymore - surrender! Subscribe to: Posts (Atom).

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Breast Cancer: Road to recovery

http://breastcancernott.blogspot.com/2013/09/exactly-seven-months-since-my-last.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Friday, 13 September 2013. Exactly seven months since my last posting! Some may think that I'm gone already because of the long silence eh :-) Alhamdulillah, I'm well and fine. The CT Scan done on Feb 8, 2013 showed "a huge lobulated heterogenous fungating mass.measuring 8.4 x 10.3 x 12.1 cm". Boy that was really big! Boy that was tough. ALhamdullilah. Take care Yatie. Love always.Aiza. 3 October 2013 at 10:56. Assalamualaiku...

breastcancernott.blogspot.com

Breast Cancer: September 2013

http://breastcancernott.blogspot.com/2013_09_01_archive.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Friday, 13 September 2013. Exactly seven months since my last posting! Some may think that I'm gone already because of the long silence eh :-) Alhamdulillah, I'm well and fine. The CT Scan done on Feb 8, 2013 showed "a huge lobulated heterogenous fungating mass.measuring 8.4 x 10.3 x 12.1 cm". Boy that was really big! Boy that was tough. Subscribe to: Posts (Atom). Dec 2014 Another trip to Fuda for immunotherapy and cryo.

breastcancernott.blogspot.com

Breast Cancer: Progress so far

http://breastcancernott.blogspot.com/2014/07/progress-so-far.html

I have it and I want my friends to be aware of it! Hence, this blog is created. Tuesday, 8 July 2014. I went to see the Ustaz every week day by day the pain went away and as at now I don't feel any pain anywhere. Though I went for an alternative treatment, I still seek the conventional method. During an appointment with the surgeon, he advised for another round of chemo to shrink the lump before having a mastectomy. I have no other choice and agreed to his proposal. ALHAMDULLILLAH, GLAD TO HEAR THAT YOU ...

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MPS IV A - Morquio Syndrome: Adnin & Aqilah

MPS IV A - Morquio Syndrome: Adnin and Aqilah. The story of Adnin and Aqilah who are diagnosed with this disease and what have been done to make their lives better. For better understanding, read postings from the very beginning - June 2008. Monday, 9 April 2012. Harian Metro - Budak Istimewa LSD. We appear again in a local malay newspaper. Monday, April 09, 2012. Wednesday, 29 February 2012. And sign up as a friend. Wednesday, February 29, 2012. Tuesday, 7 February 2012. 2nd appearance on TV. V=yECd3tl2...

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