adrakesprogress.blogspot.com

A Drake's Progress

Sunday, 17 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. What I haven’t said enough about is love. I don’t like who I used to be. I know what ...

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A Drake's Progress | adrakesprogress.blogspot.com Reviews

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Sunday, 17 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. What I haven’t said enough about is love. I don’t like who I used to be. I know what ...

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A Drake's Progress | adrakesprogress.blogspot.com Reviews

https://adrakesprogress.blogspot.com

Sunday, 17 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. What I haven’t said enough about is love. I don’t like who I used to be. I know what ...

INTERNAL PAGES

adrakesprogress.blogspot.com

1

A Drake's Progress: Unhinged

http://adrakesprogress.blogspot.com/2012/11/unhinged.html

Tuesday, 13 November 2012. Two hours sleep is not enough to survive on. It makes you slightly unhinged. Margaret Thatcher managed on four, and to be honest that explains a lot. Last night we had meltdown. I’m still trying to get to the bottom of why it happened, but so far I’m stumped. 120 minutes kip is not sufficient to keep the brain cells whirring fast enough to do the necessary sleuthing. I’m chalking it up to ‘just one of those days’. The volume got louder, the questions more off-kilter. This morni...

2

A Drake's Progress: Appointments

http://adrakesprogress.blogspot.com/2015/05/appointments.html

Saturday, 16 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. These are the appointments you have when you have a Prader-Willi person. Simple tem...

3

A Drake's Progress: Shame

http://adrakesprogress.blogspot.com/2015/05/shame.html

Sunday, 3 May 2015. My last blog post. Was about how my daughter, previously P.E. phobic, has recently started attending a Saturday morning disabled sports club. Last week, she didn’t go, however. The entire family overslept. There was no chance of getting her to the club in time to catch the minibus which was taking the kids to the swimming pool. She was disappointed, and her anxiety levels were starting to rise, as they usually do when plans are changed unexpectedly. Labels: Belle and Sebastian. Dark M...

4

A Drake's Progress: Eatiquette

http://adrakesprogress.blogspot.com/2015/05/foodiquette.html

Wednesday, 13 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. So I’ve come up with some etiquette advice about food. I'm calling it. 8221; when ...

5

A Drake's Progress: Love

http://adrakesprogress.blogspot.com/2015/05/love.html

Sunday, 17 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. What I haven’t said enough about is love. I don’t like who I used to be. I know what ...

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choosebetterorbest.blogspot.com

Choose Better OR Best: January 2015

http://choosebetterorbest.blogspot.com/2015_01_01_archive.html

Choose Better OR Best. I'm married to the Best Man in all humanity and a mother of three beautiful children. Just trying to keep life simple amid our unique challenges of mental and physical disabilities. Why "Better OR Best? Monday, January 5, 2015. I'm delighted to report that I'm now completely off of all my medications! I was standing over my kitchen sink, hands in the soapy water and eyes out the window. My mind was reflecting on 7 years ago when Justin and I moved to this home. We had 3 thi...I gue...

choosebetterorbest.blogspot.com

Choose Better OR Best: December 2014

http://choosebetterorbest.blogspot.com/2014_12_01_archive.html

Choose Better OR Best. I'm married to the Best Man in all humanity and a mother of three beautiful children. Just trying to keep life simple amid our unique challenges of mental and physical disabilities. Why "Better OR Best? Wednesday, December 10, 2014. What I Want You to Know About Empowerplus Supplements. J Scott Wilson has introduced me to the fact that Q96. Has the Empowerplus capsules. Or call The Q Sciences Success Team (385-374-6400). Some Things I Want You to Know About Q96. 6 If you'd like to ...

choosebetterorbest.blogspot.com

Choose Better OR Best: July 2014

http://choosebetterorbest.blogspot.com/2014_07_01_archive.html

Choose Better OR Best. I'm married to the Best Man in all humanity and a mother of three beautiful children. Just trying to keep life simple amid our unique challenges of mental and physical disabilities. Why "Better OR Best? Tuesday, July 22, 2014. The doctors place the sweetest little baby boy in my arms. He was screaming and I just smiled. I loved that sound! I know what it was like to have a baby not cry.not have the strength. I prayed for this! Happy 10th Birthday, Spencer Justin Kroff! I love your ...

thelodgerandus.blogspot.com

The Lodger and Us: May 2015

http://thelodgerandus.blogspot.com/2015_05_01_archive.html

The Lodger and Us. Our life with our son The Lodger, who has Prader-Willi Syndrome. Friday, 22 May 2015. The Lodger stood unaided for 49 seconds yesterday! In the world of most 2.5 year olds, this would not be big news but in The Lodgers world this is 'Hold the headline' news! We sneak physiotherapy into every activity, from practising standing in the back of Daddy's parked jeep to introducing new toys on a low table so he has to stand. As tough as daily physiotherapy is, it certainly pays off! The Lodge...

thelodgerandus.blogspot.com

The Lodger and Us: January 2015

http://thelodgerandus.blogspot.com/2015_01_01_archive.html

The Lodger and Us. Our life with our son The Lodger, who has Prader-Willi Syndrome. Saturday, 31 January 2015. This morning I woke up in a panic. I had one of those dreams that seemed so very realistic that I thought it was happening right at that moment. The Lodger was given an empty selection box with the task of completing a treasure hunt to fill it up with all its chocolate goods! Somewhere in the dream was the Easter Bunny without the PWS memo! Sometimes I think Prader-Willi will get the better of m...

theweemo.wordpress.com

No. 76: Internally Rant | Things to do in freelancing when you're bored

https://theweemo.wordpress.com/2011/10/10/no-76-internally-rant

Things to do in freelancing when you're bored. The clue's in the title. No 76: Internally Rant. It’s like having a small child sworn to secrecy on pain of never being allowed. With a copy of. We can’t even let it go. Because it wasn’t a tiny dog poo that arguably could have been tapped into the gutter in an emergency. It’s was a big Alsatian poo from a dog that clearly consumes the equivalent of a family-sized tub of hamsters daily.). And so we wander about, muttering like lunatics. No 76: Internally Rant.

theweemo.wordpress.com

No.73: Feel Big love For Gary Barlow | Things to do in freelancing when you're bored

https://theweemo.wordpress.com/2011/09/15/no-73-feel-big-love-for-gary-barlow

Things to do in freelancing when you're bored. The clue's in the title. No73: Feel Big love For Gary Barlow. Gary Rachid. Hang on. No. Ah whatever. He's LOVELY. FFS, who cares that GB once took drugs? Everyone with a fanny and some people with a penis love Gary Barlow! Ohdearmeno. We can’t have that.’. 8230;Because…look over there! An albatross with a vicar in its mouth! 8230;Oh it must have gone. What were we saying? Dunno Slice of toast? The English seem to have the social group mentality of Ted’s fath...

choosebetterorbest.blogspot.com

Choose Better OR Best: March 2015

http://choosebetterorbest.blogspot.com/2015_03_01_archive.html

Choose Better OR Best. I'm married to the Best Man in all humanity and a mother of three beautiful children. Just trying to keep life simple amid our unique challenges of mental and physical disabilities. Why "Better OR Best? Friday, March 6, 2015. Megan's Grocery List and Meal Plan. Does grocery shopping stress you out? These have become my best friend! I'll tell you why. I hang one of those Post-it notes on my kitchen cupboard door; there's one there everyday! School days are oatmeal, eggs or cereal da...

thelodgerandus.blogspot.com

The Lodger and Us: November 2014

http://thelodgerandus.blogspot.com/2014_11_01_archive.html

The Lodger and Us. Our life with our son The Lodger, who has Prader-Willi Syndrome. Saturday, 8 November 2014. Just smile and say its nice to meet you! 99% of people greet The Lodger like he's just any other kid- smile, joke, play etc., but then there's that 1%. The 1% of people I dread to see. O isn't his life going to be tough! O well that's your life over! Challenging times ahead for both you of.". The list goes on. I walked away fast! I'd love to add-. As a parent of someone with special, or as I lik...

choosebetterorbest.blogspot.com

Choose Better OR Best: May 2014

http://choosebetterorbest.blogspot.com/2014_05_01_archive.html

Choose Better OR Best. I'm married to the Best Man in all humanity and a mother of three beautiful children. Just trying to keep life simple amid our unique challenges of mental and physical disabilities. Why "Better OR Best? Wednesday, May 14, 2014. Older Kids vs Younger. So, we went today. We jumped in the car right after I checked my wallet to be sure I actually still had a library card. As we pulled up to the library, I hear from the back seat- "the library is a hotel! So, now we know what McDonalds ...

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A Drake's Progress

Sunday, 17 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. What I haven’t said enough about is love. I don’t like who I used to be. I know what ...

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