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Akaiya Jacelyn

Friday, June 24, 2011. We might have to make that our normal store =). Links to this post. Wednesday, June 15, 2011. Petite to plus size. I have really got to work on posting here more often. i come and read the blogs of other kiddos and i tell myself i should update akaiya's, but somehow i always get distracted and tell myself i'll do it tomorrow. well, school is out, kaiya and i are both footloose and fancy free at the moment, and i don't have anymore excuses so here we are. As you can see, the foot re...

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Akaiya Jacelyn | akaiyajacelyn.blogspot.com Reviews

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Friday, June 24, 2011. We might have to make that our normal store =). Links to this post. Wednesday, June 15, 2011. Petite to plus size. I have really got to work on posting here more often. i come and read the blogs of other kiddos and i tell myself i should update akaiya's, but somehow i always get distracted and tell myself i'll do it tomorrow. well, school is out, kaiya and i are both footloose and fancy free at the moment, and i don't have anymore excuses so here we are. As you can see, the foot re...

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1 akaiya jacelyn

2 shopping

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4 kelly

5 3 comments

6 it's awesome

7 1 comment

8 we're still here

9 2 comments

10 hair cut

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Akaiya Jacelyn | akaiyajacelyn.blogspot.com Reviews

https://akaiyajacelyn.blogspot.com

Friday, June 24, 2011. We might have to make that our normal store =). Links to this post. Wednesday, June 15, 2011. Petite to plus size. I have really got to work on posting here more often. i come and read the blogs of other kiddos and i tell myself i should update akaiya's, but somehow i always get distracted and tell myself i'll do it tomorrow. well, school is out, kaiya and i are both footloose and fancy free at the moment, and i don't have anymore excuses so here we are. As you can see, the foot re...

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akaiyajacelyn.blogspot.com

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Akaiya Jacelyn: March 2010

http://akaiyajacelyn.blogspot.com/2010_03_01_archive.html

Thursday, March 25, 2010. Well apparently that's all it took for kaiya to start putting on tons of weight! Well, maybe not quite.but she is packing on the pounds pretty quickly for herself. Links to this post. Tuesday, March 9, 2010. I feel like i should apologize to kaiya for subjecting her to substandard care. i feel like i should apologize to her school for not having any good answers to give them. Links to this post. Subscribe to: Posts (Atom). Here are a few of them. The list really goes on and on :).

2

Akaiya Jacelyn: January 2010

http://akaiyajacelyn.blogspot.com/2010_01_01_archive.html

Sunday, January 31, 2010. I even notice myself going to the lines in the grocery store that have people with disabilities doing the bagging.comfort in the known? Here i am dealing with 1 child. yeah, she's got some things going on, but for the most part she's pretty easy. she's getting heavy, but hey - i need to work out and get some muscle anyway! Links to this post. Saturday, January 2, 2010. New year = new skills. Happy new year everyone! Hopefully she made a new year's resolution to become mobile!

3

Akaiya Jacelyn: we're still here

http://akaiyajacelyn.blogspot.com/2011/02/were-still-here.html

Thursday, February 17, 2011. I was reminded awhile back that i have been neglecting akaiya's blog. i visit akaiya's friends blogs, but i haven't visited hers in awhile and wow.it's been a long time since i've written an update. life really does get in the way if you let it. Akaiya is getting fat. Akaiya still has seizures. She is now on 4 medications. it's crazy to think of the amount of medicine i put into her belly each day. how can she get this much medication and still have seizures? Wow,Kelly I am s...

4

Akaiya Jacelyn: October 2010

http://akaiyajacelyn.blogspot.com/2010_10_01_archive.html

Friday, October 29, 2010. Where did my baby go? I did something the other day i never really thought i would do. I bought kaiya her first bra. I know what you're thinking."this woman must be crazy! Isn't kaiya only 8 years old? What is wrong with her mom? She is getting some meat on her body too. the last weigh in has her at a whopping 45 lbs. she used to be all skin and bones. i was excited b/c i found some size 6 jeans in a slim. i brought them home and they were too small! Links to this post. I am Aka...

5

Akaiya Jacelyn: ketogenic diet

http://akaiyajacelyn.blogspot.com/2010/11/ketogenic-diet.html

Thursday, November 11, 2010. Akaiya had a check up with her neurologist the other day. my parents brought her b/c i had parent teacher conferences and couldn't take the day off of work. they had a lot of information to take in that's for sure! While they were there he also decided that he wanted her to start clinical physical therapy. so now we're calling around trying to find a place that has after school spots open - which is about like finding a needle in a haystack for sure. Here are a few of them.

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Lidia Teodora Dragomir: Teodora - Decembrie 2013

http://teodoradragomir.blogspot.com/2014/01/teodora-decembrie-2013.html

Duminică, 5 ianuarie 2014. Teodora - Decembrie 2013. Va las acum sa urmariti pozele. Va multumesc tuturor celor care ati fost alaturi de noi in anul 2013. Daca am avut harul sa sarbatorim alaturi de Teo cel de-al patrulea Craciun impreuna, asta se datoreaza si voua, celor care ne sustineti in rugaciunile voastre. Dumnezeu sa va rasplateasca tuturor! Pentru a putea vedea pozele, accesati PAGINA. 5 ianuarie 2014, 10:39. 8 ianuarie 2014, 12:12. Abonați-vă la: Postare comentarii (Atom). Fiecare copil cu tris...

wndrfllymde.blogspot.com

Wonderfully Made...: April 2011

http://wndrfllymde.blogspot.com/2011_04_01_archive.html

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey. Sunday, April 24, 2011. It certainly been a long winter! The past few months varying members of our Trisomy. Experience t...

wndrfllymde.blogspot.com

Wonderfully Made...: March 2011

http://wndrfllymde.blogspot.com/2011_03_01_archive.html

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey. Monday, March 21, 2011. Alyssa's first Phillies game! They played the Mets and won! This inexpensive walker is a favorite...

wndrfllymde.blogspot.com

Wonderfully Made...: April 2012

http://wndrfllymde.blogspot.com/2012_04_01_archive.html

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey. Wednesday, April 25, 2012. 65279;. August 2011 - Prior to surgery to correct scoliosis. Sticks are toys too,right?

wndrfllymde.blogspot.com

Wonderfully Made...: February 2011

http://wndrfllymde.blogspot.com/2011_02_01_archive.html

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey. Saturday, February 5, 2011. Alyssa wearing her new big girl glasses. Since I last posted we did welcome a new little one ...

annabelgrace.blogspot.com

By God's Grace: 7/7/13 - 7/14/13

http://annabelgrace.blogspot.com/2013_07_07_archive.html

The life story of Annabel Grace Shelander. living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have. Wednesday, July 10, 2013. Best made summer plans. I am sorry but my pictures went crazy and all ended up at the bottom. I tried to move them into place and they just won't go. So below are the pictures that went with the text. As we do have a pool at home she does spend sometime in the pool when we are home. As you can tell she has eyes only for her Ms. Ann. So for ...

wndrfllymde.blogspot.com

Wonderfully Made...: July 2011

http://wndrfllymde.blogspot.com/2011_07_01_archive.html

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey. Friday, July 15, 2011. You know I wouldn’t miss updating you today. Baby girl is 3! Subscribe to: Posts (Atom). Http:/ ww...

wndrfllymde.blogspot.com

Wonderfully Made...: August 2013

http://wndrfllymde.blogspot.com/2013_08_01_archive.html

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey. Tuesday, August 20, 2013. Cake made by K.our friend Hannah). She also loves, music, singing, toys and the typical stuff o...

annabelgrace.blogspot.com

By God's Grace: 4/28/13 - 5/5/13

http://annabelgrace.blogspot.com/2013_04_28_archive.html

The life story of Annabel Grace Shelander. living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have. Friday, May 3, 2013. Annabel also had a sleep study which again confirms severe sleep apnea. She will go in for anothe. Sleep study soon to see what can be done with a bi-pap. We are looking forward to summer and spending time in the pool and also going to the beach! I am truly trying to update her blog more often. Links to this post. Subscribe to: Posts (Atom).

wndrfllymde.blogspot.com

Wonderfully Made...: September 2010

http://wndrfllymde.blogspot.com/2010_09_01_archive.html

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey. Tuesday, September 28, 2010. Sad news from Mike and Melanie. Sad news from Mike and Melanie. Monday, September 13, 2010.

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Akaiya Jacelyn

Friday, June 24, 2011. We might have to make that our normal store =). Links to this post. Wednesday, June 15, 2011. Petite to plus size. I have really got to work on posting here more often. i come and read the blogs of other kiddos and i tell myself i should update akaiya's, but somehow i always get distracted and tell myself i'll do it tomorrow. well, school is out, kaiya and i are both footloose and fancy free at the moment, and i don't have anymore excuses so here we are. As you can see, the foot re...

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