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Alabama Friends of the Cystic Fibrosis Foundation: Home

The Alabama Friends of the Cystic Fibrosis Foundation is comprised of 3 families with children affected by cystic fibrosis, and University of Alabama at Birmingham researchers that work in this field. The group is dedicated to raising funds and obtaining sponsorships through its annual Blow Away 5k race. Our next race will be held on November 15th, 2014. in the Trussville Mall. What is cystic fibrosis (CF)? Subscribe to: Posts (Atom). Simple template. Powered by Blogger.

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Alabama Friends of the Cystic Fibrosis Foundation: Home | alabamafriendsofcff.com Reviews
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The Alabama Friends of the Cystic Fibrosis Foundation is comprised of 3 families with children affected by cystic fibrosis, and University of Alabama at Birmingham researchers that work in this field. The group is dedicated to raising funds and obtaining sponsorships through its annual Blow Away 5k race. Our next race will be held on November 15th, 2014. in the Trussville Mall. What is cystic fibrosis (CF)? Subscribe to: Posts (Atom). Simple template. Powered by Blogger.
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Alabama Friends of the Cystic Fibrosis Foundation: Home | alabamafriendsofcff.com Reviews

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The Alabama Friends of the Cystic Fibrosis Foundation is comprised of 3 families with children affected by cystic fibrosis, and University of Alabama at Birmingham researchers that work in this field. The group is dedicated to raising funds and obtaining sponsorships through its annual Blow Away 5k race. Our next race will be held on November 15th, 2014. in the Trussville Mall. What is cystic fibrosis (CF)? Subscribe to: Posts (Atom). Simple template. Powered by Blogger.

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Alabama Friends of the Cystic Fibrosis Foundation: Founding Families-The McCains

http://www.alabamafriendsofcff.com/p/founding-families-mccains.html

Jake- 11 (not a carrier for CF). Jeremy-4 (diagnosed at age 1 month through newborn screening). Justin -9 (diagnosed at age 5). Joseph-4 months (diagnosed at age 1 month through newborn screening). Justin is currently on a new drug, Kalydeco (Ivacaftor), that was approved recently by the FDA. We are thrilled that he is showing signs of the drug helping him. He no longer has stomach aches. He is growing and gaining weight. His lung function has also improved. Subscribe to: Posts (Atom).

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Alabama Friends of the Cystic Fibrosis Foundation: Founding Families-The Ryers

http://www.alabamafriendsofcff.com/p/the-families-behind-our-foundation.html

Jonathan, Debbie, Hope (14) and Zach (12). When they are well, they each take over 35 pills a day just to stay healthy and do chest PT twice a day for 30 minutes each time. They also do several breathing treatments every day to help their lungs stay healthy. These include putting salt back in their airways, thinning of the mucus in the airways, and antibiotics. Zach is 12 years old and loves running track, playing the drums at our church, and hopes to take up karate one day soon.

3

Alabama Friends of the Cystic Fibrosis Foundation: Board of Directors

http://www.alabamafriendsofcff.com/p/board-of-directors.html

Vice President of Development. Vice President of Marketing. Subscribe to: Posts (Atom). Simple template. Powered by Blogger.

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Alabama Friends of the Cystic Fibrosis Foundation: Home

The Alabama Friends of the Cystic Fibrosis Foundation is comprised of 3 families with children affected by cystic fibrosis, and University of Alabama at Birmingham researchers that work in this field. The group is dedicated to raising funds and obtaining sponsorships through its annual Blow Away 5k race. Our next race will be held on November 15th, 2014. in the Trussville Mall. What is cystic fibrosis (CF)? Subscribe to: Posts (Atom). Simple template. Powered by Blogger.

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