ALAGILLE.ORG

sashabella.blogspot.com

Sasha Bella Stein Blumberg Forever 2143124: November 2012

http://sashabella.blogspot.com/2012_11_01_archive.html

Sasha Bella Stein Blumberg Forever 2143124. NICU parent liason position. A Parent Liaison role has just been advertised for SickKids NICU. This is a first paid parent role in the NICU to the best of my knowledge and an amazing opportunity to make an incredible difference in the lives of families and children when they are most vulnerable. Please circulate widely. Temporary Fixed-term (0.8 – 1.0 FTE). 30 hours per week (0.8 FTE). 8226; Graduate parent of NICU ( must be one year post discharge). External c...

drmoura.com

Patient Forms | Rossana Moura, M.D.

http://www.drmoura.com/links.html

Rossana Moura, M.D. Board Certified, Gastroenterology/Hepatology/Gastrointestinal Endoscopy. Rossana Moura, M.D. Links of Interest to Our Patients. American Association for the Study of Liver Diseases (AASLD). American College of Gastroenterology. American Dietetic Association (ADA). American Hemochromatosis Society Inc. (AHS). American Liver Foundation (ALF). American Pseudo-Obstruction and Hirschsprungs Disease Society Inc. (APHS). American Society for Gastrointestinal Endoscopy. The Oley Foundation Inc.

sashabella.blogspot.com

Sasha Bella Stein Blumberg Forever 2143124: Family invitation to SickKids Patient Safety Symposium which includes celebrated family centered care adviser Juliette Schlucter presenting and facilitating a breakout

http://sashabella.blogspot.com/2012/06/family-invitation-to-sickkids-patient.html

Sasha Bella Stein Blumberg Forever 2143124. Family invitation to SickKids Patient Safety Symposium which includes celebrated family centered care adviser Juliette Schlucter presenting and facilitating a breakout. This year in particular, we are extremely proud to have the patient/family experience represented in our symposium agenda. Or email Rita Damignani at rita.damignani AT sickkids.ca . We hope you can join us! Friday, June 15, 2012. Palliative Nursing Care Specialist Service Centre. The Fund suppor...

sashabella.com

Alagille Syndrome Resources

http://www.sashabella.com/alagille-syndrome-resources.html

The Alagile Syndrome Alliance. Alagille Syndrome Message Board. Signup for the CLiC Patient Contact Registry. To be contacted in the future about clinical research opportunities. Discovery of Alagille Syndrome. Symptoms of Alagille Syndrome. Nutritional malabsorpotion, jaundice, itching due to build up of bile salts, lowered oxygen saturations. And please read about three and a half year old Larson's carepages. The Cholestatic Liver Disease Consortium (CLiC). Is a collaborative team of doctors, nurses, r...

datagenno.com

Foundations, Datagenno Interactive Research

http://www.datagenno.com/foundations

Foundations, Datagenno Interactive Research. Go to top↑.

childrennetwork.org

Childhood Liver Disease Research Network (ChiLDReN) Study:

https://childrennetwork.org/families.aspx

Forgot Username or Password? The Childhood Liver Disease Research Network strives to provide information and support to individuals and families affected by liver disease through its many research programs. The links below provide useful information for parents and patients about the diseases we study:. PDF en Español. Bile acid synthesis and metabolism defects. Cystic Fibrosis liver disease. Progressive familial intrahepatic cholestasis. PDF en Español. Neonatal Liver Disease Brochure. Tualatin, OR 97062.

sashabella.blogspot.com

Sasha Bella Stein Blumberg Forever 2143124: NICU parent liason position

http://sashabella.blogspot.com/2012/11/nicu-parent-liason-position.html

Sasha Bella Stein Blumberg Forever 2143124. NICU parent liason position. A Parent Liaison role has just been advertised for SickKids NICU. This is a first paid parent role in the NICU to the best of my knowledge and an amazing opportunity to make an incredible difference in the lives of families and children when they are most vulnerable. Please circulate widely. Temporary Fixed-term (0.8 – 1.0 FTE). 30 hours per week (0.8 FTE). 8226; Graduate parent of NICU ( must be one year post discharge). External c...

familyvoicesohio.org

National Resources

http://www.familyvoicesohio.org/National_Resources.html

Applying for Grants 101. Research Studies in Ohio. Youth and Young Adults. National Adrenal Diseases Foundation. Alveolar Capillary Dysplasia Association. American Syringomyelia and Chiari Alliance Project. Amniotic Banding Syndrome (ABS). Arthrogryposis Multiplex Congenita Support. Asthma and Allergy Foundation of America. Autism Society of America. OASIS Online Asperger Syndrome Information and Support. Http:/ blog.myautismteam.com. American Autoimmune Related Diseases Association. Chronic Granulomatou...

sashabella.blogspot.com

Sasha Bella Stein Blumberg Forever 2143124: September 2011

http://sashabella.blogspot.com/2011_09_01_archive.html

Sasha Bella Stein Blumberg Forever 2143124. Are you still sad? Here is a lovely reflection on bereavement rituals or, as the author describes them, memory traditions. Someone asked me recently if I am still sad about the death of my daughter, Natalie. I was surprised by the question and even a little offended. Of course I’m still sad, but when I stopped to reflect, I realized that the sadness has changed in the nearly 12 years since she died. On the first Death Day that our family could not be together, ...

sashabella.blogspot.com

Sasha Bella Stein Blumberg Forever 2143124: Father's palliative parenting grief research poster

http://sashabella.blogspot.com/2012/02/fathers-palliative-parenting-grief.html

Sasha Bella Stein Blumberg Forever 2143124. Father's palliative parenting grief research poster. The poster for "Fathers' Experiences with Parenting and Grief: Unique Considerations in Caring and Research in Palliative Care" has been accepted at the Hospice Palliative Care Ontario 2012 conference. Learning how a parent can participate in family centered care research has been an experience we also hope to document. This poster presents preliminary findings and emphasized a desire for peer support. The Fu...