ALEXISAMBER.BLOGSPOT.COM

ALEXIS AMBER

My name is Alexis Amber and my Mom, Lisa helped me to put my page together. We live on Long Island, New York in the USA. 9/23/2008. Tuesday, September 23, 2008. If you would like to read futther information on CDKL5, please go to http:/ www.cdkl5.com/. Our Journey with CDKL5, Atypical Rett Syndrome. Mutations in the CDKL5 gene are have been found in girls with Atypical Rett Syndrome and boys and girls with X-linked infantile spasm syndrome (ISSX), West Syndrome and early onset seizures. At the moment tes...

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ALEXIS AMBER | alexisamber.blogspot.com Reviews

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My name is Alexis Amber and my Mom, Lisa helped me to put my page together. We live on Long Island, New York in the USA. 9/23/2008. Tuesday, September 23, 2008. If you would like to read futther information on CDKL5, please go to http:/ www.cdkl5.com/. Our Journey with CDKL5, Atypical Rett Syndrome. Mutations in the CDKL5 gene are have been found in girls with Atypical Rett Syndrome and boys and girls with X-linked infantile spasm syndrome (ISSX), West Syndrome and early onset seizures. At the moment tes...

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ALEXIS AMBER | alexisamber.blogspot.com Reviews

https://alexisamber.blogspot.com

My name is Alexis Amber and my Mom, Lisa helped me to put my page together. We live on Long Island, New York in the USA. 9/23/2008. Tuesday, September 23, 2008. If you would like to read futther information on CDKL5, please go to http:/ www.cdkl5.com/. Our Journey with CDKL5, Atypical Rett Syndrome. Mutations in the CDKL5 gene are have been found in girls with Atypical Rett Syndrome and boys and girls with X-linked infantile spasm syndrome (ISSX), West Syndrome and early onset seizures. At the moment tes...

INTERNAL PAGES

alexisamber.blogspot.com

1

ALEXIS AMBER: Our Journey with CDKL5, Atypical Rett Syndrome

http://alexisamber.blogspot.com/2008/09/my-journey-with-cdkl5-rett-atypical.html

My name is Alexis Amber and my Mom, Lisa helped me to put my page together. We live on Long Island, New York in the USA. 9/23/2008. Tuesday, September 23, 2008. Our Journey with CDKL5, Atypical Rett Syndrome. Mutations in the CDKL5 gene are have been found in girls with Atypical Rett Syndrome and boys and girls with X-linked infantile spasm syndrome (ISSX), West Syndrome and early onset seizures. At the moment testing for CDKL5 is limited to children with a diagnosis of Rett Syndrome who have been tested...

2

ALEXIS AMBER: CDKL5

http://alexisamber.blogspot.com/2008/09/cdkl5.html

My name is Alexis Amber and my Mom, Lisa helped me to put my page together. We live on Long Island, New York in the USA. 9/23/2008. Tuesday, September 23, 2008. If you would like to read futther information on CDKL5, please go to http:/ www.cdkl5.com/. January 4, 2009 at 7:05 AM. November 22, 2009 at 3:21 AM. December 22, 2009 at 1:09 AM. January 25, 2010 at 11:57 AM. September 7, 2011 at 5:42 PM. Subscribe to: Post Comments (Atom). Our Journey with CDKL5, Atypical Rett Syndrome. View my complete profile.

3

ALEXIS AMBER: September 2008

http://alexisamber.blogspot.com/2008_09_01_archive.html

My name is Alexis Amber and my Mom, Lisa helped me to put my page together. We live on Long Island, New York in the USA. 9/23/2008. Tuesday, September 23, 2008. If you would like to read futther information on CDKL5, please go to http:/ www.cdkl5.com/. Our Journey with CDKL5, Atypical Rett Syndrome. Mutations in the CDKL5 gene are have been found in girls with Atypical Rett Syndrome and boys and girls with X-linked infantile spasm syndrome (ISSX), West Syndrome and early onset seizures. At the moment tes...

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cdkl5.de.tl

cdkl5 - Geschichten anderer Betroffener

http://cdkl5.de.tl/Geschichten-anderer-Betroffener.htm

Auch diese Kinder leiden an einer Mutation im CDKL5 Gen:. Vegard - http:/ vegardslife.blogspot.com/. Asha, Bree and Glyn. Http:/ ourcdkl5journey.blogspot.com/. Http:/ www.myspace.com/ourlittleangel2006. Http:/ leahrosebarnes.blogspot.com/. Http:/ alexisamber.blogspot.com/. Http:/ cdklklc5.blogspot.com/. Http:/ www.freewebs.com/hannahlouisesmith. Http:/ www.jadescdkl5journey.blogspot.com. Http:/ www.izabellabaker.com. Http:/ www.mialoudon.co.uk. Http:/ gunnersstory.blogspot.com/.

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: May 2008

http://jadescdkl5journey.blogspot.com/2008_05_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, May 28, 2008. T and Jade being silly! As you can see by the photos, we finally received our waiver to begin building again! That's our news for now...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: March 2012

http://jadescdkl5journey.blogspot.com/2012_03_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, March 21, 2012. Sooooooo.it's been a while :). So, we head back next week for another consult with the epileptologist and a follow-up with her new ...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: December 2008

http://jadescdkl5journey.blogspot.com/2008_12_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, December 31, 2008. Wishing all of you the very best in 2009! Links to this post. Tuesday, December 23, 2008. On top of all of this crap, Jade's run...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: January 2009

http://jadescdkl5journey.blogspot.com/2009_01_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, January 23, 2009. While we were waiting on the lab results, our alternative to the soy was to feed her baby food (duh! Why didn't I think of that?

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: May 2009

http://jadescdkl5journey.blogspot.com/2009_05_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Tuesday, May 26, 2009. I can't believe it's been since February that I've posted! We have a new game called, "Yay, Jade! Links to this post. Thanks for visiti...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: November 2008

http://jadescdkl5journey.blogspot.com/2008_11_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, November 28, 2008. What I am thankful for. I suppose another update is long overdue :) First off, let's just say the dog is sucking the life out of me!

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: September 2008

http://jadescdkl5journey.blogspot.com/2008_09_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Tuesday, September 30, 2008. Tomorrow we leave for Ireland! Pray we make it there and back in one piece (pretty morbid, huh? Links to this post. Please look a...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: October 2008

http://jadescdkl5journey.blogspot.com/2008_10_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, October 31, 2008. Links to this post. Friday, October 24, 2008. Links to this post. Wednesday, October 22, 2008. He's doing well so far! It obviously ...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: December 2007

http://jadescdkl5journey.blogspot.com/2007_12_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Sunday, December 30, 2007. Thanks to everyone for your posts. I'm glad people are reading the blog (should I be? Our nanny is now getting settled in and the k...

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My name is Alexis Amber and my Mom, Lisa helped me to put my page together. We live on Long Island, New York in the USA. 9/23/2008. Tuesday, September 23, 2008. If you would like to read futther information on CDKL5, please go to http:/ www.cdkl5.com/. Our Journey with CDKL5, Atypical Rett Syndrome. Mutations in the CDKL5 gene are have been found in girls with Atypical Rett Syndrome and boys and girls with X-linked infantile spasm syndrome (ISSX), West Syndrome and early onset seizures. At the moment tes...

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