ALEXISORAYA.TRIPOD.COM

The Official Alexi Soraya Site

The Official Alexi Soraya Site. All About Bone Density. OI Centers of Excellence. Click to see another source of pics and info on me! I am number four and I couldn't wait to arrive soooooooo at 35 weeks. Alexi Soraya arrived on June 30th 2002! June 2006 slide show at the beach. On April 21st my mom brought home my newest brother from Bulgaria.he has OI like me. I am 6 days old here. Look at Me NOW. Alexi at 3.75 years May 2006. Please get in touch with any comments or reactions to my site.

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The Official Alexi Soraya Site | alexisoraya.tripod.com Reviews

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The Official Alexi Soraya Site. All About Bone Density. OI Centers of Excellence. Click to see another source of pics and info on me! I am number four and I couldn't wait to arrive soooooooo at 35 weeks. Alexi Soraya arrived on June 30th 2002! June 2006 slide show at the beach. On April 21st my mom brought home my newest brother from Bulgaria.he has OI like me. I am 6 days old here. Look at Me NOW. Alexi at 3.75 years May 2006. Please get in touch with any comments or reactions to my site.

<META> KEYWORDS

1 all about oi

2 about me

3 photo album page

4 favorite links

5 visiting holland

6 alexi and rods

7 for medical professionals

8 rodding in oi

9 contact me

10 what's new

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all about oi,about me,photo album page,favorite links,visiting holland,alexi and rods,for medical professionals,rodding in oi,contact me,what's new

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The Official Alexi Soraya Site | alexisoraya.tripod.com Reviews

https://alexisoraya.tripod.com

The Official Alexi Soraya Site. All About Bone Density. OI Centers of Excellence. Click to see another source of pics and info on me! I am number four and I couldn't wait to arrive soooooooo at 35 weeks. Alexi Soraya arrived on June 30th 2002! June 2006 slide show at the beach. On April 21st my mom brought home my newest brother from Bulgaria.he has OI like me. I am 6 days old here. Look at Me NOW. Alexi at 3.75 years May 2006. Please get in touch with any comments or reactions to my site.

INTERNAL PAGES

alexisoraya.tripod.com

1

Visiting Holland

http://alexisoraya.tripod.com/id15.html

All About Bone Density. OI Centers of Excellence. The Official Alexi Soraya Site. A SNOWFLAKE FELL FROM HEAVEN ONE DAY,. INTO MY HEART, FOREVER TO STAY. FRAGILE AND PRECIOUS,LIKE CHINA SO FINE,. BEAUTIFUL AND DELICATE, AND ONE OF A KIND. HOW CAN I HOLD THIS SNOWFLAKE SO DEAR,. WHAT IF I BREAK IT IS MY GREATEST FEAR. BUT HOLD IT I MUST AND BREAK IT I MAY,. BUT I NEVER WILL REGRET THE DAY,. THAT THIS SNOWFLAKE FELL FROM HEAVEN ABOVE,. AND INTO MY HEART, STIRRING SUCH LOVE. By Sereaia's Grandmother 2005.

2

Photo Album Page

http://alexisoraya.tripod.com/id39.html

All About Bone Density. OI Centers of Excellence. The Official Alexi Soraya Site. Click on any of the links to get to the albums! Not for the light of heart.

3

Alexi and Rods

http://alexisoraya.tripod.com/id16.html

All About Bone Density. OI Centers of Excellence. The Official Alexi Soraya Site. On February 13th 2004 I had both of my femurs rodded with the F-D rods. These telescoping rods will grow with me and hopefully will keep my bones straight and help prevent fractures. I was only splinted for 2 weeks and was crawling in 2 1/2 weeks , walking behind push toys at 3 1/2 weeks and walking independently at 6 weeks postop. I was back to running by 8 weeks(YIKES). Click here to play video of alexi 6 weeks postop.

4

The Official Alexi Soraya Site

http://alexisoraya.tripod.com/index.html

The Official Alexi Soraya Site. All About Bone Density. OI Centers of Excellence. Click to see another source of pics and info on me! I am number four and I couldn't wait to arrive soooooooo at 35 weeks. Alexi Soraya arrived on June 30th 2002! June 2006 slide show at the beach. On April 21st my mom brought home my newest brother from Bulgaria.he has OI like me. I am 6 days old here. Look at Me NOW. Alexi at 3.75 years May 2006. Please get in touch with any comments or reactions to my site.

5

All About Bone Density

http://alexisoraya.tripod.com/id27.html

All About Bone Density. All About Bone Density. OI Centers of Excellence. The Official Alexi Soraya Site. Alexi's Bone Mineral Density Testing Results. Add your content here. Add your content here. All testing done on the same Hologic Scanner at Omaha Children's Hospital. DEXA-Scan measures bone density, which is directly related to bone strength. Doctors can predict the potential for fracture and osteoporosis through DEXA-Scan results. Clinical Indications for Bone Densitometry. Bone mass measurements a...

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cooperknorr.com

Information Links

http://www.cooperknorr.com/information_links/information_links.htm

Here are some sites you might want to check out. If anyone has a site they would like me to add, please let me know. The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The OI Clinic at the Kennedy Krieger Institute. This is where I go for my treatments. Wikipedia Definition of OI. This is the medicine that Im currently on.

oi-child.tripod.com

Links

http://oi-child.tripod.com/id8.html

OI Centers of Excellence. Finding a Good Local Doctor. Caring for a Newborn. OI Children are like snowflakes- - -no two are just alike. The Bones Page/Dr. Plotkin:. Dr Esposito, OI Orthopedist at Children's Hospital of Omaha:. Avery's OI website(Alexi's virtual OI twin):. Zacarri's OI website, New Zealand:. Kennedy Krieger Institute in Maryland:. Our mission is to provide caring personal support, empowering information and unwavering hope to persons caring for a child with OI.

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alexisoraya.tripod.com

The Official Alexi Soraya Site

The Official Alexi Soraya Site. All About Bone Density. OI Centers of Excellence. Click to see another source of pics and info on me! I am number four and I couldn't wait to arrive soooooooo at 35 weeks. Alexi Soraya arrived on June 30th 2002! June 2006 slide show at the beach. On April 21st my mom brought home my newest brother from Bulgaria.he has OI like me. I am 6 days old here. Look at Me NOW. Alexi at 3.75 years May 2006. Please get in touch with any comments or reactions to my site.

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