asonginthisworld.blogspot.com
Spinal Muscular Atrophy Canada: January 2014
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Spinal Muscular Atrophy Canada. Saturday, January 11, 2014. MASTERY OF MIND OPENS AVENUES OF HOPE. Change your attitude, look past yourself and deliver the care your child needs. Remember it's not the caregiver who is sick and needs help it's the patient. We have to move past anticipatory grief, spend time with our children that is where our healing lies in the time we spend with our children. All that we are is the result of what we have thought. 8211; The Buddha. Subscribe to: Posts (Atom). I am a sing...
asonginthisworld.blogspot.com
Spinal Muscular Atrophy Canada: December 2013
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Spinal Muscular Atrophy Canada. Tuesday, December 31, 2013. We adults can learn to slow down enough to enter their world; it's not their job to speed up and join ours. Where is the hurry? Eknath Easwaran, from "Take Your Time". Subscribe to: Posts (Atom). Click on this photo and visit my web site. Shira Fisher SMA Type 1. View my complete profile. Subscribe To Shira Fisher. Spinal Muscular Atrophy Videos. Links To Friends Web Sites And Blogs. Families of Spinal Muscular Atrophy.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: Offering Advice
http://smileshoelace.blogspot.com/2014/09/offering-advice.html
Tuesday, September 16, 2014. An excerpt from a conversation on a Facebook SMA support group. For privacy purposes names have been altered.]. In case you're wondering what makes me qualified to be discussing this, I will give a brief history on my life experience because I do have some. I am 26 years old and have SMA. What type? Labels: quality of life. There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: August 2014
http://smileshoelace.blogspot.com/2014_08_01_archive.html
Friday, August 1, 2014. Passion. I've been reading some extremely passionate posts as of late that are getting to me. Since I have been unable to think about much else than the hidden agenda behind the posts I am going say something. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. Presley and Charlotte's Corner. Jojo and his Family: Life with SMA.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: March 2013
http://smileshoelace.blogspot.com/2013_03_01_archive.html
Monday, March 25, 2013. For days now I have been trying to think of a way to say what I want and not have it sound cliché or, worse yet, stupid. It is ridiculous how many people find a phrase and say it so much that it starts to lose the intended meaning. That is exactly what I don't want and, while it is flattering to be quoted, I didn't write this so don't. Quote me. There, now that that is out of the way, let's get to the point. I recently finished a book, Forever is Over by Calvin Wade. That basicall...
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: PS I Love You
http://smileshoelace.blogspot.com/2013/03/ps-i-love-you.html
Saturday, March 9, 2013. PS I Love You. This post is a few days late or a few months early, depending on how you want to look at it. Either way it is important to me so please, read on.). Logan with his B4SMA Blanket. Needless to say I smiled for the first time in days and quickly responded with my own picture (which I can't seem to find, regretfully). In any case, I said yes and throughout the SMA Community we were considered engaged. Logan sealed it with a promise of a ring as soon as he saved ...After...
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: April 2012
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Saturday, April 28, 2012. What am I going to do? It’ll be just like old doctor was still here, right? Wrong, very, very wrong…. While the new physician is a kind person and listened to us, his lack of knowledge was concerning. Knowledge is power, right? Monday, April 16, 2012. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. The O'Neill Boys' Blog.
miracleformary.blogspot.com
Mary's Blog: FLU + SMA = NOT a good combination
http://miracleformary.blogspot.com/2011/10/flu-sma-not-good-combination.html
Sunday, October 23, 2011. FLU SMA = NOT a good combination. The intubation went fine, but she has still be having some trouble with low O2 saturations, so she had been on 60-80% O2 all day. But she is resting comfortably now, and thankfully there is no pneumonia in her lungs. Please keep up the prayers for Mary! Subscribe to: Post Comments (Atom). FLU SMA = NOT a good combination. Petition to cure SMA. Mission: Moris' Down Under. Try to remember the kind of September. Spinal Muscular Atrophy Research News.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: The Ugly Truth
http://smileshoelace.blogspot.com/2013/03/the-ugly-truth.html
Tuesday, March 5, 2013. In the winter of 2010, I wrote that I was privileged to have SMA. Now that privilege doesn't seem to ring as true for me. Shocking, right? Why did I have to be different? As the reader, you feel for 6 year old me, don't you? Now, what was the point of that story, right? Labels: privileged ugly truth. Subscribe to: Post Comments (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. PS I Love You.
