rarediseasesindia.org
aku - Rare Diseases India
http://www.rarediseasesindia.org/aku
About Rare Diseases India. Rare Diseases and Disorders L. Patient Advocacy Groups Database. Write rare disease reviews). Choose a rare disease to write. Instructions to write Reviews. Submit Your Review Article. Read Rare Diseases Reviews from list below. Alternating Hemiplegia of Childhood. Coarctation of the Aorta. Madras Motor Neuron Disease. Read Research Articles from list below. Septic Shock: A2M hypothesis. A2M and proteases in disease prevention. A2M and protease prevalence in chronic patients.
pediatricmetabolism.wordpress.com
Links | CLINICAL PEDIATRIC ENDOCRINE AND METABOLISM
https://pediatricmetabolism.wordpress.com/link
CLINICAL PEDIATRIC ENDOCRINE AND METABOLISM. 124; Comments RSS. Information and Education Programme for Professional. Fight Against AIDS, Save The Children Indonesia. Poems and Songs For Children. Save Our Children from Smoke. Save Our Children from Smoke. Clinical Pediatric Rehabilitation Medicine. Juvenile Diabetes Research Foundation International. National Organization for Rare Disorders. Alliance of Genetic Support Groups. Acorns Children’s Hospice. Batten Disease Family Association (BDFA). Maple Sy...
alcap.org
ALCAP
http://www.alcap.org/bull01.php
Bulletins précédents. Diagnostic / Évolution. Répartition géographique. Questions fréquemment posées. Les médecins and chercheurs. Le Conseil Médical. Bulletins précédents. C'est une série de ventes à Paris au bénéfice d associations de patients. Nous vous invitons pour sa. Du 4 au 6 décembre au 26 rue Mayet, 75006 Paris. Au profit de l'ALCAP. N'hésitez pas à transmettre cette invitation à votre entourage. 06 14 93 36 00. Faites du shopping ou videz vos dressings. Pour une bonne cause! 5 et 6 Décembre.
pediatricmetabolism.wordpress.com
Parenting | CLINICAL PEDIATRIC ENDOCRINE AND METABOLISM
https://pediatricmetabolism.wordpress.com/parenting
CLINICAL PEDIATRIC ENDOCRINE AND METABOLISM. 124; Comments RSS. Information and Education Programme for Professional. Fight Against AIDS, Save The Children Indonesia. Poems and Songs For Children. Save Our Children from Smoke. Save Our Children from Smoke. Clinical Pediatric Rehabilitation Medicine. Juvenile Diabetes Research Foundation International. National Organization for Rare Disorders. Alliance of Genetic Support Groups. Acorns Children’s Hospice. Batten Disease Family Association (BDFA). Maple Sy...
rarediseasematters.org
Role of patient in rare disease research and orphan drug development | Rare disease matters
http://www.rarediseasematters.org/role-of-patient
Recognizing and understanding the value of patient-driven innovation. Why Rare disease matters. Patient-initiated research foundations: A source of funding, but more importantly a continuous source of inspiration. Nowadays, the role of rare disease patients in rare disease research and orphan drug development is enormous and at all stages of the drug innovation cycle: from bench to bed and from bed to bench. In the US as well as EU an orphan designation has been granted for the product. Finally, the AKUs...
globalgenes.org
Rare Disease List
https://globalgenes.org/rarelist
Building awareness and communities to support and find treatments for Rare Diseases. Medical & Sci. Advisory Board. Blue Denim Genes Ribbon. Wear That You Care. Ways to Get Involved. Cox Prize for RARE Compassion. Tribute to Champions of Hope. Past Tribute to Champions of Hope. Past Patient Advocacy Summits. World RARE Disease Day. RARE Patient Impact Grant. Drug Development White Paper. Rare Disease Impact Report. Medical & Sci. Advisory Board. Blue Denim Genes Ribbon. Wear That You Care. This is a list...
alcap.fr
ALCAP
http://www.alcap.fr/bull01.php
Bulletins précédents. Diagnostic / Évolution. Répartition géographique. Questions fréquemment posées. Les médecins and chercheurs. Le Conseil Médical. Bulletins précédents. C'est une série de ventes à Paris au bénéfice d associations de patients. Nous vous invitons pour sa. Du 4 au 6 décembre au 26 rue Mayet, 75006 Paris. Au profit de l'ALCAP. N'hésitez pas à transmettre cette invitation à votre entourage. 06 14 93 36 00. Faites du shopping ou videz vos dressings. Pour une bonne cause! 5 et 6 Décembre.