allaboutryan.co.uk

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Welcome to my website! HelloMy name is Ryan Morgan, I m 8yrs old and I live in Scotland with my mum, dad and baby sister Leah. I am also severely disabled - I do not have a diagnosis yet as I have all of my doctors totally stumped! Part of my condition means that I grow too fast and I m very tall for my age. I also have very low muscle tone, which means I m very weak and floppy. I can t sit, roll, stand or walk, I cannot communicate at all, I have a gastrostomy button and I have epilepsy too.

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allaboutryan:index | allaboutryan.co.uk Reviews

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Welcome to my website! HelloMy name is Ryan Morgan, I m 8yrs old and I live in Scotland with my mum, dad and baby sister Leah. I am also severely disabled - I do not have a diagnosis yet as I have all of my doctors totally stumped! Part of my condition means that I grow too fast and I m very tall for my age. I also have very low muscle tone, which means I m very weak and floppy. I can t sit, roll, stand or walk, I cannot communicate at all, I have a gastrostomy button and I have epilepsy too.

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allaboutryan:index | allaboutryan.co.uk Reviews

https://allaboutryan.co.uk

Welcome to my website! HelloMy name is Ryan Morgan, I m 8yrs old and I live in Scotland with my mum, dad and baby sister Leah. I am also severely disabled - I do not have a diagnosis yet as I have all of my doctors totally stumped! Part of my condition means that I grow too fast and I m very tall for my age. I also have very low muscle tone, which means I m very weak and floppy. I can t sit, roll, stand or walk, I cannot communicate at all, I have a gastrostomy button and I have epilepsy too.

INTERNAL PAGES

allaboutryan.co.uk

1

allaboutryan:about me

http://allaboutryan.co.uk/aboutme.html

I was born on Tuesday 25th February 2003 at 15:24 by Caesarian Section (due to me being in a transverse position) and weighed 4kg. When I was born I was taken to NICU because I was breathing too fast and my sugar levels were low.this was the beginning of our long journey. At 7 months old I had my first seizure, my family were terrified. I was given an MRI brain scan which showed my brain was very underdeveloped - specifically the areas of white matter. When I was about 1 year old, my geneticist back in A...

2

allaboutryan:index

http://allaboutryan.co.uk/index.html

Welcome to my website! HelloMy name is Ryan Morgan, I m 8yrs old and I live in Scotland with my mum, dad and baby sister Leah. I am also severely disabled - I do not have a diagnosis yet as I have all of my doctors totally stumped! Part of my condition means that I grow too fast and I m very tall for my age. I also have very low muscle tone, which means I m very weak and floppy. I can t sit, roll, stand or walk, I cannot communicate at all, I have a gastrostomy button and I have epilepsy too.

3

allaboutryan:latestonme

http://allaboutryan.co.uk/latest.html

Things that affect me every day. Severe Reflux (G.O.R.D.). Severe Global Developmental Delay (G.D.D.). Poor/Unsafe swallow leading to a Gastrostomy. Initially a P.E.G. but now fitted with a Mic-key button. Kyphoscoliosis (Abnormal front-to-back and side-to-side curvature of the spine). The latest plan to try and make me more comfortable is:-. 1) I need another operation, this time for a Fundoplication. This will hopefully help with the pain from reflux.

4

allaboutyou:thankyou

http://allaboutryan.co.uk/thankyou.html

My family and I would like to thank you all for your help! Thanks to everyone that has bought tickets, raffle tickets, supplied raffle prizes or is planning to carry out fundraising events in my name! I know I haven't even met some of you but hopefully through this website you can see how important your help is and what a difference it can make. We really are very grateful to you all!

5

allaboutryan:fundraising

http://allaboutryan.co.uk/fundraising.html

The big thing we are actively fundraising for is a new wheelchair for me. I have been trialling a Chunc. Since mid December now and love it! Sadly this is not an option via the NHS and my current chair which is supplied by them is no longer suitable. We need to raise 3802 just to purchase the chair and for it to be set up exactly as I need it. We also need to raise money to be able to pay for servicing and maintenance of the chair. 25th March 2011 - Race Night at The Ashvale, Aberdeen.

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allaboutryan:index

Welcome to my website! HelloMy name is Ryan Morgan, I m 8yrs old and I live in Scotland with my mum, dad and baby sister Leah. I am also severely disabled - I do not have a diagnosis yet as I have all of my doctors totally stumped! Part of my condition means that I grow too fast and I m very tall for my age. I also have very low muscle tone, which means I m very weak and floppy. I can t sit, roll, stand or walk, I cannot communicate at all, I have a gastrostomy button and I have epilepsy too.

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