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Things No One Ever Tells You

Things No One Ever Tells You. Friday, December 23, 2016. My disease, Spinal Muscular Atrophy, is the number 1 genetic killer of children under the age of 2. Today I am 24 and I just witnessed history be made. But first, allow me to explain my disease. The thing about SMA is it's a sneaky mofo and it'll plateau for years tricking you into thinking you got this. Only to rear it's ugly head and suddenly you can't draw anymore, you stop wearing jackets because you can't drive your chair otherwise, or a s...

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Things No One Ever Tells You | allegrakeys.blogspot.com Reviews

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Things No One Ever Tells You. Friday, December 23, 2016. My disease, Spinal Muscular Atrophy, is the number 1 genetic killer of children under the age of 2. Today I am 24 and I just witnessed history be made. But first, allow me to explain my disease. The thing about SMA is it's a sneaky mofo and it'll plateau for years tricking you into thinking you got this. Only to rear it's ugly head and suddenly you can't draw anymore, you stop wearing jackets because you can't drive your chair otherwise, or a s...

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Things No One Ever Tells You | allegrakeys.blogspot.com Reviews

https://allegrakeys.blogspot.com

Things No One Ever Tells You. Friday, December 23, 2016. My disease, Spinal Muscular Atrophy, is the number 1 genetic killer of children under the age of 2. Today I am 24 and I just witnessed history be made. But first, allow me to explain my disease. The thing about SMA is it's a sneaky mofo and it'll plateau for years tricking you into thinking you got this. Only to rear it's ugly head and suddenly you can't draw anymore, you stop wearing jackets because you can't drive your chair otherwise, or a s...

INTERNAL PAGES

allegrakeys.blogspot.com

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Things No One Ever Tells You : June 2014

http://allegrakeys.blogspot.com/2014_06_01_archive.html

Things No One Ever Tells You. Monday, June 23, 2014. Lonely but Never Alone. I can completely empathize with being famous and lonely. When I was younger though, I couldn't. I couldn't comprehend how a person could be lonely when an entourage accompanied them day and night. In these last few years I've realized that I'm just like them sans the fame (I'm working on it) and the size of our entourages. Subscribe to: Posts (Atom). Lonely but Never Alone. View my complete profile.

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Things No One Ever Tells You : March 2014

http://allegrakeys.blogspot.com/2014_03_01_archive.html

Things No One Ever Tells You. Wednesday, March 26, 2014. Short and Sweet, I Need You. I just like making stuff up and writing it down. Ergo, this whole blogging adventure is not my forte. You can leave those ideas here, Facebook, or Twitter. Thanks, I appreciate all the support! Tuesday, March 18, 2014. I believe that my whole life is already written out, but I'm the co-author. Very little will happen if I don't set out and push the first domino. I want to look back on my life with few to no regr...Befor...

3

Things No One Ever Tells You : Me Before Ableist B.S.

http://allegrakeys.blogspot.com/2016/05/me-before-ableist-bs.html

Things No One Ever Tells You. Friday, May 27, 2016. Me Before Ableist B.S. As a person with a severe disability no one has ever told me to my face that my life is worthless but I'll be damned if Hollywood doesn't constantly push the notion that it's better to be dead than disabled. Http:/ media.salon.com/2016/05/me before you.jpg. Well, being a person who is for all intents and purposes, paralyzed, I think I have the right to this opinion. Want to know what my biggest burden is? Ableism, which is "discri...

4

Things No One Ever Tells You : April 2014

http://allegrakeys.blogspot.com/2014_04_01_archive.html

Things No One Ever Tells You. Thursday, April 24, 2014. Being a Christian in the Real World. Why don't I feel him? Why won't he speak to me? 8221; You know, normal questions. It doesn't help that we live in a world that says one has to be an atheist or a religious fanatic. A proponent of science or a believer of miracles. A person who has fun or someone who stays at home and prays. Secular music or gospel. This extreme or that extreme. Either or. It's overwhelming and totally wrong. Better Than a Zebra.

5

Things No One Ever Tells You : November 2014

http://allegrakeys.blogspot.com/2014_11_01_archive.html

Things No One Ever Tells You. Wednesday, November 26, 2014. Two Sides of Every Story. Tonight my heart is heavy. Thanksgiving is just around the corner but it's difficult to be in the holiday spirit when the country is facing such a rough patch. Once again a black young man was killed and once again there will be no justice. The really sad aspect of this Michael Brown debacle is that I don't know anyone who was surprised by the jury's decision. Subscribe to: Posts (Atom). Two Sides of Every Story.

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cripnovella.com

CripNovella: February 2016

http://www.cripnovella.com/2016_02_01_archive.html

CripNovella is a weekly, sort-of-fiction, series about life with a disability by Emily Wolinsky. The latest "episode" is right below you. Scroll on down for past episodes. Tuesday, February 23, 2016. 44 hours per week for life, liberty, and the pursuit of happiness (Part 1 of a weekly sort-of-fiction series). 8220;I don’t really get it,” her supervisor confessed, “it’s not like these people have much going on in their lives.”. Her supervisor explained that most of the consumers on Lilianna’s caselo...

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CripNovella: 44 hours per week for life, liberty, and the pursuit of happiness (Part 2 of a weekly sort-of-fiction series)

http://www.cripnovella.com/2016/03/44-hours-per-week-for-life-liberty-and_1.html

CripNovella is a weekly, sort-of-fiction, series about life with a disability by Emily Wolinsky. The latest "episode" is right below you. Scroll on down for past episodes. Tuesday, March 1, 2016. 44 hours per week for life, liberty, and the pursuit of happiness (Part 2 of a weekly sort-of-fiction series). 8220;You wanted to see me? 8221; Lilianna asked her supervisor who called her into her office at the end of the day. 8220;So let’s start with your first consumer of the day.”. 8220;Constance seemed a bi...

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CripNovella: The making of an inspiration porn star

http://www.cripnovella.com/2016/03/the-making-of-inspiration-porn-star.html

CripNovella is a weekly, sort-of-fiction, series about life with a disability by Emily Wolinsky. The latest "episode" is right below you. Scroll on down for past episodes. Sunday, March 20, 2016. The making of an inspiration porn star. 8220;You done yet? 8220;No. I think it’s going to be a while.”. 8220;I have a muscle disease, dude. I can’t push. Its just got to fall out when it’s ready.”. 8220;Can you cut up an apple for me and put it in a zip-lock bag? 8220;Die shmeye. That was because I was tryin...

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CripNovella: About Emily

http://www.cripnovella.com/p/about-emily.html

CripNovella is a weekly, sort-of-fiction, series about life with a disability by Emily Wolinsky. The latest "episode" is right below you. Scroll on down for past episodes. Storytelling is a survival tool.". These words by Harriet McBryde Johnson. Of disability theory and rejects the medical model. A non-profit, peer-led and run, association of adults with neuromuscular disabilities. Finally, Emily was recently recognized internationally for her work with the Dear Julianna. Subscribe to: Posts (Atom).

cripnovella.com

CripNovella: March 2016

http://www.cripnovella.com/2016_03_01_archive.html

CripNovella is a weekly, sort-of-fiction, series about life with a disability by Emily Wolinsky. The latest "episode" is right below you. Scroll on down for past episodes. Sunday, March 20, 2016. The making of an inspiration porn star. 8220;You done yet? 8220;No. I think it’s going to be a while.”. 8220;I have a muscle disease, dude. I can’t push. Its just got to fall out when it’s ready.”. 8220;Can you cut up an apple for me and put it in a zip-lock bag? 8220;Die shmeye. That was because I was tryin...

cripnovella.com

CripNovella: 44 hours per week for life, liberty, and the pursuit of happiness (Part 1 of a weekly sort-of-fiction series)

http://www.cripnovella.com/2016/03/44-hours-per-week-for-life-liberty-and.html

CripNovella is a weekly, sort-of-fiction, series about life with a disability by Emily Wolinsky. The latest "episode" is right below you. Scroll on down for past episodes. Tuesday, February 23, 2016. 44 hours per week for life, liberty, and the pursuit of happiness (Part 1 of a weekly sort-of-fiction series). 8220;I don’t really get it,” her supervisor confessed, “it’s not like these people have much going on in their lives.”. Her supervisor explained that most of the consumers on Lilianna’s caselo...

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allegrakeys.blogspot.com

Things No One Ever Tells You

Things No One Ever Tells You. Friday, December 23, 2016. My disease, Spinal Muscular Atrophy, is the number 1 genetic killer of children under the age of 2. Today I am 24 and I just witnessed history be made. But first, allow me to explain my disease. The thing about SMA is it's a sneaky mofo and it'll plateau for years tricking you into thinking you got this. Only to rear it's ugly head and suddenly you can't draw anymore, you stop wearing jackets because you can't drive your chair otherwise, or a s...

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