alphaoneregistry.org

Alpha1

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? Alpha-1 at MUSC A shared voice for patient empowerment. Alpha-1 Coded Testing (ACT) Study. Alpha-1 testing requires a blood sample, which may be obtained by a finger stick or by a standard blood draw. Online Alpha-1 Foundation Research Registry. Help find a cure for alpha-1 antitrypsin deficiency by enrolling in the Alpha-1 Research Registry online today! New CRC Research Registry.

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CONTACTS AT ALPHAONEREGISTRY.ORG

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Medical University of South Carolina

Charlie Strange

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What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? Alpha-1 at MUSC A shared voice for patient empowerment. Alpha-1 Coded Testing (ACT) Study. Alpha-1 testing requires a blood sample, which may be obtained by a finger stick or by a standard blood draw. Online Alpha-1 Foundation Research Registry. Help find a cure for alpha-1 antitrypsin deficiency by enrolling in the Alpha-1 Research Registry online today! New CRC Research Registry.

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1 what is alpha 1

2 educational brochures

3 genetic counseling program

4 current studies

5 past studies

6 faqs

7 about us

8 get tested

9 for researchers

10 registry

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Alpha1 | alphaoneregistry.org Reviews

https://alphaoneregistry.org

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? Alpha-1 at MUSC A shared voice for patient empowerment. Alpha-1 Coded Testing (ACT) Study. Alpha-1 testing requires a blood sample, which may be obtained by a finger stick or by a standard blood draw. Online Alpha-1 Foundation Research Registry. Help find a cure for alpha-1 antitrypsin deficiency by enrolling in the Alpha-1 Research Registry online today! New CRC Research Registry.

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alphaoneregistry.org

1

Alpha1

http://www.alphaoneregistry.org/faqs

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? Who is eligible to enroll in the Alpha-1 Research Registry? Individuals of all ages who are diagnosed with Alpha-1 Antitrypsin Deficiency and individuals identified as carriers of Alpha-1 Antitrypsin Deficiency are encouraged to enroll in the Research Registry. Who will have access to my name? How confidential is this database? The first thing you will need to do is provide your info...

2

Alpha1

http://www.alphaoneregistry.org/about_us

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? Charlie Strange, MD. Alpha-1 Research Registry Director. Alpha-1 Coded Testing (ACT) Study Director. Alpha-1 Research Registry Coordinator. Alpha-1 Coded Testing (ACT) Study Coordinator. Kimberly Brown, MS CGC. C/o Medical University of South Carolina. Division of Pulmonary, Critical Care, Allergy and Sleep Medicine. 96 Jonathan Lucas St., Suite 812-CSB. Charleston, SC 29425-6300.

3

Alpha1

http://www.alphaoneregistry.org/current_studies

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? The Alpha-1 Research Registry was created in 1997 to bring together researchers and the Alpha-1 community, and to promote the development of improved treatments and a cure for Alpha-1 through research. By joining the Alpha-1 Research Registry. You can aid in this endeavor. Below you can learn more about some of the studies for which the registry is actively recruiting participants.

4

Alpha1

http://www.alphaoneregistry.org/past_studies

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? MUSC Alpha-1 Community Partnership. The MUSC Alpha-1 Research Partnership was initiated as community-based participatory research(CBPR), an applied collaborative approach that combines community members and researchers, and applies their shared knowledge towards the goal of influencing changes to promote community health and often reduce health disparities.

5

Alpha1

http://www.alphaoneregistry.org/newsletters

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? Registry Update Winter 2015. Learn more about Dr. Stoller and his work at the Cleveland Clinic in this issue of the Alpha-1 Research Registry Update. There are also updates on clinical trial recruitments such as the MZ COPD Study, improved detection in the ACT study with the addition of F and I alleles, and why you shouldn’t give up on exercise. Registry Update Winter 2015. In this e...

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farsideoffifty.blogspot.com

Far Side of Fifty: August 2015

http://farsideoffifty.blogspot.com/2015_08_01_archive.html

Far Side's Attic and Woodshed. Far Sides Attic and Woodshed Carvings for sale. Monday, August 31, 2015. The air is still filled with a haze from the forest fires. The particles in the air turn the sun orange. I could complain about my itchy allergy eyes but I won’t because eye drops make them feel better…and those people closer to the fires must be struggling far worse than my itchy matter filled eyes. Just so you know Chance has eye boogers too. The harvest continues in our area. Far Side of Fifty.

cfpulmonary.com

Central Florida Pulmonary » Educational Links

http://www.cfpulmonary.com/educational-links

8211; Main Menu –. Online Appointment Request Form. CFPG Institute of Sleep Medicine. National Sleep Foundation Online Insomnia Resource Center. Computed Tomography (CT) Scan. Dual Energy X-ray Absorptiometry (DEXA) Scan. Interventional Pulmonary and Complex Airway Program. CFPG Adult Cystic Fibrosis Center. Downtown Orlando Location – Phone 407-841-1100. Altamonte Springs Location – Phone 407-841-1100. East Orlando Location – Phone 407-841-1100. Daniel Haim, M.D., F.C.C.P. Roberto Santos, M.D. Daniel Ha...

breathingbetterlivingwell.com

Breathing Better, Living Well »

http://www.breathingbetterlivingwell.com/links.php

American Academy of Allergy, Asthma, and Immunology. Allergy and Asthma Network / Mothers of Asthmatics. Asthma and Allergy Foundation of America. Http:/ www.yourlunghealth.org. The American Association for Respiratory Care. Http:/ lungdiseases.about.com/. A wealth of up-to-date information and resources. American College of Allergy, Asthma, and Immunology. Dr Francis V. Adams provides the latest information on breathing disorders. “An informed patient is a healthier patient.”. Dedicated to developing an...

alpha-1global.org

Resources | Alpha-1 Global Alliances

http://www.alpha-1global.org/Resources

Last Month on PubMed. All educational materials on this site are available for your use. You may download a copy and print them if you like. Besides English, each individual country page will have links to educational resources, either through a direct link to downloadable materials or to resources on local support group websites. Big Fat Reference Guide. Skinny Little Reference Guides. As part of its educational material, AlphaNet, a not-for-profit health management organization serving Alphas in the Un...

gradslung.org

GRADS Study

http://www.gradslung.org/resources.html

The organizations below can help provide more information about Alpha-1 and Sarcoidosis. Resources from some of them will be used to assist with recruitment for GRADS. Please visit them to find out about their programs. Foundation for Sarcoidosis Research. Armsted R. Christian Foundation for Sarcoidosis Research. Life and Breath Foundation. National Sarcoidosis Research Center. Sarcoidosis Foundation of Texas. NIH Clinical Research Trials And You.

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alphaoneregistry.org

Alpha1

What is the Alpha-1 Coded Testing (ACT) Study? What is the Registry? What is the Alpha-1 Foundation CRC Research Registry? Alpha-1 at MUSC A shared voice for patient empowerment. Alpha-1 Coded Testing (ACT) Study. Alpha-1 testing requires a blood sample, which may be obtained by a finger stick or by a standard blood draw. Online Alpha-1 Foundation Research Registry. Help find a cure for alpha-1 antitrypsin deficiency by enrolling in the Alpha-1 Research Registry online today! New CRC Research Registry.

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