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Alport Syndrome: The Natural History Study

What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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Alport Syndrome: The Natural History Study | alport-study.com Reviews

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What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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1 study site locator

2 understanding clinical studies

3 clinical studies faqs

4 resources and links

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6 reviews

7 scam

8 fraud

9 hoax

10 genuine

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Alport Syndrome: The Natural History Study | alport-study.com Reviews

https://alport-study.com

What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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alport-study.com

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About this Alport Syndrome Study

http://www.alport-study.com/what-is-alport-syndrome.html

What is Alport syndrome? What is Alport syndrome? There is currently little information on exactly how Alport syndrome progresses and no approved therapy. The ATHENA study is designed to map the changes in the kidneys of Alport syndrome patients over time so that new therapies may be appropriately tested. Email: ATHENA alportstudy@agility-clinical.com.

2

Alport Syndrome Study Site Locator

http://www.alport-study.com/alport-syndrome-study-locator.html

What is Alport syndrome? Do you know someone who is thinking about participating in a clinical study? Use the Site Locator below to find an ATHENA Study site near you. Select a Country or State. US - New York.

3

Understanding Clinical Studies

http://www.alport-study.com/understanding-clinical-studies.html

What is Alport syndrome? A clinical study involves research using volunteers (also called participants) that is intended to add to medical knowledge. There are two main types of clinical studies: observational studies and clinical trials. What is an Observational Study? What is a Clinical Trial? Clinical trials of drugs provide information about:. Whether the drug has the effect it is supposed to have. What side effects are associated with the drug, and how they can best be managed. Participants in clini...

4

Clinical Trials FAQs

http://www.alport-study.com/clinical-studies-faq.html

What is Alport syndrome? Clinical Studies Frequently Asked Questions. Choosing to participate in a clinical study is an important personal decision. The following frequently asked questions provide detailed information about clinical studies. In addition, it is often helpful to talk to a physician, family members, or friends about deciding to join a study. After identifying some study options, the next step is to contact the study team and ask questions. What is an investigational drug? What is a placebo?

5

Resources and Links

http://www.alport-study.com/clinical-studies-resources.html

What is Alport syndrome? Find out more about Alport syndrome, kidney disease, clinical studies, and patient support materials on these websites:. Alport Syndrome Information and Patient Advocacy Groups. Alport Foundation of Australia. Alport Support Group - Germany. Alport Syndrome Hope for the Cure Foundation. Federation of European Association of Patients affected by Renal Genetic Diseases (FEDERG). Genetics Home Reference, Your Guide to Understanding Genetic Conditions- Alport Syndrome.

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Alport Syndrome: The Natural History Study

What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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