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home alport uk - a brighter future for people living with Alport Syndrome

a brighter future for people living with Alport Syndrome

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home alport uk - a brighter future for people living with Alport Syndrome | alportuk.org Reviews

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a brighter future for people living with Alport Syndrome

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shining a light on Alport Syndrome alport uk - a brighter future for people living with Alport Syndrome

http://www.alportuk.org/collaboration-alport

Why we are here. What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Questions & answers. Shining a light on Alport Syndrome. Collaborates with the scientific community, researchers, doctors, clinicians, academics, pharmaceutical companies and other national patient groups on an international basis. Within this framework, we can work to create a strong, united voice to advocate investment in the research needed into Alport. Our collaborative efforts will focus on:.

2

collaboration Archives - alport uk

http://www.alportuk.org/alport/news/collaboration-green

Why we are here. What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Questions & answers. Shining a light on Alport Syndrome. September 17, 2014. Rare Disease Week 2016. February 18th, 2016. Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about. Alport UK Christmas Cards FOR SALE. November 6th, 2015. Alport Information Days 2015. July 2nd, 2015.

3

find your way through the NHS alport uk - a brighter future for people living with Alport Syndrome

http://www.alportuk.org/support-alport/find-way-nhs

Why we are here. What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Questions & answers. Find your way through the NHS. To find out more about organ donation within the NHS. Rare Disease Week 2016. February 18th, 2016. Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about. Alport UK Christmas Cards FOR SALE. November 6th, 2015. July 2nd, 2015.

4

stories alport uk - a brighter future for people living with Alport Syndrome

http://www.alportuk.org/support-alport/alport-stories

Why we are here. What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Questions & answers. Two stories from the The First National Alport. Day in London, December 2013:. Steve Fry sharing his story about diagnosis and his successful transplant thanks to his good friend Mark:. Julie Tippet sharing the story about her family’s experience of Alport. If you would like to share your story, please email us. Rare Disease Week 2016. February 18th, 2016. November 6th, 2015.

5

for teenagers and young adults alport uk - a brighter future for people living with Alport Syndrome

http://www.alportuk.org/support-alport/alport-young-people

Why we are here. What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Questions & answers. For teenagers and young adults. At our information days, such as The 1st Alport. Information Day in London, we run breakout groups for teenagers and young adults. This video was written, filmed and edited by the group on the day. It is ‘top tips’ for young people living with Alport. We have a twitter page which can be accessed by all. Our page for tweets is alportuk. Following our...

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Kidney Transplant PSP :: Partners

http://www.transplantpsp.org/kidney/partners.php

The Kidney Transplant Priorities Setting Partnership are very grateful for the support of all of our partners. These include patient and professional organisations and charities with an interest in the care of patients undergoing Kidney Transplantation. Our growing list of partners include:. If your organisation represents kidney transplant patients, or those who care for them, and you would like to be involved, please click here. 2014-2016 Centre for Evidence in Transplantation.

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home alport uk - a brighter future for people living with Alport Syndrome

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