jensalsjourney.wordpress.com
Read It and Weep | Jen's Journey
https://jensalsjourney.wordpress.com/2010/05/17/read-it-and-weep
A mom living with ALS. May 17, 2010. Read It and Weep. Posted in Medical Updates. At 3:14 pm by jensalsjourney. Well the word is in and my drug trial was a bust. The drug was found to be safe, but ineffective. Oh well, so much for that! On the plus side, that’s six fewer pills I have to take every day, and no more of that drugged out feeling in the afternoon. Still no word on whether I was on the placebo. The news release is here. I’ll be back soon with good news and pictures from the ALS walk.
jensalsjourney.wordpress.com
The Flip Side | Jen's Journey
https://jensalsjourney.wordpress.com/2010/04/20/the-flip-side
A mom living with ALS. April 20, 2010. Posted in Random Observations. At 3:31 pm by jensalsjourney. I feel like my last post was sort of a downer, so I decided it would only be fair to acknowledge that being sick does have its benefits. Here’s a list of good things about having ALS:. 1 Sit around all day but no one can accuse me of being lazy. 2 Finally have the pretty nails I’ve wanted all my life, as since I barely use my hands my nails don’t break and my polish doesn’t chip. 9 Waited on hand and foot.
support.alscenter.org
2016 Fiesta 5K - Robert Packard Center for ALS Research at Johns Hopkins
http://support.alscenter.org/site/TR/Runs/General??team_id=6270&pg=team&fr_id=1150
The Hope is in the Science. To access your participant center and/or simplify registration. Forgot Username or Password? DAYS REMAINING UNTIL THE RACE! 1 - Team Nelly. 2 - Team Lubin. 3 - Team Travelers. 4 - Get on BOARD! 5 - Running for cArLSon. 6 - Connelly Crusaders. 7 - Tops' Trotters. 8 - Team Low and Slow. 9 - Do Run Run. 10 - The Hackett Clan. 1 - Karli Lubin. 2 - Timothy Connelly. 3 - JEFFREY NELSON. 4 - Nancy Dunbar O'Connor. 5 - Annette Guinter. 6 - Julie Kernan. 7 - Fred Carlson.
zofiaconsulting.com
Zofia Buzz – Zofia Consulting, LLC
https://zofiaconsulting.com/blog
Zofia Consulting, LLC. The Essence of Strategy. Zofia Consulting, LLC. Securing DoD Contractor Information Systems Are You Ready? August 3, 2016. August 4, 2016. Securing DoD Contractor Information Systems Are You Ready? This past year, the US Government implemented significant policy changes that impact DoD Government contractors with how they protect their own internal networks and compete for DoD contracts. December 30, 2015. Compliance with Safeguarding and CDI Controls. This is just a high-level ove...
malveauxmission.org
News | Malveaux Mission
http://www.malveauxmission.org/category/news
The Malveaux family takes the Ice Bucket Challenge. Click Here to Watch the Malveaux Family take the ALS Ice Bucket Challenge…. Posted in Myrna Updates. Living with ALS: Seeking Independence and Identity. This is the fifth installment in a series about Hollister Lindley, a 62-year-old resident of Richmond, Va., and how she is changing the way she lives after being diagnosed with amyotrophic lateral sclerosis, a fatal condition also known as Lou … Continue reading →. Sharing the burden of ALS. Packard Inv...
malveauxmission.org
Mryna Malveaux Appears on ABC2 News | Malveaux Mission
http://www.malveauxmission.org/mryna-malveaux-appears-on-abc2-news
Mryna Malveaux Appears on ABC2 News. Myrna and her family recently appeared on ABC2 News in Baltimore to show she makes the most of everyday – even when living with ALS. Check it out…. Meet the Malveaux Family. 5801 Smith Avenue, McAuley Suite 110. Baltimore, Maryland 21209, USA.
duganfundraiser.com
Do Good For Dugan | Rochester, NY
http://www.duganfundraiser.com/learning.html
Amyotrophic lateral sclerosis (ALS),. Often referred to as "Lou Gehrig's Disease," is a terminally progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. ALS is a disease of "motor neurons", the cells that initiate and control the movement of muscles. Upper motor neurons originate in the brain and lower neurons originate in the spinal cord. The following are the most common symptoms of ALS. However, people may experience symptoms differently. Magnetic resonance i...
midatlanticwaterproofing.blogspot.com
Mid Atlantic Waterproofing - Basement Waterproofing is our Job: October 2008
http://midatlanticwaterproofing.blogspot.com/2008_10_01_archive.html
Mid Atlantic Waterproofing - Basement Waterproofing is our Job. Find out about who Mid Atlantic Waterproofing is and how they can help you waterproof your basement. Sunday, October 5, 2008. MID-ATLANTIC WATERPROOFING DONATES $40,000 FOR ALS RESEARCH TO THE PACKARD CENTER AT JOHNS HOPKINS HOSPITAL. Every Monday morning, executives at Mid-Atlantic Waterproofing. 8221; says Tullio. “Everything pointed to the Packard Center. By far it’s the leader, and we wanted to go to the top.̶...A baseball fan, Tulli...
alsforums.com
Recommended and Registered ALS/MND Organisations | ALSforums.com
http://www.alsforums.com/directory
Your moderated forum and support group. Recommended and Registered ALS/MND Organisations. Recommended and Registered ALS/MND Organisations. The following online resources have been organized to help you quickly find the ALS organisations you need to get in touch with. If you find one of our resources outdated, not working, or no longer useful please take a moment to notify us. Please contact us if you feel we are missing a resource that you would like to see added. International ALS or MND Organisations.
SOCIAL ENGAGEMENT