alsmaine.org alsmaine.org

alsmaine.org

ALS Maine Collaborative

Darr; Skip to Main Content. Creating a Fuller Life Living with ALS. Creating a Fuller Life Living With ALS. The Patient’s Guide to ALS. Understanding the Diagnosis of ALS. Emotional Responses to the Diagnosis. Acceptance of Life with ALS. Challenges & Decision-Making. Disease Progression & Management of Weakening Physical Capabilities. Direction of Future Care. Advance Directives (Living Wills). The Gift of Hospice Care. Erasing the Myths About Hospice. The Caregiver’s Guide to ALS. I Prefer to Laugh.

http://www.alsmaine.org/

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CONTACTS AT ALSMAINE.ORG

ALS Maine Collaborative

Gary Sullivan

PO ●●●365

Spr●●●ale , Maine, 04083

US

1.20●●●●0542
ga●●●@metrocast.net

View this contact

ALS Maine Collaborative

Gary Sullivan

PO ●●●365

Spr●●●ale , Maine, 04083

US

1.20●●●●0542
ga●●●@metrocast.net

View this contact

ALS Maine Collaborative

Gary Sullivan

PO ●●●365

Spr●●●ale , Maine, 04083

US

1.20●●●●0542
ga●●●@metrocast.net

View this contact

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ALS Maine Collaborative | alsmaine.org Reviews
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Darr; Skip to Main Content. Creating a Fuller Life Living with ALS. Creating a Fuller Life Living With ALS. The Patient’s Guide to ALS. Understanding the Diagnosis of ALS. Emotional Responses to the Diagnosis. Acceptance of Life with ALS. Challenges & Decision-Making. Disease Progression & Management of Weakening Physical Capabilities. Direction of Future Care. Advance Directives (Living Wills). The Gift of Hospice Care. Erasing the Myths About Hospice. The Caregiver’s Guide to ALS. I Prefer to Laugh.
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1 patient’s guide
2 caregiver’s guide
3 resources
4 suggested reading
5 profile of als
6 what is als
7 coping with als
8 palliative care
9 self care for caregivers
10 about our organization
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patient’s guide,caregiver’s guide,resources,suggested reading,profile of als,what is als,coping with als,palliative care,self care for caregivers,about our organization,tuesdays with morrie,augie’s quest,facebook,uarr;
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ALS Maine Collaborative | alsmaine.org Reviews

https://alsmaine.org

Darr; Skip to Main Content. Creating a Fuller Life Living with ALS. Creating a Fuller Life Living With ALS. The Patient’s Guide to ALS. Understanding the Diagnosis of ALS. Emotional Responses to the Diagnosis. Acceptance of Life with ALS. Challenges & Decision-Making. Disease Progression & Management of Weakening Physical Capabilities. Direction of Future Care. Advance Directives (Living Wills). The Gift of Hospice Care. Erasing the Myths About Hospice. The Caregiver’s Guide to ALS. I Prefer to Laugh.

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alsmaine.org alsmaine.org
1

Introduction | ALS Maine Collaborative

http://alsmaine.org/about

Darr; Skip to Main Content. The objectives of this guide, written for ALS patients in Maine, are to provide practical information, resources, and support; to empower patients and their caregivers; to inspire inner peace and contentment; and, ultimately, to ensure a peaceful process of dying. It was Gary Sullivan’s passionate vision to support Maine ALS patients and their caregivers through their challenging journeys. His perseverance and dedication to this vision gave energy and momentum to this project.

2

The Patient’s Guide | ALS Maine Collaborative

http://alsmaine.org/patients-guide

Darr; Skip to Main Content. The Patient’s Guide. Understanding the Diagnosis of ALS. Learning how to successfully manage this disease will allow the patient to live the fullest life possible. Emotional Responses to the Diagnosis. When people receive news about a life-limiting health problem, it is common to experience a full spectrum of emotions. Acceptance of Life with ALS. Disease Progression and Management of Weakening Physical Capabilities. Direction of Future Care. Advance Directives (Living Wills).

3

The Caregiver’s Guide | ALS Maine Collaborative

http://alsmaine.org/caregivers-guide

Darr; Skip to Main Content. The Caregiver’s Guide. Understanding and Accepting Caregiving Responsibilities. Developing the fortitude to accept reality, while exploring ways to get the most and best out of whatever may be possible, is fundamental. Learning to communicate thoughts and feelings yields greater understanding and appreciation of the immensity of the caregiving role. Supporting A Peaceful Death. Understanding and Accepting Caregiving Responsibilities. Time devoted to learning to accept and prep...

4

Resources | ALS Maine Collaborative

http://alsmaine.org/resources

Darr; Skip to Main Content. Resource List for People with ALS living in Maine. Produced collaboratively by Nell Davies, ALSA Northern New England Chapter ( www.alsanne.org. The Maine Collaborative ( www.alsmaine.org. And the Mass General ALS Clinic ( www.massgeneral.org/als. Advance Directives and Living Wills. Local and National Organizations. Respiratory Therapy, Infusion Services and Home Medical Equipment. Services Helpful for Maine ALS Patients. Advance Directives and Living Wills. Provides support ...

5

Suggested Reading | ALS Maine Collaborative

http://alsmaine.org/suggested-reading

Darr; Skip to Main Content. Learning to Fall: The Blessings of an Imperfect Life. I Prefer to Laugh. Last Flight Out: Living, Loving and Leaving. By Phyllis A. Langton. Rowing Without Oars: A Memoir of Living and Dying. I Remember Running: The Year I Got Everything I Ever Wanted – and ALS. Tales From The Bed. Joy and Suffering: My Life with ALS. By Martin J. D’Amore, MD. Don’t Buy Too Many Green Bananas: Living with ALS (Lou Gehrig’s Disease). By Delores M. Warner. Riding Sideways: My Journey With ALS.

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pelotonlabsportland.com pelotonlabsportland.com

Startup Weekend: Women's Edition, Portland, Maine

http://pelotonlabsportland.com/events/startup-weekend-womens-edition

A space for independent professionals to connect, grow and contribute. Skip to primary content. Skip to secondary content. Startup Weekend: Women’s Edition 2015. On Friday, June 12 – 14, 2015 at Maine College of Art in Portland, Maine more than 40 brave women joined together in an intensive weekend experience to explore their talents, break the rules, and experience starting a business with a team. Here’s how it all went down:. Friday- Arrival and Quick-Fire Pitches. Participants arrived at the MECA Cafe...

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ALS Maine Collaborative

Darr; Skip to Main Content. Creating a Fuller Life Living with ALS. Creating a Fuller Life Living With ALS. The Patient’s Guide to ALS. Understanding the Diagnosis of ALS. Emotional Responses to the Diagnosis. Acceptance of Life with ALS. Challenges & Decision-Making. Disease Progression & Management of Weakening Physical Capabilities. Direction of Future Care. Advance Directives (Living Wills). The Gift of Hospice Care. Erasing the Myths About Hospice. The Caregiver’s Guide to ALS. I Prefer to Laugh.

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