jessiekelley.blogspot.com
Jessie's Blog: February 2011
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Friday, February 18, 2011. A Chance to Tell Your Story and Make a Difference. Below is a letter from Dr. Gary Mathern, Pediatrice Neurosurgeon at UCLA . If you or someone you know has epilepsy, please read and participate. Thanks, Cris. I am writing to inform you of an opportunity that as a family with someone with epilepsy you might want to take advantage of. Please, also send this note to any other families in Southern California you think might be interested. Saturday, February 5, 2011. Family, watch ...
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Jessie's Blog: November 2010
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Tuesday, November 30, 2010. Unfortunately, it looks like Jessie is having seizures again. She is currently in the EMU at Cook Children's in Fort Worth, and the epileptologists believe that she has some seizure activity coming from her hemispherectomy side, from a missed connection and brain tissue left behind in the first surgery. It is deep tissue, and hard to pick up on the scalp EEG. In addition, they will do a T3 detailed MRI tomorrow. At that point, they will make the decision on what to do. Christm...
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Jessie's Blog: December 2013
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Friday, December 6, 2013. I guess it is time to retire Jessie's Blog. I haven't written in years, and she remains seizure free. Jessie is in 5th grade now, and enjoys Choir and Student Council. She makes As and Bs, and still has a wonderful outlook on life, and a fun personality to be around. I guess we are used to the "New" normal in our lives. If you are new to the world of Rasmussen's Encephalitis and/or Hemispherectomy, I encourage you to visit http:/ www.HemiFoundation.org. Subscribe to: Posts (Atom).
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Jessie's Blog: April 2012
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Monday, April 9, 2012. Seizure Free and Off Tegretol. Quick Blog Note : Today, Jessie was given the go ahead to go completely off of her epilepsy medicine. So by summer, she will no longer be on Tegretol. Horray! Before when she went off of seizure meds, she was still having seizures, but we didn't recognize them a such. We thought that she was having gastric issues. We are fairly confident this time, that she is seizure free and all will work out great. Happy Easter. Cris. Subscribe to: Posts (Atom).
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Jessie's Blog: Hemi Redo Summary - Success
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Thursday, June 2, 2011. Hemi Redo Summary - Success. Jessie has been seizure free now for 1 1/2 months, and although we are overjoyed and feel very blessed, we are also grounded and realize that you never know what tomorrow will bring in the world of Epilepsy and our kids. Jessie's returning seizures were characterized by:. 1) Discomfort in the stomach (Aura if you will), followed by. 4) When it was over she heaved a heavy sigh, and wiped her nose. 5) Early on, the EEG was inconclusive. As the seizur...
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Jessie's Blog: April 2011
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Wednesday, April 27, 2011. 1 Week Post Op for Re-Re-Do. One Week Post 2nd ReDo Surgery. Jessie finally at a few bites of food yesterday, and we have not seen any seizures so far, so we are cautiously optimistic. A week into her first re-do, we had already seen three seizures. So far, none yet this time. Only time will tell. I anticipate that she will get to go home by the weekend. I feel certain that she will be at the 2011 Dreams on Wings 5K to cheer on the runners. If you haven't signed up yet, ple...
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Jessie's Blog: December 2010
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Wednesday, December 22, 2010. After a nice Christmas Concert at Cook Children's Medical Center with Randy Travis, Charlie Pride, and some other Country stars, Jessie was released and is now home. Pictures below, including one with Jessie and Randy Travis. Http:/ www.star-telegram.com/2010/12/22/2723369/country-singers-entertain-patients.html. No need to speculate until then. One Day at a time and Thanks to God! Blessings to all for a Merry Christmas. Cris. Labels: Hemispherectomy Foundation Jessie Hall.
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Jessie's Blog: May 2011
http://jessiekelley.blogspot.com/2011_05_01_archive.html
Saturday, May 28, 2011. 5 Weeks Seizure Free and Helping Make Breakfast. Today, Jessie is 5 weeks post Hemispherectomy Re-do, and we are happy to report that Jessie has been seizure free since surgery. We are cautiously optimistic about her seizure freedom, but very happy with the results so far. Her neurologist at Cook Children's is taking her off of Vimpat, and she will continue on Tegretol for the forseeable future. Http:/ www.youtube.com/watch? Check out what is written on her t-shirt. Prior to this ...
jessiekelley.blogspot.com
Jessie's Blog: Seizure Free and Off Tegretol
http://jessiekelley.blogspot.com/2012/04/seizure-free-and-off-tegretol.html
Monday, April 9, 2012. Seizure Free and Off Tegretol. Quick Blog Note : Today, Jessie was given the go ahead to go completely off of her epilepsy medicine. So by summer, she will no longer be on Tegretol. Horray! Before when she went off of seizure meds, she was still having seizures, but we didn't recognize them a such. We thought that she was having gastric issues. We are fairly confident this time, that she is seizure free and all will work out great. Happy Easter. Cris. Hi My Name is Jenna. Very pret...
jessiekelley.blogspot.com
Jessie's Blog: Eight Months Seizure Free and Christmas in Wyoming
http://jessiekelley.blogspot.com/2011/12/eight-months-seizure-free-and-christmas.html
Thursday, December 29, 2011. Eight Months Seizure Free and Christmas in Wyoming. The less that I blog, the more that I know that our life is settled into a "new normal". It is not a normal like most of you know, but it is nevertheless a normal that is pleasant, purposeful, and possibly even filled with hope for the future. But this year, we made it! On the way up, we were able to attend the 2011 Hemi. Jam, Concert, benefitting. Foundation http:/ www.HemiFoundation.org. Huston did an outstading. Gary and ...
