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Ava's Blog, Living with Kleefstra Syndrome

Ava's Blog, Living with Kleefstra Syndrome. Ava has Kleefstra Syndrome (Chromosome 9q34.3 Deletion Syndrome). Friday, November 21, 2014. PA Resource Page has been updated. I have updated a few things and added some more resources on the page. Check it out or if you know of a loved one with a special needs child/person, please send them the link. Some of this information is not widely known and can benefit the people that need it m. Links to this post. Wednesday, September 17, 2014. Links to this post.

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Ava's Blog, Living with Kleefstra Syndrome | amazingava.com Reviews

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Ava's Blog, Living with Kleefstra Syndrome. Ava has Kleefstra Syndrome (Chromosome 9q34.3 Deletion Syndrome). Friday, November 21, 2014. PA Resource Page has been updated. I have updated a few things and added some more resources on the page. Check it out or if you know of a loved one with a special needs child/person, please send them the link. Some of this information is not widely known and can benefit the people that need it m. Links to this post. Wednesday, September 17, 2014. Links to this post.

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3 photos of ava

4 videos of ava

5 tests and procedures

6 disability resources

7 kleefstra info

8 resources page

9 posted by maria

10 no comments

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Ava's Blog, Living with Kleefstra Syndrome | amazingava.com Reviews

https://amazingava.com

Ava's Blog, Living with Kleefstra Syndrome. Ava has Kleefstra Syndrome (Chromosome 9q34.3 Deletion Syndrome). Friday, November 21, 2014. PA Resource Page has been updated. I have updated a few things and added some more resources on the page. Check it out or if you know of a loved one with a special needs child/person, please send them the link. Some of this information is not widely known and can benefit the people that need it m. Links to this post. Wednesday, September 17, 2014. Links to this post.

INTERNAL PAGES

amazingava.com

1

Ava's Blog: What is Kleefstra Syndrome?

http://www.amazingava.com/p/kleefstra-syndrome-info.html

Living, loving, and learning life with Kleefstra Syndrome. What is Kleefstra Syndrome? What is Kleefstra Syndrome? For more information on Kleefstra visit rarechromo.org. September 17, 2015. 96 families from across the world shared their Kleefstra Children for a video montage. May 6, 2015 at 3:53 PM. Hi Maria, What an amazing website. Is there a way to contact you directly via email? Subscribe to: Posts (Atom). Ava is a beautiful 10 year old little girl.

2

Ava's Blog: May 2014

http://www.amazingava.com/2014_05_01_archive.html

Living, loving, and learning life with Kleefstra Syndrome. What is Kleefstra Syndrome? No posts. Show all posts. No posts. Show all posts. Subscribe to: Posts (Atom). Ava is a beautiful 10 year old little girl. That has Kleefstra Syndrome (pronounced Clayf-stra and also known as Chromosome 9q34.3 Subtelomeric Deletion Syndrome). This blog is all about what she does, therapy, news, pictures and the absolute joy she brings to everyone around her.

3

Ava's Blog: November 2013

http://www.amazingava.com/2013_11_01_archive.html

Living, loving, and learning life with Kleefstra Syndrome. What is Kleefstra Syndrome? No posts. Show all posts. No posts. Show all posts. Subscribe to: Posts (Atom). Ava is a beautiful 10 year old little girl. That has Kleefstra Syndrome (pronounced Clayf-stra and also known as Chromosome 9q34.3 Subtelomeric Deletion Syndrome). This blog is all about what she does, therapy, news, pictures and the absolute joy she brings to everyone around her.

4

Ava's Blog: September 2014

http://www.amazingava.com/2014_09_01_archive.html

Living, loving, and learning life with Kleefstra Syndrome. What is Kleefstra Syndrome? No posts. Show all posts. No posts. Show all posts. Subscribe to: Posts (Atom). Ava is a beautiful 10 year old little girl. That has Kleefstra Syndrome (pronounced Clayf-stra and also known as Chromosome 9q34.3 Subtelomeric Deletion Syndrome). This blog is all about what she does, therapy, news, pictures and the absolute joy she brings to everyone around her.

5

Ava's Blog: November 2014

http://www.amazingava.com/2014_11_01_archive.html

Living, loving, and learning life with Kleefstra Syndrome. What is Kleefstra Syndrome? No posts. Show all posts. No posts. Show all posts. Subscribe to: Posts (Atom). Ava is a beautiful 10 year old little girl. That has Kleefstra Syndrome (pronounced Clayf-stra and also known as Chromosome 9q34.3 Subtelomeric Deletion Syndrome). This blog is all about what she does, therapy, news, pictures and the absolute joy she brings to everyone around her.

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faithsmomsblog.blogspot.com

Faith's Mom's Blog: Goodbye to Our Special Tomato

http://faithsmomsblog.blogspot.com/2012/06/goodbye-to-our-special-tomato.html

Shield of Faith Publishing. Friday, June 1, 2012. Goodbye to Our Special Tomato. Today we said goodbye to our Special Tomato adaptive car seat. And special it was. It helped Faith stay safe and secure in our Hyundai driving her back and forth to therapy appointments, shopping excursions and many other activities. It also helped us through our time of not being able to afford an accessible van. Like all adaptive equipment. Faith in her adaptive car seat, The Special Tomato. We have been wanting to donate ...

faithsmomsblog.blogspot.com

Faith's Mom's Blog: Special Needs

http://faithsmomsblog.blogspot.com/p/special-needs.html

Shield of Faith Publishing. Adaptive Toys for Special Needs Children. There are many kinds of adaptive toys available for special needs children, you just have to know where to find them. If you find that these toys are too expensive, you can learn to make adaptive toys for your special needs child. How Assistive Technology Helps Students with Disabilities. The Importance of an Individual Education Plan for Your Special Needs Child. Adaptive Equipment for Children with Cerebral Palsy. One of the hardest ...

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Faith's Mom's Blog: Our Super Spring Weekend!

http://faithsmomsblog.blogspot.com/2015/03/our-super-spring-weekend.html

Shield of Faith Publishing. Sunday, March 15, 2015. Our Super Spring Weekend! Normally around this time of year, North Dakotans are nearly dying for spring to come. This was the case early last week when the temperature dipped to six degrees below zero. But then a small miracle took place - temperatures soared to over 70 degrees! This year's speaker, Jennifer Beckham. I had so much fun spending the morning with my mom, niece, sister-in-law, one of my aunts and a couple of friends who sat at the table I h...

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Faith's Mom's Blog: Tuesday Tidbits - Paperwork, Cupcake Sheets and an Upcoming Appointment

http://faithsmomsblog.blogspot.com/2011/09/tuesday-tidbits-paperwork-cupcake.html

Shield of Faith Publishing. Tuesday, September 27, 2011. Tuesday Tidbits - Paperwork, Cupcake Sheets and an Upcoming Appointment. Lately I've been inundated with paperwork so that Faith can continue to receive SSI and Medicaid. Just recently I had to fill out forms to prove to the good people at Social Security that Faith still has a disability and is still eligible to receive funds. She was pretty happy to get out of there. I have been thinking for a while how cute it would be for Faith's room to have a...

faithsmomsblog.blogspot.com

Faith's Mom's Blog: Guest Post

http://faithsmomsblog.blogspot.com/2011/03/guest-post.html

Shield of Faith Publishing. Friday, March 25, 2011. 7 Kid-Friendly Alternatives to Television. By Jessica P., who has written about online nursing classes. And how to obtain a degree in social work. Our kids are spending far too much time in front of glowing tubes, especially the television. The American Academy of Child and Adolescent Psychiatry. States that the average American child spends about three to four hours per day. Reading books with your children. Break out the Board Games. Take a Field Trip.

faithsmomsblog.blogspot.com

Faith's Mom's Blog: Saturday Outings

http://faithsmomsblog.blogspot.com/2015/02/saturday-outings.html

Shield of Faith Publishing. Sunday, February 1, 2015. Faith is bundled up and ready to roll! Yesterday, even though the temperature was only in the single digits, she wanted to go to the The Big Event Carnival. It's held every year at the Bismarck Civic Center and is hosted by the area Child Evangelism Fellowship. Faith and D'Ette from the Healing Rooms. Faith is excited to find Lola and the Healing Rooms blessing tent! It was fun and of course now she's asking when we can go again! Bible Verse of the Day.

faithsmomsblog.blogspot.com

Faith's Mom's Blog: A Stormy Father's Day Weekend

http://faithsmomsblog.blogspot.com/2015/06/a-stormy-fathers-day-weekend.html

Shield of Faith Publishing. Sunday, June 21, 2015. A Stormy Father's Day Weekend. This Father's Day weekend here in North Dakota started off a little rough with a major storm that swept across the state on Friday night. Faith and I were home alone when it reached Bismarck around 9:00 pm Rob was still at the office working and I was on the computer finishing up a few articles. This tree went down a block from our office in downtown Bismarck. It's hard to see but this is a traffic light that also went down.

faithsmomsblog.blogspot.com

Faith's Mom's Blog: June 2015

http://faithsmomsblog.blogspot.com/2015_06_01_archive.html

Shield of Faith Publishing. Sunday, June 21, 2015. A Stormy Father's Day Weekend. This Father's Day weekend here in North Dakota started off a little rough with a major storm that swept across the state on Friday night. Faith and I were home alone when it reached Bismarck around 9:00 pm Rob was still at the office working and I was on the computer finishing up a few articles. This tree went down a block from our office in downtown Bismarck. It's hard to see but this is a traffic light that also went down.

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Ava's Blog, Living with Kleefstra Syndrome

Ava's Blog, Living with Kleefstra Syndrome. Ava has Kleefstra Syndrome (Chromosome 9q34.3 Deletion Syndrome). Friday, November 21, 2014. PA Resource Page has been updated. I have updated a few things and added some more resources on the page. Check it out or if you know of a loved one with a special needs child/person, please send them the link. Some of this information is not widely known and can benefit the people that need it m. Links to this post. Wednesday, September 17, 2014. Links to this post.

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