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An Angel called Amelie

I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.

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An Angel called Amelie | anangelcalledamelie.blogspot.com Reviews
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I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.
<META>
KEYWORDS
1 pages
2 my blog
3 amelie
4 dear amelie
5 photos
6 helpful resources
7 poems
8 3 weeks old
9 so playful
10 posted by
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pages,my blog,amelie,dear amelie,photos,helpful resources,poems,3 weeks old,so playful,posted by,zita,4 comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,waiting for ryder,5 comments,happy birthday amelie,we remember,no ip
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An Angel called Amelie | anangelcalledamelie.blogspot.com Reviews

https://anangelcalledamelie.blogspot.com

I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.

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anangelcalledamelie.blogspot.com anangelcalledamelie.blogspot.com
1

An Angel called Amelie: 18 Months...

http://anangelcalledamelie.blogspot.com/2013/01/18-months.html

An Angel called Amelie. THE DISORDER: Incontinentia Pigmenti. Saturday, January 26, 2013. Im sitting here, remembering Amelie. Xoxo. January 27, 2013 at 5:06 AM. Thinking of you honey. Today is my due date and I woke with a heavy heart, this journey is so tough xxxx. February 2, 2013 at 1:51 AM. I found this blog by pure accident, and I sincerely wish you the best. March 8, 2013 at 12:22 AM. Subscribe to: Post Comments (Atom). View my complete profile. Ethereal theme. Theme images by blue baron.

2

An Angel called Amelie: AMELIE

http://anangelcalledamelie.blogspot.com/p/amelies-life.html

An Angel called Amelie. THE DISORDER: Incontinentia Pigmenti. Today, thinking back to this moment breaks my heart. How could we be so naïve? How could we be so wrong. How could we just assume? 2011 an Angel called Amelie was born as our baby fell asleep in our arms. She was surrounded by love and light as we said goodbye her. She left this earth a much better place than it was before she came, even if she was only here for 19 days. I am so proud of her. Subscribe to: Posts (Atom). View my complete profile.

3

An Angel called Amelie: Our False PGD Result: The Explaination...

http://anangelcalledamelie.blogspot.com/2012/09/the-explaination.html

An Angel called Amelie. THE DISORDER: Incontinentia Pigmenti. Wednesday, September 19, 2012. Our False PGD Result: The Explaination. As 97-98% healthy. Ugh…we just got unlucky again. It seems we were really the 2-3 %. Hard to believe and comprehend. Why do these things keep happening to us? How does this happen? I don’t know. What options do I have as a woman with IP? Can I face more losses? What choice do I even have? The lab and doctors are understandably treating us with extra caution. This just c...

4

An Angel called Amelie: 2 Years

http://anangelcalledamelie.blogspot.com/2013/08/2-years.html

An Angel called Amelie. THE DISORDER: Incontinentia Pigmenti. Wednesday, June 26, 2013. Our bond will never be broken, my love for you will never fade. Stronger than death, more than the eye can see. I love you sweetie, Happy Birthday! Happy birthday sweet Amelie! August 31, 2013 at 8:02 PM. Subscribe to: Post Comments (Atom). View my complete profile. Ethereal theme. Theme images by blue baron.

5

An Angel called Amelie: POEMS

http://anangelcalledamelie.blogspot.com/p/beautiful-poems-by-others.html

An Angel called Amelie. THE DISORDER: Incontinentia Pigmenti. I wanted so much more for you, my sweet little baby. I wanted to change your diapers, not my life. I wanted to nurse you, not my grief. I wanted to dress you up, not bury you down. I wanted to hear the sounds of you crying for me at night,. And not my own sounds of crying for you,. My innocent, misconceived baby. I wanted to see you grow, not the grass upon the grave. I wanted to see you asleep in the crib, not in the casket. I wanted so much.

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thepoppiesblog.wordpress.com thepoppiesblog.wordpress.com

Колко деца имате? | Макове за Мери

https://thepoppiesblog.wordpress.com/2012/07/01/how-many-childre

Мари Клекли, САЩ. В началото, когато все още имах нужда да казвам на хората, че синът ми е починал, разказвах подробно за катастрофата, всеки път, когато ме питаха за броя на децата ми. Времето минаваше и аз бях разказвала историята достатъчно пъти, затова вече нямах нужда да влизам в детайли. Моите нужди се бяха променили и аз премислих отговора си. За родителите, скоро загубили дете. Тъгуващият човек ръководство за употреба →. Въведете коментара си тук. Адресът няма да бъде публикуван). I lost a world.

thepoppiesblog.wordpress.com thepoppiesblog.wordpress.com

октомври | 2012 | Макове за Мери

https://thepoppiesblog.wordpress.com/2012/10

Monthly Archives: октомври 2012. Б четвъртък в-к Монитор публикува следната дописка: МАРИЯ ВАСИЛЕВА 04.10.2012 От столичната АГ болница Майчин дом са отпратили бременна, чието бебе било мъртво в корема й. За скандалния случай съобщиха […]. Read Article →. Да помогнем на живите си деца. Тъгуващият човек ръководство за употреба. Нашите деца не са биологичен отпадък! Моля, подпиши петицията! Клик на снимката.). Faces of Loss, Faces of Hope. Glow in the Woods. Загуба на бебе преди раждането. I lost a world.

thepoppiesblog.wordpress.com thepoppiesblog.wordpress.com

юли | 2012 | Макове за Мери

https://thepoppiesblog.wordpress.com/2012/07

Monthly Archives: юли 2012. Трябва първо да ни завие пръстта. Да наметне земята отгоре пъстър юрган от орехова шума. Да се отбрулят кестените. Да се оголят акациите, за да ни стоплят, когато няма друго. […]. Read Article →. Когато чакаме бебе, се вълнуваме. Купуваме креватче и количка, гладим мънички бебешки дрешки и си мислим как ще се промени животът ни с появата на малкия човек. Дори и да […]. Read Article →. Да помогнем на живите си деца. Read Article →. Тъгуващият човек ръководство за употреба.

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За родителите, скоро загубили дете | Макове за Мери

https://thepoppiesblog.wordpress.com/2012/07/01/recently-bereaved

За родителите, скоро загубили дете. По материали от американския сайт Bereaved parents of the USA. Смъртта на дете на всякаква възраст и при всякакви обстоятелства е един от най-тежките удари, които човек може да преживее. Пътуването през тази мъка е много дълго, тъмно, трудно и болезнено. След смъртта на нашите деца ние сме принудени да направим невъзможното – да изградим нов живот за себе си и за семействата ни, в свят, в който любимите ни деца вече ги няма. Но точно сега трябва да следвате инстинктите...

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Yana | Макове за Мери

https://thepoppiesblog.wordpress.com/author/babymarulka

Б четвъртък в-к Монитор публикува следната дописка: МАРИЯ ВАСИЛЕВА 04.10.2012 От столичната АГ болница Майчин дом са отпратили бременна, чието бебе било мъртво в корема й. За скандалния случай съобщиха […]. Read Article →. Трябва първо да ни завие пръстта. Да наметне земята отгоре пъстър юрган от орехова шума. Да се отбрулят кестените. Да се оголят акациите, за да ни стоплят, когато няма друго. […]. Read Article →. Read Article →. Да помогнем на живите си деца. Read Article →. Read Article →. По материал...

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Библиотека | Макове за Мери

https://thepoppiesblog.wordpress.com/библиотека

Поради отчайващата липса на литература по всички въпроси, свързани със загубата на бебета и деца в България, реших, че ще е хубаво да си имаме библиотека. Ако искате да вземете книга от нас за временно ползване,. Свържете се с мен на poppiesformary@gmail.com или скайп poppiesformary. Ако искате да ни помогнете. Да попълним липсващите заглавия, като дарите книга, можете да се свържете с мен на същия адрес. Ето го нашият Amazon Wishlist. Empty Cradle, Broken Heart. От Elizabeth McCracken. Великолепен р...

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Да помогнем на живите си деца | Макове за Мери

https://thepoppiesblog.wordpress.com/2012/07/02/living-children

Да помогнем на живите си деца. Искаме да защитим децата си от мъката в живота, но не можем. Когато смъртта посети дома ни, живите ни деца също са засегнати и трябва да помислим как реагират, как можем да им помогнем и как да им позволим те да ни помогнат. Преди да поговорим за различните начини, по които децата възприемат смъртта, трябва да помним следното, докато общуваме с тях. 1Децата трябва да могат да реагират на смъртта по своя собствен начин. Затова децата реагират на своята загуба, не на нашата&#...

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Тъгуващият човек – ръководство за употреба | Макове за Мери

https://thepoppiesblog.wordpress.com/2012/07/01/mourning

Тъгуващият човек ръководство за употреба. Събудих се снощи и разбрах, че съм прекалила със социализацията през уикенда. Чувствах се като блъсната от камион. Не че ми беше зле, напротив даже хванах слънце на пейката в парка, от която наблюдавах как Михаела си играе с приятелката си. Обаче за тъгуващия човек комуникацията е изморителна и трябва да се практикува с мярка. Той, мен ако питате, си има важна работа да тъгува. Въпросът е в мярката, както казват баща ми и Еклесиаст, 3-та глава. На нещо, което му ...

thepoppiesblog.wordpress.com thepoppiesblog.wordpress.com

Невидимите деца | Макове за Мери

https://thepoppiesblog.wordpress.com/2012/07/04/invisible-children

Изведнъж не можеш да си познаеш живота аз не можех. Не можеш да познаеш дори себе си… Бебето не се е изпарило просто от корема ти. Родила си го, но си тръгваш от болницата с празни ръце. У дома прибираш ухаещите на чисто дрешки, но не знаеш за кого няма кой да ги носи. Тялото ти прави мляко, но няма кого да нахраниш… Празно е. Празно и тъжно. И сред всичко това ще се намери някой да ти каже, че така е по-добре… Съвсем добронамерено. Можело е да бъде и по-зле. Дали? Нали уж е милостив и всемогъщ? Удивител...

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