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Andrew's Journey | Life with Hypoplastic Left Heart SyndromeLife with Hypoplastic Left Heart Syndrome (by Carrie)
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Andrew's Journey | Life with Hypoplastic Left Heart Syndrome | andrewsjourney.wordpress.com Reviews
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Life with Hypoplastic Left Heart Syndrome (by Carrie)
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Andrew's Journey | Life with Hypoplastic Left Heart Syndrome | Page 2
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Life with Hypoplastic Left Heart Syndrome. All you ever wanted to know about hearts…. July 10, 2011. I have written and deleted this post several times… mostly because it gets too long! Here is how a normal heart works. Here is a great description of Andrew’s defect. It took Andrew two surgeries to get through the first stage and showed us that each kid has their own path on the journey. We have never done anything at the age that is recommended. Andrew’s Norwood with Sano Modification. It also took Andr...
Home Sweet Home | Andrew's Journey
https://andrewsjourney.wordpress.com/2011/07/25/home-sweet-home
Life with Hypoplastic Left Heart Syndrome. Laquo; The end is in sight…. So sorry for the lack of a post letting everyone know that we are now home! We may have figured out the Coumadin for the time being. Andrew has to go in for INR checks to make sure that his dose is in the therapuetic range. One of the fears that everyone has is that he will spike high again. So far, so good! Overall, it is wonderful to be home! This entry was posted on July 25, 2011 at 12:47 pm and is filed under Uncategorized. July ...
Pre-op Fun | Andrew's Journey
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Life with Hypoplastic Left Heart Syndrome. Laquo; All you ever wanted to know about hearts…. Fontan Recovery- 1st night. The Day of the Fontan started early… the alarm went off at 4:20am so that we could be at the hospital between 5:30 and 6:00am. Got off to an exciting start when we realized that we woke up to pouring rain… not something we see often in the desert! Only two nurses were needed this time around. This entry was posted on July 11, 2011 at 9:55 am and is filed under Uncategorized. 3 Response...
March | 2011 | Andrew's Journey
https://andrewsjourney.wordpress.com/2011/03
Life with Hypoplastic Left Heart Syndrome. Archive for March, 2011. Where we are and where we are going. March 31, 2011. It has been way to long since my last Andrew update. So first up is where we are now…. We saw Andrew’s cardiologist today for a regular follow-up visit. He wanted to take a look at Andrew, check on his weight and talk about the next surgery. Andrew did really great at the appointment and was our first one ever that he did not fuss about anything. Such a big boy! Thank you for all of th...
January | 2011 | Andrew's Journey
https://andrewsjourney.wordpress.com/2011/01
Life with Hypoplastic Left Heart Syndrome. Archive for January, 2011. A Plan of Action. January 15, 2011. Combine that with only 1/2 of a heart and you get a very high metabolism. Anyway, they have been talking about placing a feeding tube in order for us to feed him at night. We are not impressed or sold on the idea. So we now have a plan! And don’t think a feeding tube is necessary at this time! Hypoplastic Left Heart Syndrome. Posted in Doctor Visit. Phoenix Children's Hospital. Get every new post del...
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Andrew's Journey | Life with Hypoplastic Left Heart Syndrome
Life with Hypoplastic Left Heart Syndrome. September 20, 2011. His blood pressures were all his normal… low in the right arm (narrowing artery), really low in the right leg (occluded arteries in his groin) and good pressures in his left arm and leg (no issues there! He was such a good boy with everything… and is growing up so fast! Doing is all by himself. such a big boy! The exam table makes a great race track or in this case, place to crash cars. So overall, he is doing great! Thanks for checking in wi...
Andrew's Journey
A two-and-a-half year-old confronts the genetic disorder XLP. Monday, September 6, 2010. Monday, 9/06/2010, 10 pm. Top billing tonight goes to helping the organization that took such good care of Andrew and us while we stayed in Baltimore: The Believe In Tomorrow Children's Foundation. Believe In Tomorrow is one of many organizations looking for funding through a program run by Pepsi. Instructions follow on how you can vote for this worthy cause. PLEASE VOTE FOR THEM EVERY DAY! 2 Click the vote button.
andrewsjourney16p.blogspot.com
Andrew's Journey
Andrew has been diagnosed with an Autism Spectrum Disorder(ASD). He has a small deletion on chromosome 16. His diagnosis is chromosome 16p13.3 deletion and there are no other documentated cases with his particular karotype. He also has a seizure disorder and low muscle tone as well. This is Andrew's Journey describing his difficulties, our family, and our life. Tuesday, August 7, 2012. The precious little things that are now gone. I'm longing for the kisses to come back! My hope is that all those with sp...
Andrew's Journey Blog — Dynamic Speaker, Oscar-winning Broadcaster Blog
Andrew's Journey Blog. Lincoln’s 81 Bottles of Champagne. April 25, 2011. I recently had the chance to visit Vandalia, Illinois. Our stories from that city will air next week on the American Countryside. You’re beginning to hear quite a bit about Abraham Lincoln since this is the 150. Anniversary of his presidency and the beginning of the Civil War. Most people don’t realize that Lincoln’s political life began in Vandalia. Bill fron Lincoln and the Long Nines Party in Vandalia. Living in the Land of Oaks.
John Andrews Gardening Thoughts
John Andrews Gardening Thoughts. John is landscaping the yard of his new house and trying to make it maintenance free so he can go on RV trips easily. The starting point for the back yard was a few trees, a broken shed and then just lawn. The work started in June, 2004 and continues. Sunday, August 08, 2010. The big hostas hiding the air conditioner are in bloom now. I can look out the window and see a big row of these blossoms above the big green leaves. Posted by John A @ 4:37 PM. Several rabbits frequ...
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