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angelphace.com

Welcome to AngelPHACE.com

Welcome to AngelPHACE.com. This site is for friends, family and anyone else interested in how Arielle is facing PHACE Syndrome. It is dedicated to all those born with birth defects, or encounter other trying times. It honors the powers of faith, modern medicine, and belief in the human spirit - and the wondrous miracles the combination of all three can accomplish.

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Welcome to AngelPHACE.com. This site is for friends, family and anyone else interested in how Arielle is facing PHACE Syndrome. It is dedicated to all those born with birth defects, or encounter other trying times. It honors the powers of faith, modern medicine, and belief in the human spirit - and the wondrous miracles the combination of all three can accomplish.
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Welcome to AngelPHACE.com | angelphace.com Reviews

https://angelphace.com

Welcome to AngelPHACE.com. This site is for friends, family and anyone else interested in how Arielle is facing PHACE Syndrome. It is dedicated to all those born with birth defects, or encounter other trying times. It honors the powers of faith, modern medicine, and belief in the human spirit - and the wondrous miracles the combination of all three can accomplish.

INTERNAL PAGES

angelphace.com angelphace.com
1

Timeline

http://www.angelphace.com/timeline.php

Interested in a shortened, play-by play version of our unfolding story? Then this is the section for you! Skip straight to the bottom if you just need the latest. February 15, 2008: Arielle is born via C-section. Welcome our little 6.5-pound angel! In addition to her radiant beauty, we notice a tiny strawberry-tinted patch on the right side of her head, red spot on the tip of her nose, and cloudiness in her right eye. March 20, 2008: Echocardiogram shows Arielle's heart is structurally and functionally n...

2

How To Help

http://www.angelphace.com/help.php

Our deepest heartfelt thanks to the many of you that have extended the following:. Clothes, shoes, blankets and other baby gear. Assistance with yard/house work. Financially, we're grateful we haven't encountered anything we haven't been able to cover with a bunch of belt-tightening to our personal budget. If you would like to honor Arielle with a donation, please visit the LINKS.

3

Glossary

http://www.angelphace.com/glossary.php

Terms below integrate medical definitions with "plain speak" explanations. A benign, self-healing tumor of endothelial cells (the cells that line blood vessels). Hemangiomas typically go through a 3-phase cycle:. Proliferation - when the hemangioma grows very quickly, lasting anywhere from 6-12 months. Rest - when there's very little growth, generally until the infant is 1 or 2 years old. Agenesis of the Corpus Callosum. Scleralization of the Cornea.

4

PHACE and ACC Related Links

http://www.angelphace.com/links.php

National Organization of Vascular Anomalies:. National Organization for Disorders of the Corpus Callosum. Mighty Quinn's story, and fund raising call to get him a trip to NY to receive an operation:.

5

PHACE Syndrome

http://www.angelphace.com/phace.php

PHACE Syndrome is the uncommon association between large infantile hemangiomas, usually of the face, and birth defects of the brain, heart, eyes, skin and/or arteries. It is an acronym that stands for the medical names of the parts of the body it often impacts:. Posterior fossa abnormalities and other structural brain abnormalities. Hemangioma(s) of the cervical facial region. Cardiac defects, aortic coarctation and other aortic abnormalities. Sometimes, an S. Is added making it PHACES.

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brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: King Look-alike Meter

http://brandis-playtapea.blogspot.com/2009/02/king-look-alike-meter_28.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Saturday, February 28, 2009. Here's one for Riley. I've always known that Riley looks like Jaden, but again I have never seen a strong resemblance to either Peter or me. Maybe that's a good thing :). This is so cute! July 19, 2010 at 9:01 PM.

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: Oh, Those Silly Kids

http://brandis-playtapea.blogspot.com/2009/01/oh-those-silly-kids.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Oh, Those Silly Kids. Wednesday, January 21, 2009. Oh, Those Silly Kids. It's a bird.it's a plane.it's SUPERMAN! Ever wonder why boys smell like dirty socks? Thank you for these little juicy daily-life tidbits! They make my heart smile –. Don't get stinky YET!

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: December 2008

http://brandis-playtapea.blogspot.com/2008_12_01_archive.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Jump in the Shower. Hugs, Kisses, High Fives. Rollin, Rollin, Rollin. Sleep, Beautiful Sleep. Tuesday, December 30, 2008. Jump in the Shower. Here's another funny Jaden story. . . Saturday, December 20, 2008. Hugs, Kisses, High Fives. Anyway, I digress. Bac...

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: Growing Up

http://brandis-playtapea.blogspot.com/2009/01/growing-up.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Oh, Those Silly Kids. Tuesday, January 20, 2009. So, what have they done lately, you ask? Jaden climbed right in. We tucked him under the covers and turned out the light. I snuck back into the room a couple hours later to check on him, and this is what I found.

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: May 2008

http://brandis-playtapea.blogspot.com/2008_05_01_archive.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Saturday, May 31, 2008. This week, Peter, Jaden, and I had the privilege of flying to Colorado to help celebrate Grey's graduation ceremonies. It was a short trip, and chock full of activities with little sleep, but it was well worth it. The weather finally imp...

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: Hugs, Kisses, High Fives

http://brandis-playtapea.blogspot.com/2008/12/hugs-kisses-high-fives.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Jump in the Shower. Hugs, Kisses, High Fives. Rollin, Rollin, Rollin. Sleep, Beautiful Sleep. Saturday, December 20, 2008. Hugs, Kisses, High Fives. Anyway, I digress. Back to the story. . . Each with more excitement than the last.

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: King Look-alike Meter

http://brandis-playtapea.blogspot.com/2009/02/king-look-alike-meter.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Saturday, February 28, 2009. Those look like fun, will have to try it:). March 6, 2009 at 1:13 PM. Subscribe to: Post Comments (Atom).

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: August 2008

http://brandis-playtapea.blogspot.com/2008_08_01_archive.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. The Rest of the Story. Saturday, August 30, 2008. Riley is here. . .Yippee! So, now I can hold him, nurse him, and then eat, right? In my next post, I'll recount Jaden's first meeting with his baby brother. Stay tuned. . . Sunday, August 17, 2008. When I left o...

brandis-playtapea.blogspot.com brandis-playtapea.blogspot.com

Play Tape A: October 2008

http://brandis-playtapea.blogspot.com/2008_10_01_archive.html

A voice in my head speaks to me as I journey through life. Here's some of what it has to say. . . Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Do You Have Horns? Thursday, October 16, 2008. Do You Have Horns? He reached around to his back and said, "No." Very good. I asked him, "Do you have horns? Very, very good. That's the funny part. The boy already bleeds burnt orange. :).

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Welcome to AngelPHACE.com

Welcome to AngelPHACE.com. This site is for friends, family and anyone else interested in how Arielle is facing PHACE Syndrome. It is dedicated to all those born with birth defects, or encounter other trying times. It honors the powers of faith, modern medicine, and belief in the human spirit - and the wondrous miracles the combination of all three can accomplish.

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Welcome to AngelPHACE.com

Welcome to AngelPHACE.com. This site is for friends, family and anyone else interested in how Arielle is facing PHACE Syndrome. It is dedicated to all those born with birth defects, or encounter other trying times. It honors the powers of faith, modern medicine, and belief in the human spirit - and the wondrous miracles the combination of all three can accomplish.

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