brainrebel.blogspot.com
The Chronicles of a Rebel Brain: A New Hope
http://brainrebel.blogspot.com/2012/04/taking-simvistatin-for-cavernous.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Wednesday, April 11, 2012. Good news on the home front! There are a few medications that have been getting researched for possible benefits for cavernous malformations, one of which is simvastatin (brand name Zocor ™) and is a generic and long studied medication typically prescribed for cholesterol management, and is readily available. And as of yesterday I am taking this! My condition is known to manifest in part...
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: December 2011
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The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Friday, December 16, 2011. Its been a heck of a 6 weeks giving notice and helping the company ramp folks up to take over my day to day operations. I strive to make this departure as seamless as possible including training my replacements and putting things in good order. We have some false starts on this, so its good that we have 6 weeks to handle this transition! Subscribe to: Posts (Atom). Click scan for more.
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: December 2010
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The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Friday, December 31, 2010. Day 3 - Trouble Begins - New Year's Eve. Another great day in the snow. But now I am starting to feel off. Not totally sick, but definitely not well. Not thinking too much of it, was it what I ate last night? Too much to drink? Typical stuff when on vacation. Spent most of the night in that chair, but came back enough to smile for the camera! Thursday, December 30, 2010. Today is a norma...
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: January 2011
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The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Friday, January 28, 2011. One Month Anniversary - Appt with Neurologist. I have an appointment with a neurologist at Palo Alto Medical Foundation. I don't have a referral and get the appointment pretty quickly a few days before. I get the MRI the same day even though my case is tagged non-urgent. God bless America, where private insurance can you get the best of care quickly! Saturday, January 15, 2011. Discussing...
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: January 2012
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The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Saturday, January 21, 2012. Thursday, January 12, 2012. Its odd how my brain rebels. Granted its dealing with the cavernous angioma displacing bits on the inside, but its brainstem, core physical wiring type stuff, not cerebral. Subscribe to: Posts (Atom). Start from the beginning. Click scan for more. International Cavernous Angioma Patient Registry. Book: Cavernous Malformations of the Nervous System.
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: No More Hangovers!
http://brainrebel.blogspot.com/2012/04/no-more-hangovers.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Sunday, April 8, 2012. I went on a great vacation down to L.A., and Palm Springs this week. Visiting family, great weather, golf, pool, lovely! I might have had a few drinks on a couple of nights. But the next morning I don't suffer the consequences anymore! So my new normal has some upside, woo-hoo! May 5, 2012 at 8:06 AM. Haha, theres a positive attitude :P. May 5, 2012 at 3:47 PM. May 15, 2012 at 1:48 PM. Aweso...
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The Chronicles of a Rebel Brain: February 2012
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The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Wednesday, February 29, 2012. Continuing through Monday and Tuesday I get twinges of vertigo when I turn too quickly and do mundane things like unloading the dishwasher. Its not pleasant and I cannot do much of this before needing to lie down and let the nausea subside. Saturday, February 25, 2012. I had the best couple of days here with my family. Pushed myself a bit and it was great. First, Friday we go ice skat...
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: October 2011
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The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Saturday, October 29, 2011. I have had dinner with my dad recently as he was in town for a conference. He has been hearing what a pressure cooker work is and can relate himself. He also has personal experience with the sacrifices of burying oneself with work, the hard work ethic runs in the familiy :) He is a doctor and actually he has always worked much harder than I ever have. Ironically my initial response is o...
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: Well that sucks
http://brainrebel.blogspot.com/2012/03/well-that-sucks.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Friday, March 16, 2012. Anger, frustration, disappointment, annoyance. There have been a wide spectrum of feelings gone through today. Gloomy view from waiting room, foretelling. The visit to the neurosurgeon today was full of hope and promise with the recent discovery of the small hole in my brainstem to access my cavernous angioma. Well guess what, it ain't BIG enough. Elizabeth, John and Jack. K Maxwell Klee III.
brainrebel.blogspot.com
The Chronicles of a Rebel Brain: June 2011
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The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Wednesday, June 15, 2011. I Quit" - But Not Quite. So let me be frank. This job I have been at is insane. The highs and lows are amazing, its a total roller coaster. The industry I am in is pretty unstable, and lot of wild west stuff going on, a real frontier. Trailblazing. Outlaws. You get me. I am living with reckless abandon. Somehow despite all odds my boss saves me. But once someone quits this is usually ...
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