Angioma Alliance is a non-profit international voluntary health organization created by people affected by cavernous angioma (cerebral cavernous malformations).
http://www.angiomaalliance.org/
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Angioma Alliance
Angioma Alliance
107 Quake●●●●●●●●●House Rd.
Will●●●●burg , VA, 23188
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Connie Lee
520 W 21●●●●●●●●E G2-411
No●●lk , VA, 23517
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Connie Lee
520 W 21●●●●●●●●E G2-411
No●●lk , VA, 23517
US
View this contact
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Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support | angiomaalliance.org Reviews
https://angiomaalliance.org
Angioma Alliance is a non-profit international voluntary health organization created by people affected by cavernous angioma (cerebral cavernous malformations).
angiomaalliance.org
Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support
http://www.angiomaalliance.org/index.aspx
Is an organization by and for those affected by cavernous angiomas and their loved ones, health professionals, and researchers. Learn more about Cavernous Angioma. 2016 Team Angioma Alliance T-shirt Unveiled! It's not too early to order your 2016 Team Angioma Alliance t-shirt for your walk or just to spread awareness. VISIT OUR STORE. Join us in Durham, NC for a Patient Conference. On Sept 24th, Angioma Alliance will host a patient conference and awareness walk at Duke University. LEARN MORE. Ryan Westmo...
Main - Overview/History
http://www.angiomaalliance.org/pages.aspx?content=53
Angioma Alliance is a rapidly growing patient-directed network founded in 2002 and dedicated to improving the lives of those affected by cavernous angioma. There are many needs that we have been addressing together. Angioma Alliance can be as active and effective as those who choose to volunteer. If you or a family member or friend is affected by cavernous angioma, please consider joining us in our effort. Our Volunteer Interest Form. Allows you to tell us how you'd like to help.
Overview
http://www.angiomaalliance.org/pages.aspx?content=60
What’s In a Name? These terms are used interchangeably to refer to mulberry-shaped abnormal blood vessels in the brain or spine. Angioma Alliance is an organization for and by individuals who have these abnormal blood vessels and those who care about them. If you have questions about this information, feel free to ask your question on the Community Forum. Or on Facebook in one of our many Angioma Alliance groups. Basic Cavernous Angioma Information. Questions to Ask Your Doctor. Do I Have Sporadic CCM?
Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support
http://www.angiomaalliance.org/volunteer.htm
Please fill out this form and click the Submit button below. Do you have particular skills that you’d like to put to use? For example, we sometimes need help with graphic design, bookkeeping, journalistic writing, press releases, videography, fundraising, event planning, grant writing, legislative advocacy, and secretarial/administrative tasks. Please don’t limit yourself to these chances are that if you have a skill, we can put it to work. What types of activities appeal to you?
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4
Dizzyland: March 2015
http://erinsdizzyland.blogspot.com/2015_03_01_archive.html
My journey with Cavernous Malformations . . . Please donate to help raise money for my surgery. Friday, March 13, 2015. My one year brainnniversary! One year ago I had Damian removed! Here is a video showing the past year! Links to this post. Subscribe to: Posts (Atom). My one year brainnniversary! Slow and steady wins the race. Symptomatic multiple Cavernous Malformations. View my complete profile. Awesome Inc. template. Template images by molotovcoketail.
Dizzyland: Junk
http://erinsdizzyland.blogspot.com/2015/01/junk.html
My journey with Cavernous Malformations . . . Please donate to help raise money for my surgery. Sunday, January 11, 2015. I’m so worthless! My clothes aren’t in style! I’m so ugly! My teeth aren’t white! I have big feet! I have been thinking about New Year’s resolutions the past week and how people use this as a time to really put themselves down. Instead of building themselves up, it’s the total opposite! Well, I have news for you –. GOD DON’T MAKE NO JUNK! I don’t have many friends! I have stringy hair!
The Chronicles of a Rebel Brain: A New Hope
http://brainrebel.blogspot.com/2012/04/taking-simvistatin-for-cavernous.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Wednesday, April 11, 2012. Good news on the home front! There are a few medications that have been getting researched for possible benefits for cavernous malformations, one of which is simvastatin (brand name Zocor ™) and is a generic and long studied medication typically prescribed for cholesterol management, and is readily available. And as of yesterday I am taking this! My condition is known to manifest in part...
The Chronicles of a Rebel Brain: December 2011
http://brainrebel.blogspot.com/2011_12_01_archive.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Friday, December 16, 2011. Its been a heck of a 6 weeks giving notice and helping the company ramp folks up to take over my day to day operations. I strive to make this departure as seamless as possible including training my replacements and putting things in good order. We have some false starts on this, so its good that we have 6 weeks to handle this transition! Subscribe to: Posts (Atom). Click scan for more.
The Chronicles of a Rebel Brain: December 2010
http://brainrebel.blogspot.com/2010_12_01_archive.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Friday, December 31, 2010. Day 3 - Trouble Begins - New Year's Eve. Another great day in the snow. But now I am starting to feel off. Not totally sick, but definitely not well. Not thinking too much of it, was it what I ate last night? Too much to drink? Typical stuff when on vacation. Spent most of the night in that chair, but came back enough to smile for the camera! Thursday, December 30, 2010. Today is a norma...
The Chronicles of a Rebel Brain: January 2011
http://brainrebel.blogspot.com/2011_01_01_archive.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Friday, January 28, 2011. One Month Anniversary - Appt with Neurologist. I have an appointment with a neurologist at Palo Alto Medical Foundation. I don't have a referral and get the appointment pretty quickly a few days before. I get the MRI the same day even though my case is tagged non-urgent. God bless America, where private insurance can you get the best of care quickly! Saturday, January 15, 2011. Discussing...
The Chronicles of a Rebel Brain: January 2012
http://brainrebel.blogspot.com/2012_01_01_archive.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Saturday, January 21, 2012. Thursday, January 12, 2012. Its odd how my brain rebels. Granted its dealing with the cavernous angioma displacing bits on the inside, but its brainstem, core physical wiring type stuff, not cerebral. Subscribe to: Posts (Atom). Start from the beginning. Click scan for more. International Cavernous Angioma Patient Registry. Book: Cavernous Malformations of the Nervous System.
The Chronicles of a Rebel Brain: No More Hangovers!
http://brainrebel.blogspot.com/2012/04/no-more-hangovers.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Sunday, April 8, 2012. I went on a great vacation down to L.A., and Palm Springs this week. Visiting family, great weather, golf, pool, lovely! I might have had a few drinks on a couple of nights. But the next morning I don't suffer the consequences anymore! So my new normal has some upside, woo-hoo! May 5, 2012 at 8:06 AM. Haha, theres a positive attitude :P. May 5, 2012 at 3:47 PM. May 15, 2012 at 1:48 PM. Aweso...
The Chronicles of a Rebel Brain: February 2012
http://brainrebel.blogspot.com/2012_02_01_archive.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Wednesday, February 29, 2012. Continuing through Monday and Tuesday I get twinges of vertigo when I turn too quickly and do mundane things like unloading the dishwasher. Its not pleasant and I cannot do much of this before needing to lie down and let the nausea subside. Saturday, February 25, 2012. I had the best couple of days here with my family. Pushed myself a bit and it was great. First, Friday we go ice skat...
The Chronicles of a Rebel Brain: October 2011
http://brainrebel.blogspot.com/2011_10_01_archive.html
The Chronicles of a Rebel Brain. My journey with a cavernous malformation in the brainstem. Saturday, October 29, 2011. I have had dinner with my dad recently as he was in town for a conference. He has been hearing what a pressure cooker work is and can relate himself. He also has personal experience with the sacrifices of burying oneself with work, the hard work ethic runs in the familiy :) He is a doctor and actually he has always worked much harder than I ever have. Ironically my initial response is o...
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Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support
Learn more about becoming a volunteer ». Is an organization by and for those affected by cavernous angiomas and their loved ones, health professionals, and researchers. Learn more about Cavernous Angioma. WAYS TO GET INVOLVED. Plan an Event in Your Area. Join an Action Group. Shop to Support Us. The Ryan Challenge 2015! All donations from new donors marked "Ryan" will be matched up to $100,000! Summer Newsletter is out. Read about the latest research, event news and more. Our biggest awareness event ever!
The International Cavernous Angioma Patient Registry
Skip to main navigation. Skip to 1st column. Skip to 2nd column. The International Cavernous Angioma Patient Registry. International Cavernous Angioma Patient Registry. Register today to complete your profile and join our growing community of families. International Cavernous Angioma Patient Registry. Register today to complete your profile and join our growing community of families. International Cavernous Angioma Patient Registry. International Cavernous Angioma Patient Registry. International Cavernou...
Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support
Learn more about becoming a volunteer ». Is an organization by and for those affected by cavernous angiomas and their loved ones, health professionals, and researchers. Learn more about Cavernous Angioma. WAYS TO GET INVOLVED. Plan an Event in Your Area. Join an Action Group. Shop to Support Us. The Ryan Challenge 2015! All donations from new donors marked "Ryan" will be matched up to $100,000! Summer Newsletter is out. Read about the latest research, event news and more. Our biggest awareness event ever!
Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support
Learn more about becoming a volunteer ». Is an organization by and for those affected by cavernous angiomas and their loved ones, health professionals, and researchers. Learn more about Cavernous Angioma. WAYS TO GET INVOLVED. Plan an Event in Your Area. Join an Action Group. Shop to Support Us. The Ryan Challenge 2015! All donations from new donors marked "Ryan" will be matched up to $100,000! Summer Newsletter is out. Read about the latest research, event news and more. Our biggest awareness event ever!
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ANGIOMA CAVERNOSO
Sexta-feira, 8 de maio de 2015. Várias pessoas, há alguns meses, vieram me dizer "que legal, Anália, você viu? Estão falando sobre Cavernomas na novela das 7". Como não costumo assistir, acabei não vendo. Não me perguntem porque, hoje parei e assisti. Também não sei. Coisas da vida. Passei mal ao ver a personagem da Sílvia Pfeifer dizendo para a sua ajudante "eu tenho um tumor cerebral e morrerei em breve". Fiquem calmos :) A Globo só foi ela mesma: tentou ajudar divulgando a doença, mas fez tudo errado.
Angioma Alliance Community Hub
Angioma Alliance Community Hub. Welcome to the Angioma Alliance Community Hub. This site provides access to a number of community features supported by Angioma Alliance. Click here to go to the Angioma Alliance web site. The Angioma Alliance Forum. This is a forum for discussions about cavernous angiomas, also called cavernous malformations or cerebral cavernous malformations. Visit the Angioma Alliance Forum. Angioma Alliance on Facebook. Angioma Alliance maintains a closed Facebook group for all members.
Angiomal.com
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