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Home - The Annabelle Rose Foundation for Spinal Muscular Atrophy

The Annabelle Rose Foundation for Spinal Muscular Atrophy is a charity registered in the UK, founded in February 2010 by Charlotte & Wayne Burfitt. The Annabelle Rose Foundation are dedicated to providing help & support to families affected by Spinal Mus

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Home - The Annabelle Rose Foundation for Spinal Muscular Atrophy | annabellerosefoundation.co.uk Reviews

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The Annabelle Rose Foundation for Spinal Muscular Atrophy is a charity registered in the UK, founded in February 2010 by Charlotte & Wayne Burfitt. The Annabelle Rose Foundation are dedicated to providing help & support to families affected by Spinal Mus

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annabelle - The Annabelle Rose Foundation for Spinal Muscular Atrophy

http://www.annabellerosefoundation.co.uk/annabelle/4572848344

The Annabelle Rose Foundation for Spinal Muscular Atrophy. Helping those who need it most. How you can help. Annabelles story, as told by mummy. Click here to scroll down. Annabelle Rose Burfitt was born on 18th January 2008 at 20:16pm after a very long labour! She was mine and Wayne’s first baby and meant the world to us. Annabelle was the most perfect baby she was truly beautiful. Her skin was flawless, her eyes huge and sparkly she couldn’t have been prettier if she tried. I researched SMA on the inte...

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leyton - annabellerosefoundation.co.uk

http://www.annabellerosefoundation.co.uk/leyton/4588281914

The Annabelle Rose Foundation for Spinal Muscular Atrophy. Helping those who need it most. How you can help. Although Leyton may not be able to walk, he's still a bright, lively little boy and is a bundle of giggles - it doesn't seem to have affected his cheeky chappy character and we're positive that he will achieve great things in life! To donate to Leytons Penny Pot and help leyton click on the Donation buttons! In the donation you can add a note/message of support that will be posted here! Good luck ...

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past events 2013 -The Annabelle Rose Foundation for Spinal Muscular Atrophy

http://www.annabellerosefoundation.co.uk/past-events-2013/4578725223

The Annabelle Rose Foundation for Spinal Muscular Atrophy. Helping those who need it most. How you can help. More past events 2013. Here you can find out what we have been up to or what you've been missing! We are always thankful of the continued support shown to us and and any amount raised however big or small is always gratefully recieved and will Help those who need it most. Summer family funday 17th august 2013. All in all a great time was had by all and we raised over 500! See you all next Year!

4

making a difference - The Annabelle Rose Foundation Spinal Muscular Atrophy

http://www.annabellerosefoundation.co.uk/making-a-difference/4571965509

The Annabelle Rose Foundation for Spinal Muscular Atrophy. Helping those who need it most. How you can help. Here you can see how your support, donations, sponsors and attendance to our Events goes to help those who need it most! The following articles are from some of the beneficiaries that we’ve had the divine pleasure in helping out! This, together with the car, means the outside world is accessible again something that we have not always been able to say. Being part of a team within competitive sport...

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what is sma? - The Annabelle Rose Foundation for Spinal Muscular Atrophy

http://www.annabellerosefoundation.co.uk/what-is-sma/4571965470

The Annabelle Rose Foundation for Spinal Muscular Atrophy. Helping those who need it most. How you can help. Spinal Muscular Atrophy (SMA) is a genetic disorder that affects nerve cells so that muscles can't be used and become wasted, or atrophied. SMA is a genetic disease and types I, II and III are autosomal recessive conditions meaning that if both your parents are carriers, you have a 1 in 4 chance of having the condition, around one in 20,000 babies are affected with type one SMA. Type 1 Is the most...

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Catherine's Wheel: Winter blues ...hoodie!

http://cathwheel.blogspot.com/2011/09/winter-blues-hoodie.html

Friday, September 23, 2011. Winter blues .hoodie! For those of you who know me or have SMA you will understand my hate for coat shopping. Some of you will be surprised to know that I do actually like to look 'nice' despite the fact that often you may turn up at my house to find me looking like a tramp in unmatching PJs! I love the summer as without heavy jumpers I can move my arms. Well this winter I am prepared for whatever the weather throws at me, as I have this . Gotta love a hoodie!

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Catherine's Wheel: Powerchair Football World Cup in Paris

http://cathwheel.blogspot.com/2011/12/powerchair-football-world-cup-in-paris.html

Friday, December 09, 2011. Powerchair Football World Cup in Paris. After a hectic October half term delivering Wheelchair Skills Training (WST) in Doncaster and assisting at the Whizz-Kidz North West inter-ambassador club sports day in. I should have been having a relaxing holiday… but I had been excited about this week since January when I put my annual leave request in! I was off to. To cheer on our National team in the Powerchair F. If I didn’t have a job I’d play all day every day! 8217;s, in fact.

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Catherine's Wheel: Uniqueness

http://cathwheel.blogspot.com/2010/05/uniqueness.html

Sunday, May 09, 2010. It has just occurred to me that I haven't mentioned that I have a neuromuscular condition called Spinal Muscular Atrophy. Type 2. I once knew a girl, who also had SMA, who had a page on her website called 'Uniqueness' where she mentioned her SMA hence the title of this blog post. I hope this now means that the topic choices in my previous blog posts make some. A bit more about my Uniqueness. I have never walked as SMA means I have no. Strength in my muscles. I was labeled. Whatever ...

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Catherine's Wheel: She's Electric

http://cathwheel.blogspot.com/2011/12/shes-electric.html

Monday, December 12, 2011. For Millie's Birthday we bought tickets for her and a friend to go to the T4 concert in London at Earls Court, she wanted One Direction tickets but they were sold out within minutes! So it was to be a bit of Ed Sheeran, Pixie Lott, Jessie J, The Wanted, Dappy and Example thank you very much! O) We had a fab, but very long, day. In short we had to be split up! Anyway back to T4, we didn't head to the mosh pit, we had to act responsibily, we had two children with us! As there wer...

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Andy’s Army Receives An Honoree Award! | Andy's Army

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Living Andy’s Legacy. Five Years Old →. Andy’s Army Receives An Honoree Award! January 7, 2014. We are thrilled to announce that we received a Legacy Honoree Award, on behalf of Andy’s Army, at the January 6, 2014, Live Your Legacy Summit. Here we are accepting this prestigious award with Summit host and organizer, Aurea McGarry. And here we are with all of the incredible award nominees and recipients. 8211;Audra Perry Butler. This entry was posted in Family News. Living Andy’s Legacy. You may use these.

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A Story of Birthdays | Andy's Army

http://andysarmy.com/a-story-of-birthdays

Another Thursday, June 4 →. A Story of Birthdays. January 8, 2015. Your little brother Will recently started pointing to your picture on our family room wall and saying, Baa-bee? I tell him that the baby in question is you, his big brother. Not understanding, he points to his own chest, emphatically repeating Baa-bee? Once more. With the singularity of mind that comes with being only one and a half years old, he thinks that he is the only baby that ever was. And, while I’m sure that you’ve already heard ...

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Merry Christmas and Happy New Year | Andy's Army

http://andysarmy.com/merry-christmas-and-happy-new-year

Living Andy’s Legacy →. Merry Christmas and Happy New Year. December 25, 2013. Wishing you a Merry Christmas and a Happy New Year…from our family to yours. With love, Alan, Audra, Lucy, Will and Our Angel Andy. This entry was posted in Family News. Living Andy’s Legacy →. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. You may use these. A href= title= abbr title= acronym title= b blockquote cite= cite code del datetime= em i q cite= strike strong.

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Living Andy’s Legacy | Andy's Army

http://andysarmy.com/living-andys-legacy

Merry Christmas and Happy New Year. Andy’s Army Receives An Honoree Award! Living Andy’s Legacy. January 5, 2014. Wednesday, January 8, would have been Andy’s fifth birthday. It’s hard for me to comprehend that it’s been five years since he entered this world – and left it so abruptly. And, that’s just what we have been doing for the past five years with Andy’s Army. Tomorrow, my husband Alan and I are among the honorees at Aurea McGarry’s Live Your Legacy Summit. Andy would have loved it. Merry Christma...

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News | Andy's Army

http://andysarmy.com/category/news

June 4, 2016. Dear Andy, It’s storming outside as I sit here, trying to find the words for my annual letter to you. Torrential rain lashes against the windows. The sky is foreboding and gray, punctuated with angry flashes of lightening. Thunder booms … Continue reading →. January 8, 2016. August 1, 2015. July 28, 2015. On July 25th, we lost a friend. Gwendolyn Strong was – and always will be – such a huge inspiration to us. Her family was always there for ours, standing beside us in o...June 4, 2015.

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Welcome

REmix Magazine - ISsue 86 cover display. Annabelle Rose Design - business cards. Elevation capital - conference save the date. Fluxx media - logo branding design. Remix magazine issue 86 - art direction design. REMARKABLE - BRANDING PACKAGING CONCEPTS. Fawad Ahadi Branding Website design. Remix magazine #85 - the beauty and luxe issue.

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Home | Annabelle's House Foundation

The Sky's The Limit. With the help and generosity of the community, the future for Annabelle is. From your continued support Annabelle is progressing and. Developing the fundamental skills that come naturally to us all. We are always so happy to share any of Annabelle's Progress with you. You can follow Annabelle's progress on her blog page or her face book page! Do you have a great fundraising idea that you would like to share with us? Would you Like to volunteer your services? How Can You Help. Mummy s...

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Home - The Annabelle Rose Foundation for Spinal Muscular Atrophy

The Annabelle Rose Foundation for Spinal Muscular Atrophy. Helping those who need it most. How you can help. The Annabelle Rose Foundation for Spinal Muscular Atrophy is a charity. Registered in the UK, founded in Febuary 2010 by Charlotte and Wayne Burfitt. The Annabelle Rose Foundation are dedicated to providing help and support to families affected by Spinal Muscular Atrophy (SMA). Our objectives/aims are to:. I) Provide relief of persons suffering from SPINAL MUSCULAR ATROPHY and related conditions.

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